Re: : Kids and stress with CMT

[Guest guest]

Hi Gretchen and everyone:

Thanks so much for your support...I agree, I think somehow he's internalized

alot of this and it's coming out other ways. We do have Aunt Scarlett's farm

and had read it to him last summer...but you've a good point..we should go

back to it. did a wonderful job with her book. His Integration

support advisor said previously she could talk to the class about what AFOs

were...maybe he needs to see that they are a normal part of life for some

people.

I'll sit down with him and try to talk about what's happening at school. A

number of people have asked about bullying. Oddly enough, at least 3 of the

kids in his class are so supportive they help him put on his AFOs, try them

on for fun themselves, and one says she holds his hand to help him run

faster when he's tired...another boy (the biggest in the class...a gentle

giant) told me that he knows Gav's muscles are a bit weaker so he's careful

not to knock him over...but then it only takes one bad apple. His teacher's

are extremely supportive.

We've had alot of doctor's appts recently, so maybe I should talk to him

about that too...He needs to know it's not his fault, just his normal and

that's ok...

I'll check out that goodnites site , thanks and your link Gretchen.

We're going to have a meeting with his Integration support advisor and

teachers next week to try to strategize ways to help him focus better.

On reflection it seems amazing that we all focused on the emotional affects

of this on Rob and I, but not on Gavin himself.

Its' so great having you all out there!

Thanks

Sally