Re: personal short explanation

[Guest guest]

When someone asks me " what's wrong with you " , I reply " nothing " . (This is

because I believe nothing is, I am not in denial, but CMT to me does not qualify

as 'something wrong'.

If someone askes me " did you hurt your foot " , I say " no " , because I

didn't.

For something short, I say " I have a balance and coordination problem

as a result of a neurological disorder " .

If they want to know which one, then I say " CMT " . I pull out cards I

had made up with some Websites on them for people's education.

And I alway's say " Don't worry, you can't catch it! " ...and with that I

go on my way.

Jasen

[Guest guest]

The main reason I left the answers for the 2 questions my grandson will face the

rest of his life; What is wrong with you? What is CMT? I believe the answers are

different for each person and the circumstances(age, maturity level, teacher,

classmates)

What is wrong with you? At his age (8), I gotta problem with my nerves(this

explanation will change as he grows up). He is very knowledgable when it comes

to CMT but he knows to keep it simple.

What is CMT? For the majority of the people who ask this question: The nerves

weaken the muscles. For his teachers and others: I could explain it, but there

are web sites that explain it better than I can, Here is one.

http://www.charcot-marie-tooth.org/site/content/ If they don't have access to a

computer, and we feel they are sincere we give them a copy of this:

http://www.charcot-marie-tooth.org/site/content/whatiscmt/index.asp

Another question he faces; What does the letters in CMT stand for? (The people

that named this wasn't thinking of us). Initials of the 3 scientists that

discovered it.

, you handled it ok, don't bring yourself down to their level, ignore and

move on.

Good Luck, Sparkye