Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Tracey, Depakote is one of those meds that seems to irritate the gut over the long term which decreases the seizure threshold, especially for those with sensitive guts like Tasya. Today is day 18 of her recovery period from the bad episode she had and Tasya is becoming a normal happy kid again. Thank God. Anika is 17 months old now and aside from the occasional sniffle , is doing great. In health, Mark Schauss www.southwoodresearch.org Re: [ ] Zonegran Hi Mark, Well I just mentioned to Grace that you had Tasya on Zonegran and Depakote combo. I know the last time we spoke it was controlling her well. I am sorry to hear that is not working out for you. How is Tasya doing? Have you linked the seizure activity to anything yet? I know you mentioned stomach problems... Good to hear from you. How is that " new " baby doing? God bless, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 My son is taking zonegran 250 mg. a day and this is the only drug he has never had any noticeable side effects from (so far). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 , That's great, I hope that he does well on it! Grace On Fri, 23 Apr 2004 22:08:17 -0400 " Mike Mchugh " <mcpitza@...> writes: > My son is taking zonegran 250 mg. a day and this is the only drug he > has never had any noticeable side effects from (so far). > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Same here. No side effects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Hi , I have this neat little sheet here that has most of the seizure meds on it, Zonegran is used for Complex Partial seizures and for secondary generalization. It says nothing about absence seizures. I know they are thinking now that absence seizures are just a version of CPS but that has not really been proven. The meds listed here particularly for absence seizures are: Depacon, Lamictal has ABS and a ? mark beside it, Neurontin, Felbatol, Celontin, Zarontin, Depakote. Hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 , I had the same problem with Trileptal. My daughter, , was on a very low dose and when we tried to increase the dose, she began having more seizures and they were strange so we had to get her off of it and we are now on Zonegran and she was doing pretty good on the low dose of 25mg 2X a day but continued to have partials so the neuro raised it to 50mg at night and she started hallucinating and making up stories and was like a zombie always tired, her speech was like a drunk, fast and slurred so we reduced it and a week later she had a tonic-clonic and a few partials and we thought that it was due to the withdrawl of the med and two weeks later she had another t/c and some partials so since we cannot raise the dose and we don't want to keep having the seizures, when we go see the neuro in June, we will switch to Lamictal and we'll see how it goes from here. seems to be very sensitive to AEDs and reacts every time we try to increase it, I'm hoping and praying that Lamictal will be better for her, but only God knows. I just wanted to let you know that we also had problems when raising the meds. Maybe Zonegran is not right for your son either if he continues to have seizures and has more when you try to increase the dose. Grace On Thu, 20 May 2004 07:34:30 -0400 " Mike Mchugh " <mcpitza@...> writes: > My son has been trying Zonegran and it had for sometime been helpful > in that his seizure frequency was reduced and his behavior was not > affected, in fact it was somewhat improved. The Neuro was urging me > to increase the doseage, assuming we would see all seizure activity > stop but as I increased the doseage the seizures got worse and > started lasting longer - these are absences type seizures. > > Any thoughts ? I have reduced the meds again and they have reduced > in number but still continue. Did we increase too quickly. Is it > just the wrong med ? What do you all think ? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Thanks for the feedback Tracey and Grace. My son has tried Zarotin - over the top hyperactive, Then tried depakote - out of control anger, hair loss, weight gain, next we tried lamictal - hallucinations, anger and rage, Zonegran was basically a last ditch effort taht seemed to be working at first. Oh well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 , We have had success ( still has break through) but is able to function in school and socially. Go very slow on the lamictal, increase by small amounts, if you see any rash or complaints of itching cut back go slower and we were able to make it work. --- " Grace H. " <foxyfox8@...