Re: differing symptoms

[Guest guest]

michael,

the only thing i have lost is some of the hair on my head. it thins out and is

going grey. but that could be im under alot of stress too. i wish the hair on my

legs would fall off .. less shaving lol.. but then again i dont let any one see

my legs much except my family. cause they are prity bad.

my feet are really cold all the time. but i cant feel the bottom of them. unless

i step on a small rock or some thing like that. hope that helps ya some. take

care.

donna.

[Guest guest]

Hi Mike,

Funny, that's strange you mention the hair loss. This is , and I always

thought it was a plus, being a woman, not having to shave her legs very often. I

rarely have hair on my legs and noticed not having to shave under my arms that

often anymore. HMMM!! Even when someone mentioned about being double jointed.

That applies to me also. I guess alot that has to do with nerve endings. I'm

learning something new everyday.

Thanks,

[Guest guest]

Hi Mike,

As we know, everyone has diferent symptoms and it is hard sometimes.

I wonder if you did go to see a doctor, about your hair problems?

I am just wonder if this could be some kind of hormone imbalance?

Are you doing any exercises now? I believe it could help you too..your

circulation could improve a lot! Feel free to email me anytime Mike! Stay happy!

Joana

[Guest guest]

Hi, just wanted to say I am a victim of this hair loss thing also. Never

connected it with CMT - actually didn't know I had CMT when I first started to

loose the hair - first on legs, then underarms and latest my hair is thinning on

top of head. I turned gray very early - had gray hair streak at 20 and it went

from there. By 50 I was grey and now almost white- and thin.

Also - do mind cold in wintertime - especially in right foot (left cold too but

not nearly as bad) - right foot turns almost blue up to mid calf so have to be

extra careful keeping it warm. Fingers get cold when outside - wear mittens to

keep warm. Loss of feeling in lots of spots all over body, not just feet.

But, with all this, I am so thankful that I have minimum pain. Guess we are all

different.

June in PA

[Guest guest]

hi june,

i also started getting grey streaks in my hair in my earily 20s im 26 now and

have alot of grey hair. and its thining bad.. its falling out in the back

mostly. i dont care for that much. i dont have alot of hair on my legs. but most

of it falls out on my head. i try to color my hair.. but it dont last long. lol

i where a hat alot so no one can see im loosing my hair. i dont care for loosing

my hair on my head. ahg.. oh well.. just adds one more thing to the unique ness

of having deformitys and all from cmt.

thanks for your post. i thought i was the only one that got grey hair and loose

my hair on my head. now i know im not alone. thanks again june.

with much love,

donna..

[Guest guest]

I have more grey hair than anyone in my family had at this age. there is no

longer underarm hair and the hair on my legs is falling out fast. I have a

nearly bald spot on the front top of my head, it is so thin I get sunburned if I

don't wear a hat to cover it. now if the hair on my chin would fall out and stay

out I would be happy.

Cathleen in Arkansas

[Guest guest]

Joana,

Like everyone says " everyone's symtoms are different " my feet never get cold or

hot, I can't tell if I have socks on or not. I sometimes get in the shower with

my socks on and last winter I went to my neighbors barefooted and it was below

freezing.

My hands started dying about 10 years after my feet. Now when the cold gets to

where I can feel it my fingers are nearly frozen and for about an hour the pain

is killer.

I lost the hair on my legs years ago, about a year ago I was shaving and happen

to look at my underarms, shock I have no hair under my arms. Now most of my

chest hair is gone. I have a full head of hair and no loss elsewere and no gray

at 52. Anybody heard of this before?

Mike