Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 I don't know what " zen " is to which you refer - if it's oregano oil it's known some aromatic oils can trigger seizures in susceptible people. Margaret > > > > Hi > > Have just been through my sons second seizure in 24hrs and feel very > helpless. The only change in his supplements in the last day has been > the introduction of 200mg of zen, i can only wonder if this has had > anything to do with it? > > He is back at the hospital where seizure meds are a likely > recommendation from the drs but hope there is something else that can > be taken than medicating him on drugs. > > Any thoughts appreciated. > > Kate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 Zen is Gaba and I've seen on here a couple of times parents reporting that seizures increase with GABA. Don't know why but maybe someone will comment now they know it's GABA (as recommended by Dr Culp, I presume) Sara Margaret wrote: > > > I don't know what " zen " is to which you refer - if it's oregano oil > it's known some aromatic oils can trigger seizures in susceptible people. > Margaret > > > > > > > > > Hi > > > > Have just been through my sons second seizure in 24hrs and feel very > > helpless. The only change in his supplements in the last day has been > > the introduction of 200mg of zen, i can only wonder if this has had > > anything to do with it? > > > > He is back at the hospital where seizure meds are a likely > > recommendation from the drs but hope there is something else that can > > be taken than medicating him on drugs. > > > > Any thoughts appreciated. > > > > Kate > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 > > > > > > > > > > Hi > > > > > > Have just been through my sons second seizure in 24hrs and feel very > > > helpless. The only change in his supplements in the last day has been > > > the introduction of 200mg of zen, i can only wonder if this has had > > > anything to do with it? > > > > > > He is back at the hospital where seizure meds are a likely > > > recommendation from the drs but hope there is something else that can > > > be taken than medicating him on drugs. > > > > > > Any thoughts appreciated. > > > > > > Kate > > > > > > > > hi kate i heard you give gaba towards the end of biomed treatment after you have mended the left and right side of the brain ,just to connect the neuro transmitters, maybe he is allergic to it? sorry to hear he has had another seizure,isobel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 Hi Kate I am not sure if this may help... for many years we have been really frantic when Tatijana had seizures following a therapy or remedy... As she has got better, we are now at the point of wondering if for an epileptic child healing takes place when toxins in the brain are released... and the changes in the brain are reflected in seizures. Following two of the largest seizures we have seen with Tash., using TST, her teeth have shifted into perfect alignement and we have seen some very useful changes... Also she has always had more seizure activity when she has viruses or is very tired or dehydrated... I guess where we are at is thinking that seizure activity can also be a sign of a positive change on its way. Best wishes Tracey On Thu, Oct 15, 2009 at 10:43 AM, isobelwizza <isobelwizza@...> wrote: > > >> > > >> > > Hi> > >> > > Have just been through my sons second seizure in 24hrs and feel very> > > helpless. The only change in his supplements in the last day has been > > > the introduction of 200mg of zen, i can only wonder if this has had> > > anything to do with it?> > >> > > He is back at the hospital where seizure meds are a likely > > > recommendation from the drs but hope there is something else that can> > > be taken than medicating him on drugs.> > >> > > Any thoughts appreciated.> > > > > > Kate> > >> >> >>hi katei heard you give gaba towards the end of biomed treatment after you have mended the left and right side of the brain ,just to connect the neuro transmitters, maybe he is allergic to it? sorry to hear he has had another seizure,isobel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 The pROSHI has been helpful in eliminating or reducing seizures.RahNeuroguide ; NeuroField ; Lens_User_group ; ; brainm From: diane@...Date: Tue, 18 Oct 2011 09:39:50 -0400Subject: Seizures I have a patient with Locked-in Syndrome, who has made enormous progress and is now moving on his own over the last 2 years. However, his seizures really set him back for weeks at a time.