> wrote: > , > > I had the same problem with Trileptal. My daughter, > , was on a > very low dose and when we tried to increase the > dose, she began having > more seizures and they were strange so we had to get > her off of it and we > are now on Zonegran and she was doing pretty good on > the low dose of 25mg > 2X a day but continued to have partials so the neuro > raised it to 50mg at > night and she started hallucinating and making up > stories and was like a > zombie always tired, her speech was like a drunk, > fast and slurred so we > reduced it and a week later she had a tonic-clonic > and a few partials and > we thought that it was due to the withdrawl of the > med and two weeks > later she had another t/c and some partials so since > we cannot raise the > dose and we don't want to keep having the seizures, > when we go see the > neuro in June, we will switch to Lamictal and we'll > see how it goes from > here. seems to be very sensitive to AEDs > and reacts every time > we try to increase it, I'm hoping and praying that > Lamictal will be > better for her, but only God knows. I just wanted > to let you know that > we also had problems when raising the meds. Maybe > Zonegran is not right > for your son either if he continues to have seizures > and has more when > you try to increase the dose. > > Grace > > > On Thu, 20 May 2004 07:34:30 -0400 " Mike Mchugh " > <mcpitza@...> writes: > > My son has been trying Zonegran and it had for > sometime been helpful > > in that his seizure frequency was reduced and his > behavior was not > > affected, in fact it was somewhat improved. The > Neuro was urging me > > to increase the doseage, assuming we would see all > seizure activity > > stop but as I increased the doseage the seizures > got worse and > > started lasting longer - these are absences type > seizures. > > > > Any thoughts ? I have reduced the meds again and > they have reduced > > in number but still continue. Did we increase too > quickly. Is it > > just the wrong med ? What do you all think ? > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 , You stated that when your son was on Lamictal that he had halluciations., anger and rage, this is the first time I've heard of these side effects with Lamictal. Was your son on any other meds at the same time or was it just Lamictal? I'm asking this because we will be switching to Lamictal at the next neuro's visit. is currently on Zonegran and it's not working for her and she did have hallucinations, poor concentration, trouble speeking, tired most of the time and looks like she's always in a daze. I'm hoping that Lamictal will work better for her. What are you going to try next? What type of seizures did you say your son has? Take care! Grace On Fri, 21 May 2004 01:32:49 -0000 " M. " <mcpitza@...> writes: > Thanks for the feedback Tracey and Grace. My son has tried Zarotin - > > over the top hyperactive, Then tried depakote - out of control > anger, > hair loss, weight gain, next we tried lamictal - hallucinations, > anger and rage, Zonegran was basically a last ditch effort taht > seemed to be working at first. Oh well. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Grace, Don't let my sons experience sacre you off of Lamictal. I have not heard of many other kids having such bad reactions. It's odd because he is one of the few kids I know of that did not have a bad reaction to zonegran and yet he had a worse reaction to lamictal than he had to depakote, and we proceeded very slowly with his dose. I don't understand what is going on with this kids body. It is obviously unusual though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2004 Report Share Posted July 6, 2004 What are these meds? What do they do? --- The Pukylos <puky@...> wrote: > Does anyone have any experience with Zonegran? I > understand it effects cognitive function and > appetite. > Had a bad experience with Topamax and don't want a > repeat. > > Lynn > > [Non-text portions of this message have been > removed] > > > ===== Barb Katsaros barbkatsaros@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2004 Report Share Posted July 6, 2004 Its a relatively new seizure med. My dd has had reactions to many meds in recent years such as ativan, buspar and keppra. They jokingly say Zonegran makes you stupid and skinny. Lynn Re: Zonegran What are these meds? What do they do? --- The Pukylos <puky@...> wrote: > Does anyone have any experience with Zonegran? I > understand it effects cognitive function and > appetite. > Had a bad experience with Topamax and don't want a > repeat. > > Lynn > > [Non-text portions of this message have been > removed] > > > ===== Barb Katsaros barbkatsaros@... Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Hello! Topamax is used to treat epileptic seizures. It can also be used as an appetite suppresant because one of the side effects is a decrease in appetite. I'm not familiar with zonegran, sorry. Maybe it is the same type of anti-seizure medication. Hope this helps. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 Does anyone take Zonegran? Does it have any side effects? My husband with CMT is taking 400mg a day and that seems high. He is taking it to hopefully help with pain management, but he still has to take 5 Lortab 10 a day so it is not stopping it that much. Has anyone found anything better? He has taken Neurontin, Cymbalta, and now Zonegran (Please forgive my spelling) Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Hi , What is Zonegran? I do take Oxycontin, Cymbalta, and was on Wellbutrin until the Cymbalta...I also took Lexapro for 3 weeks and had a really bad reaction to it, and I never have had a reaction to anything. It made me feel scared to be in front of people in general and I had a, I hate to say it, a breakdown while on it, and stopped that day. Never again. Quote Link to comment Share on other sites More sharing options...
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