Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 Ok everyone I am very confused now. I went to go see a pain specialist yesterday and he says he highly doubts I have CMT at all. I never had any genetic testing or biopsy but I have the foot drop, fatigue, pez cavus, and have had numerous surgeries. I also have to wear my AFOs or I can barely walk. He said I do have Charcot's foot but I do not have the characteristic shaped legs and I have reflexes and no family history of CMT. He is trying to blame most of my problems with nerves in my upper and lower back. He also said I do have a peroneal neuropathy, (DUH ISNT THAT CMT?) Also, he said my chronic fatigue is because of restless leg syndrome and chronic sleep deprivation because I may not be getting to the REM sleep stage. My weakness in my hands he blames on a brain disorder I have called Chiari Malformation. Anyways, I don't know what to believe. He wants to do an MRI and a sleep study and another EMG. I think I may request genetic testing. For 14 years I was told I had this and this doctor isnt the first one to doubtthat I even have it. Does everyone have the characteristic CMT legs? Quote Link to comment Share on other sites More sharing options...
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