Re: CMT specialist in Canada

[Guest guest]

Hi Gretchen,

Thank you for your recommendations. I will see what other suggestions

might come in from the Canadian side of the border. Otherwise, according

to your information, it seems we should definitely pursue a

meeting/appointment with one or all of the doctors you have suggested.

Will keep you posted as we go forward.

Yes, it is a good sign that our son seeks greater insight into his own

situation. With time, he may soon be 'posting' to you, himself!

Debbie

[Guest guest]

Dr. Phil Chance not only is a specialist in CMT at UW, he is a CMT patient

as well.

Monte

[Guest guest]

I would really like take my son Spencer to see a doctor that has CMT. I think it

would make him feel more " normal " . Where is UW?

[Guest guest]

Debbie, I live near Hamilton, Ontario and my specialist here is listed below.

Mark is a wonderful man and very knowledgeable about CMT. He has wrote some

articles for DMA in the US and has conducted studies on various possible

treatments of CMT. Anyways hope this helps still in Canada although further

then your area to the US. Please let me know if you need more information.

Mark Tarnopolsky, MD, PhD, FRCP©,

4U4 Dept of Neurology,

McMaster University Medical Center,

1200 Main St. W., Hamilton,

Ontario, CANADA, L8N 3Z5

1-905-521-2100 (76593)

[Guest guest]

Debbie,

Are you near Vancouver? Have you seen a neurologist there? There's a good EMG

lab at VGH Willow pavillion. I'd recommend Dr. Mezei. She's not specifically a

CMT specialist, but does specialize in hereditary neurological diseases if I

recall correctly.

Fred.

[Guest guest]

Hi ,

Thank you for your recommendation. Although Hamilton is quite a

distance from Vancouver, compared to Seattle, it is within Canada -

definitely an advantage with respect to healthcare expenses! It may

turn out that Dr. Tarnopolsky knows of a CMT specialist here in the

west. Otherwise, we may travel your way to see him. Meanwhile, we will

see if other recommendations come in from other Canadian CMT patients...

Will keep you posted,

Debbie

[Guest guest]

Hi Fred,

Yes, we do live in Vancouver, and yes, we have been to a neurologist

here - Dr. Keyes at St. 's Hospital. Our son was referred by Dr.

Roland, who is the neurologist at Children's Hospital who first

diagnosed him. Dr. Keyes is very good, and is informed with respect to

CMT. But, it is not his specialty, from what I understand... It is my

son who is requesting the CMT specialist, thus, I have undertaken to

do some research for him. Once I am armed with further information, I

will contact Dr. Keyes to ask his advice as to where we should proceed

from here.

Thank you for your recommendation of Dr. Mezei. I will definitely keep

her in mind.

Debbie

[Guest guest]

Debbie, I will email Mark and ask him if he has any recommediations for your

area. I will let you know what I find out.

[Guest guest]

Thanks, , I would appreciate that.

Debbie

[Guest guest]

Hi :

Thanks for this contact info...we're in Ottawa and may at some point want to

consult a neurologist with more direct CMT experience. Our doctor here at CHEO

is very good but they don't have alot of CMT kids at the neuromuscular clinic.

Cheers

Sally

[Guest guest]

Sally, you are welcome. Mark is a wonderful man and very knowledgeable in CMT.