beliefs and CMT

[Guest guest]

,

I am the same age now that my mother was when she sat next to me in

the orthopedist's office and we both heard that I had CMT. My mother

believed the doctor could cure me, I believed I had done something

absolutely terrible and that I had CMT as a punishment from god. Two

people, two lives. Neither was bad or wrong. My mother kept on

searching for " the cure " , I kept on running from that punishing god.

I believe, now, after all those years of running (and no cure) that

it all was just part of my life's story that unfolded like a

butterfly does when just coming out of the cocoon. More is always

revealed. My mother used to often remark on what a hard life I had.

And I would reply, " no, my life isn't hard, Mom. A hard life is

living in the Sudan without food or water or medical care and no

hope " . My mother was often so surprised that such words would come

out of me.

Mothers and daughters - want to write a book with me? lol

~ Gretchen