Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Paige, Go back to our archives from earlier this year for the Botox injections discussions. I asked Greg , MD, CMT expert about this and he said Botox could make CMT problems more complicated, because of its paralysing effect, and why give CMT people more problems? Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Paige, I went to a pain management doctor to get Botox injections and he said he wouldn't recommend getting them. He said it might affect the other muscles because over time the Botox spreads to other muscles and could make the other muscles weaker. I take muscle relaxers and he even recommended I don't take them. But they are the only thing I can take. I'm allergic to all of the pain killers that will help with my back pain. So do allot of researching before you do it. Gretchen is the first person who told me not to get them. Good luck. Tommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 it's botulism, a toxin and mercury toxic kids don't excrete........seems like a risk... [ ] Botox Injections > Hi > > Does anyone perhaps know if botox injected into muscles will have an > adverse reaction? My daughter definitely has mercury toxicity as > determined by hair analysis from Doctor's Data. She did not " develop " > autism, but got cerebral palsy symptoms. All her muscles are stiff (she > has spasticity). > > I firmly believe that if I can get rid of mercury completely in the brain, > her muscles will relax. But the problem is that whilst she is growing, > her bones are growing but her muscles are being left behind. We are > currently on round 34 and it can take up to 300 rounds to fully " remove " > the mercury from the tissues. Which means quite a few years of growing. > Do you see my dilemma? > > Obviously the neurologist has never mentioned mercury toxicity and > obviously as most " scientific " doctors, he doesn't believe in mercury > toxicity. He says that she has a lot of potential, but only by using > certain methods to relax the muscles and then doing intensive stretching > and so trying to overcome some of the spasticity and the shortening of the > muscles. So what he recommends is botox injected into the affected > muscles. Apparently the botox is localized in the muscles and does not > affect the rest of the body. It is not a long term " fix " and wears off > after a few months. It relaxes the muscles and in the short time that it > is active we can stretch those muscles that are affected and she will be > able to use/exercise other muscles that are not used because they are > " overshadowed " by the muscles that are very spastic. > > Does anyone have any opinions in this regard? I want to do the botox as > it will help her immensely, but I am also scared of adverse reactions. > Also, I will have to do my homework as to whether the injections are > preserved by thiomeresol. > > > > ------------------------------------ > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 On the other side....someone I know, has a girl with similar issues. The mother doesn't know / is interested in a single thing about investigation, has done botox shots in the girl's legs (big amounts, this case they are addressing the largest body muscles) and she is doing very well with that. She has gained control of walking, grabbing a pencil too. It is a real dilemma, can you try w low doses and see what it the relation risk/benefit? Also, have you ever pondered the possibility of doing the Masgutova method? Cerebral palsy is their speciality. Go to: www.childwithchallenges.com the masgutova method has been very successful for lots of families and is not dangerous, it is a neurological re patterning method that allows improvement for so many. I wish you luck, Isa Enviado desde mi oficina móvil BlackBerry® de Telcel Re: [ ] Botox Injections it's botulism, a toxin and mercury toxic kids don't excrete........seems like a risk... [ ] Botox Injections > Hi > > Does anyone perhaps know if botox injected into muscles will have an > adverse reaction? My daughter definitely has mercury toxicity as > determined by hair analysis from Doctor's Data. She did not " develop " > autism, but got cerebral palsy symptoms. All her muscles are stiff (she > has spasticity). > > I firmly believe that if I can get rid of mercury completely in the brain, > her muscles will relax. But the problem is that whilst she is growing, > her bones are growing but her muscles are being left behind. We are > currently on round 34 and it can take up to 300 rounds to fully " remove " > the mercury from the tissues. Which means quite a few years of growing. > Do you see my dilemma? > > Obviously the neurologist has never mentioned mercury toxicity and > obviously as most " scientific " doctors, he doesn't believe in mercury > toxicity. He says that she has a lot of potential, but only by using > certain methods to relax the muscles and then doing intensive stretching > and so trying to overcome some of the spasticity and the shortening of the > muscles. So what he recommends is botox injected into the affected > muscles. Apparently the botox is localized in the muscles and does not > affect the rest of the body. It is not a long term " fix " and wears off > after a few months. It relaxes the muscles and in the short time that it > is active we can stretch those muscles that are affected and she will be > able to use/exercise other muscles that are not used because they are > " overshadowed " by the muscles that are very spastic. > > Does anyone have any opinions in this regard? I want to do the botox as > it will help her immensely, but I am also scared of adverse reactions. > Also, I will have to do my homework as to whether the injections are > preserved by thiomeresol. > > > > ------------------------------------ > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
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