Welcome Thanks

[Guest guest]

Thanks, Gretchen.

I have already learned a lot from reading the postings here. Now

that I have a doctor who is the first one to ask me specific

questions about my childhood (where I earned the

nickname " Butterfingers " because I could not catch a ball)and my

current symptoms, I have some reason to hope that I can get to the

bottom of what is causing my symptoms.

I was not surprised that the results of the genetic test came back

negative. The doctor had warned me that it was unlikely that I had

the type of CMT that was covered by that test. In the meantime, I

can get by with being very careful when I walk and when I am holding

anything that is valuable and breakable.

I will be searching back through older postings to see if others in

the group have experiences similar to mine. It is great to have

as a resource.

Ken

[Guest guest]

Thank you, Joana and all. I really look forward to getting to know you all.

Thanks for the warm welcome. That's so sweet of you.

Donna

[Guest guest]

Thank you so much for the information and welcome. I will have to talk to my

neurologist about the things you mentioned. I have constant pain in my feet and

lower legs unfornately and different kinds. I'm on meds which helps some. But

thanks for the additionally info.

Bobbie

[Guest guest]

Elaina,

Thank you so much for the warm welcome and advice. . I know that the one of

the hardest things is not being able to do all that I used to do and become

tired out so easily.

Bobbie

[Guest guest]

Donna,

Thank you for the welcome. And you know exactly how I feel. I seem to fall

asleep in weird places to try to just get a little rest in.

Bobbie