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Hi Donna,

I think for some support can be hard to find because CMT is difficult to relate

to. Some CMTer's look " normal " like me. To look at me you would think I have

nothing wrong. I'm 6'3 " and as many have said I'm not someone they would want

to meet in a dark alley. :) What they don't know is the pain and fatigue and

fear and worry that goes on every day. It's hard to explain to someone that

your feet are numb but at the same time you can feel intense pain if you step on

the smallest pebble.

Sometimes my boyfriend seems to have the " it's all in your head " , or " you're

milking this " attitude but then again maybe he doesn't but I just think he does.

Maybe we should get a psych class going on such things. Is it really the way

people perceive us or do we just think that's the way they perceive us? I'm

confusing myself.

Anyway, my family knows I'm in pain and they feel bad and worry but I feel that

they don't know how scary it can be sometimes. Again who's perceiving things,

me or them. I just wanted you to know that I understand and I'm sure we can all

relate to you in one way or another.

Best wishes!

Elaina.

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