Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi everyone! I can't help but feel the same way as those who have CMT. I'm 30 years old and still single. Based from my experience, it was really hard having it but there's no choice but to accept it. I've got small feet (It's really hard to look for shoes that fits) and I can't wear heels, I also can't wear skirts and shorts because I've got small legs so I just wear pants all the time. Of course I cannot do what most normal people do. But I've learned to accept and adapt to what I can do. Sometimes, I still ask God why He gave me this. But I realize that He doesn't give us things we can't handle. It's really nice to have this support group because we can share our own experiences with others. I mean, I can relate to others who have CMT like me. Considering that CMT is not yet that known here in our country. Take care, Mylah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Mylah I don't post much but just had to reply to this (being a complete romantic at heart!) I was in my early 30's and single, unemployed and was going through a particularly bad patch; my mobility was going downhill and having no choice but to use a cane my confidence was shot to hell.I guess I was still in relative denial at that point about my situation (if I ignored it then it didn't exist) but the cane meant I had start facing up to it. Anyway, a male friend told me that essentially that you have to stick in people's conciousness for the right reasons ie personality and positivity. If people were going to remember that person had a cane or some sort of disability then make sure they remember that person for good reasons. Since I'm now in a long term relationship (and job) he obviously has a point. But I'd also like to say that there's no cutoff age for romance or opportunity for happiness. Acceptance goes a long way to being happy with yourself or content at the least! Hang in there! PS As for shoes - I've always had little square high arched feet unable to wear heels or court shoes and spent my entire life depressed every time I look in a shoe shop window. I now cross the road to the bookshop - what was that I was saying about acceptance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Welcome Mylah. I'm new here myself. Learning to deal with it myself. Bobbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Jackie, wow I love that story made me smile bigtime...I hope you do not mind me using that line(meet one of Jerrys kids).well at least he was not an insensitive a-hole and he offered to take you to dinner(probly just wanted to meet a pretty girl).I had a guy on a job of mine ask me if I had fake legs,I thought wow is it that noticeable I just did not realize.I have made to age 37 and I'm still having a hard time realizing that CMT IS a part of my life and it IS here to stay,and geting worse.yuk.Finding this mail group is really helping me,hearing from people like you who also have a CMT story to tell Thanks SOOOO much... Geoff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Geoff, I have so many stories like that I should write a book. My girlfriends used to crack up at how fast I came up with stuff, like when they would ask why I wore a knee brace, I said I fell off a camel in the middle east when I was stationed out there; another I told that I did it bungee jumping and another I just told I like being on my knees a lot ( you should have seen that expression; LOL) Now, 15-20 years later, I am not such a smart aleck and just matter of factly say I have a progressive condition. I would say since joining this group, my acceptance level of CMT has risen dramatically and it does not scare me as much as it used to. Knowledge is power and not that I do a whole lot of prevention like others here do, at least my emotions are better. I have it pretty bad and my quads are considered paralyzed and my arms are weaker than they used to be, but it has not taken the fire or the spirit out of me. Now I just chair dance and make sure I have a chair that can spin! Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Geoff, I was diagnosed with CMT when I was 10. It took 17 years and a 12 step program for me to learn what 'acceptance' truly is, and then I could finally 'accept' CMT. Gretchen Quote Link to comment Share on other sites More sharing options...
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