Re: Question/suggestions please

[Guest guest]

Hi ,

Braydon sees Dr. at Primary Children's

Medical Center in SLC. Last year, he did scoliosis

surgery on a 21yr old, so yes, he sees patients who

are already 18. I can give you his contact

information, if you are interested. There are a

handful of other orthos, but Dr. has the most

extensive experience, IMHO.

Best wishes to your niece. It's very hard to help

being long distance. My 20yr old daughter has

scoliosis. Dr. has helped her throughout her

teenage years. She has not needed surgery, but we are

always watching for any progression.

Keep us posted.

Carmell

mom to Kara, idiopathic scoliosis, Blake 15, GERD and Braydon 11, VACTERL, GERD,

DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic

insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96),

missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion,

clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single

umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc.

http://carmellb-ivil.tripod.com/myfamily/

__________________________________________________

[Guest guest]

I'd at least try Shriners. If they turn you down, I would bet they could give

you a recommendation for someone else.

Noelle (12-2-01)

Ian (8-15-04)

Question/suggestions please

Hi All,

I thought I come to you with your wealth of knowledge and experience.

I have a just barely 18 yo niece who has scoliosis, I believe that it is

juvenile because it appeared at about 10 years old or so. Her family has

lived abroad (in Kazhakstan/ Armenia) since then and all that they've done

for it bracing off and on. I don't know her numbers or angles but they are

opposed to surgery at this point and feel like every DR. is pushing them

towards surgery. She has occasional discomfort and pain sometimes. My

question is, are there other options for someone her age? Do you know of a

Dr. that is open to other ideas, we are in Utah? Because she is 18 now, I

don't think Shriner's would consider her case. Any thoughts to share would

be appreciated.

Thanks

[Guest guest]

Carmell,

Thanks for the info, I would like his contact info if you have a minute.

She's here in the states now so hopefully we can get her some help.

_____

From: infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of Carmell Burns

Sent: Friday, August 18, 2006 10:27 AM

infantile scoliosis treatment

Subject: Re: Question/suggestions please

Hi ,

Braydon sees Dr. at Primary Children's

Medical Center in SLC. Last year, he did scoliosis

surgery on a 21yr old, so yes, he sees patients who

are already 18. I can give you his contact

information, if you are interested. There are a

handful of other orthos, but Dr. has the most

extensive experience, IMHO.

Best wishes to your niece. It's very hard to help

being long distance. My 20yr old daughter has

scoliosis. Dr. has helped her throughout her

teenage years. She has not needed surgery, but we are

always watching for any progression.

Keep us posted.

Carmell

mom to Kara, idiopathic scoliosis, Blake 15, GERD and Braydon 11, VACTERL,

GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic

insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96),

missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97),

neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial

torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes

cavus, single umblilical artery, tonsil-adnoidectomy and ear tubes (3/98),

etc. http://carmellb- <http://carmellb-ivil.tripod.com/myfamily/>

ivil.tripod.com/myfamily/

__________________________________________________