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 We have a pt who had RNY several years ago who has been having seizures for the past 9 months. She has been noncompliant with taking her vitamins (she doesn't take any at all) despite regular reinforcement on our side. Does anyone know of any specific nutrient deficiencies that can cause seizures? Dana Schaub MS,RD,LD Clinical Dietitian Specialist on @ Singing River Health System and South Mississippi Surgical Weight Loss Center DanaPearson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 Has a celiac panel been done?From: Dana Schaub <dancindrpea@...>Subject: Seizures" " < >Date: Thursday, March 22, 2012, 5:31 PM We have a pt who had RNY several years ago who has been having seizures for the past 9 months. She has been noncompliant with taking her vitamins (she doesn't take any at all) despite regular reinforcement on our side. Does anyone know of any specific nutrient deficiencies that can cause seizures? Dana Schaub MS,RD,LD Clinical Dietitian Specialist on @ Singing River Health System and South Mississippi Surgical Weight Loss Center DanaPearson@... 1 of 1 File(s) Spectrum Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2012 Report Share Posted March 23, 2012 Is she having hypoglycemia? From: [mailto: ] On Behalf Of LeBrunSent: Friday, March 23, 2012 7:27 AM Subject: Re: Seizures Magnesium deficiency can cause seizures -this pt should be worked up by a neurologist ASAP. On Thu, Mar 22, 2012 at 9:25 PM, julie thompson <jlt_rd@...> wrote: [Attachment(s) from julie thompson included below] Has a celiac panel been done? From: Dana Schaub <dancindrpea@...>Subject: Seizures" " < >Date: Thursday, March 22, 2012, 5:31 PM We have a pt who had RNY several years ago who has been having seizures for the past 9 months. She has been noncompliant with taking her vitamins (she doesn't take any at all) despite regular reinforcement on our side. Does anyone know of any specific nutrient deficiencies that can cause seizures? Dana Schaub MS,RD,LD Clinical Dietitian Specialist on @ Singing River Health System and South Mississippi Surgical Weight Loss Center DanaPearson@... -- LeBrun, MPH,RDSenior Nutritionist Washington Medical Faculty Associates2150 Pennsylvania Ave., NWSte 6-105Washington, DC 20037202.741.2422clebrun@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2012 Report Share Posted March 23, 2012 Dana, You might also have her oxalate levels checked as oxalate building up can cause seizures. (see abstracts below) A parent in Spain told me at a conference that within a week or two of reducing oxalate in the diet her child's seizures went away. Of course, RNY increases your absorption of oxalate from the diet and there are also genetic susceptibilities in handling oxalate. Is she eating high oxalate foods like spinach, beets, okra, chocolate, kiwifruit, etc.? Could she be getting deficient in B6 or thiamine, both which might decrease enzyme activity that protects us from making endogenous oxalate? Advice about testing oxalate: One test will not be definitive: Yesterday, one of our pediatricians sent me a series of eight tests of urine oxalate and creatinine on a child with Down syndrome (where there are particular risks from oxalate). Basically, the mom collected urine every time the child peed. There was as much as a six fold difference in oxalate concentration within the day for this child. There can also be day to day variability. Our recent study in the European Journal of Paediatric Neurology (http://www.ncbi.nlm.nih.gov/pubmed/21911305) showed that there was a sixteenfold difference in the plasma to urine oxalate level detected in 36 children with autism in the study. Clearly, measuring oxalate in one compartment or only once does not give you the whole story. Also of note in that study, all but one child was over the level seen in controls in blood, urine, or both, and some very high into the territory seen in the genetic hyperoxalurias, but not one of these children had any signs of kidney stones, and neither did they have high risks of getting stones, probably because their urine calcium was too low. People can be at risk from oxalate in other organs when there is no sign of kidney stones because in them, perhaps they do not have the risks that make the kidneys the site of vulnerability. I hope that makes sense, but if you read the study, you will get more of the sense of that. Our listserve helping people with a low oxalate diet now has more than 4500 people on it, and the best latest testing for oxalate in foods and herbal supplements and such (more than 1500 foods). Our group is called Trying_Low_Oxalates , and it is a very supportive place to be. We actually are getting quite a few bariatric patients there that find us on their own. Autism Oxalate Project at ARI 1. J Formos Med Assoc. 2002 May;101(5):337-41. Neurotoxic effects of carambola in rats: the role of oxalate. Chen CL, Chou KJ, Wang JS, Yeh JH, Fang HC, Chung HM. Division of Nephrology, Kaohsiung Veterans General Hospital, 386 Ta-Chung 1st Road, Kaohsiung, Taiwan. BACKGROUND AND PURPOSE: Carambola (star fruit) has been reported to contain neurotoxins that cause convulsions, hiccups, or death in uremic patients, and prolong barbiturate-induced sleeping time in rats. The constituent responsible for these effects remains uncertain. Carambola contains a large quantity of oxalate, which can induce depression of cerebral function and seizures. This study was conducted to investigate the role of oxalate in carambola toxicity in rats. MATERIALS AND METHODS: The effects on barbiturate-induced sleeping time and death caused by intraperitoneal administration of carambola juice were observed in Sprague-Dawley rats. To obtain a dose-dependent response curve and evaluate the lethal dose, rats were treated with serial amounts of pure carambola juice diluted with normal saline in a volume of 1:1. To test the role of oxalate in the neurotoxic effect of carambola, either 5.33 g/kg carambola after oxalate removal or 5.33 g/kg of pure carambola juice diluted with normal saline were administered intraperitoneally, while the control group was given normal saline before pentobarbital injection. The effects of carambola and oxalate-removed carambola on barbiturate-induced sleeping time were compared with those of saline. To assess the lethal effect of oxalate in carambola, we gave rats chemical oxalate at comparable concentrations to the oxalate content of carambola. RESULTS: Carambola juice administration prolonged barbiturate-induced sleeping time in a dose-dependent manner. The sleeping time of rats that received normal saline and 1.33 g/kg, 2.67 g/kg, 5.33 g/kg, and 10.67 g/kg of carambola juice were 66 +/- 16.6, 93.7 +/- 13.4, 113.3 +/- 11.4, 117.5 +/- 29.0, and 172.5 +/- 38.8 minutes, respectively. The three higher-dose groups had longer sleeping times than controls (p < 0.05 or 0.005). This effect was eliminated after the removal of oxalate from carambola juice. Four of eight rats in the 10.67-g/kg group and all rats in the 21.33 g/kg and chemical oxalate groups died after seizure. Lethal doses of carambola juice were rendered harmless by the oxalate removal procedure. CONCLUSIONS: Oxalate is a main constituent of carambola neurotoxicity. This finding suggests that patients with carambola intoxication should be treated for oxalate toxicosis. PMID: 12101851 [PubMed - indexed for MEDLINE] 2. Can Vet J. 1988 Dec;29(12):1005-6. Oxalate nephropathy associated with seizures in mink. Sanford SE. PMCID: PMC1681064 PMID: 17423181 [PubMed] 3. Int J Legal Med. 2004 Apr;118(2):98-100. Epub 2003 Nov 22. Fatal cerebro-renal oxalosis after appendectomy. Pfeiffer H, Weiss FU, Karger B, Aghdassi A, Lerch MM, Brinkmann B. Institute of Legal Medicine, Röntgenstrasse 23, 48149 Muenster, Germany. pfeiffh@... A case of a 24-year-old male with fatal cerebro-renal oxalosis assumed to be due to infusions of the sugar surrogate xylitol after appendectomy is reported. The diagnosis was established only after intensive histological investigations following the autopsy. The clinical picture was characterized by an acute seizure, coma and renal failure 2 days after the first xylitol infusion. Death occurred due to cerebral dysregulation as a very rare complication after parenteral administration of xylitol. Subendothelial double refractive calcium oxalate crystals were found in the walls of cerebral blood vessels, in particular in the stem ganglion regions and in the cortical renal tubules. The most common type of primary oxalosis was excluded by sequencing analysis. The young age, the minor surgical intervention and the otherwise unremarkable history are special features of this case. Since the genetic background of xylitol intolerance is still unclear, it is suggested that it should be banned as a sugar surrogate in clinical practice. PMID: 14634832 [PubMed - indexed for MEDLINE] > > > > From: Dana Schaub <dancindrpea@...> > Subject: Seizures > " " > < > > Date: Thursday, March 22, 2012, 5:31 PM > > > > > > > We have a pt who had RNY several years ago who has been having > seizures for the past 9 months. She has been noncompliant with taking > her vitamins (she doesn't take any at all) despite regular reinforcement > on our side. Does anyone know of any specific nutrient deficiencies > that can cause seizures? > > Dana Schaub MS,RD,LD > Clinical Dietitian Specialist > > on @ Singing River Health System and > South Mississippi Surgical Weight Loss Center > > DanaPearson@... > > > > > > > -- > LeBrun, MPH,RD > Senior Nutritionist > Washington Medical Faculty Associates > 2150 Pennsylvania Ave., NW > Ste 6-105 > Washington, DC 20037 > 202.741.2422 > clebrun@... > Quote Link to comment Share on other sites More sharing options...
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