Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 , same here. Have to use all my willpower to shut myself up when faced with such stupidity and arrogance. Have recently resorte to guerilla tacticts, sending a few scientific articles (like the one Mandi just posted) to our paediatrician. Anonimously. Childish of me, and probably not effective, but sure made me feel better LOL Natasa > > How bizarre! We have just come back from our appointment with Gillian Baird > > in London and it was a complete waste of time. She was pro-ABA or > > pro-education, as she put it, which is a damn sight better than our > > paediatrician. As soon as we started talking diet and bio-medical she said > > there was no proof and no proper studies for any of that, she poo pooed DAN! > > and Shattock. She said it was neurological and genetic - end of story! > > When we saw she had made up her mind not to help us we didn't argue too > > vociferously (but we did argue) > > She talked a lot about pruning and head size and measured all our big heads > > but of course, offered no help. > > She said it is DEFINITELY NOT a medical or gut condition and the fact that > > loads of autistic kids have gut conditions - coincidence of course! > > Sara > > > > Dr Gillian Baird - Guildford meeting > > last night > > > > Since we've been discussing the paediatrican Dr Gillian Baird on this > > list recently, I thought some of you might like to hear what she was > > talking about at a Surrey NAS meeting last night. WARNING - my > > information is SECOND HAND as I wasn't able to get to the meeting > > myself, but have heavily quizzed two mums at gym just now who did > > attend. If anyone else on this list was actually there please chip > > in!! > > > > Dr Gillian Baird came over to my friends as an open minded and caring > > paediatrican who seemed to really know what she was talking about. > > > > According to my sources, Dr Baird said in the meeting that autism is > > definately a real medical condition, a neurological condition. There > > are marked differences in the brains of autistic vs non-autistic > > children. She talked about pruning of the brain cells being faulty. > > I'm told she presented lots of research studies and graphs to back up > > her arguments (my sources couldn't follow these). It is good though > > to hear someone as well respected as her in the mainstream say that > > autism is a medical condition out loud at an NAS meeting. I hope > > they were taking notes! > > > > Dr Baird also said very clearly that autism is definately rising very > > rapidly over recent years and that the rise can NOT be put down to > > better diagnosis alone (she is one of the UK's formost diagnostic > > experts herself so coming from her this is very good). The big rise > > in autism is in the sub-set of regressive, late onset autism. > > > > Why the rise in autism? Something triggering it at around 1.5- > > 2years. But this doesn't have to be an external trigger (??) Could > > be because of the genetic suseptability. (I wish I'd been there to > > quiz her more fully about genentic epidemics.... ) Could be > > environmental trigger too, but from what I was told this was not the > > favoured explaination. No mention of mercury, toxic load, detox > > problems, methylation issues etc etc etc. > > > > So what about medical treatment? Not much of substance here. She > > highlighted the lack of research studies and the difficulties getting > > big enough samples to get statistically signifcant results. Dr Baird > > said they'd tried to get a controlled study off the ground to look at > > the gfcf diet but couldn't get funding (!). Until there is a proper > > study the jury remains out. My friend thinks she said secretin > > doesn't work. Gut issues were focused around constipation. > > > > Please do add or correct this if you were there. Wish I had been - a > > missed opportunity. > > > > Sharon > > > > > > > > > > > > > > > > > > > > > > > > DISCLAIMER > > No information contained in this post is to be construed as medical advice. > > If you need medical advice, please seek it from a suitably qualified > > practitioner. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 well done Natasha - that made me laugh. My last app with paed went so badly that I said there was no point in seeing her again because she didn't want to treat Charlie and she wouldn't listen to a thing I said so I think she has discharged me! Peta - -- In Autism Treatment , " natasa778 " <neno@...> wrote: > > , same here. Have to use all my willpower to shut myself up when > faced with such stupidity and arrogance. Have recently resorte to > guerilla tacticts, sending a few scientific articles (like the one Mandi > just posted) to our paediatrician. Anonimously. Childish of me, and > probably not effective, but sure made me feel better LOL > > Natasa > > > > > How bizarre! We have just come back from our appointment with > Gillian Baird > > > in London and it was a complete waste of time. She was pro-ABA or > > > pro-education, as she put it, which is a damn sight better than our > > > paediatrician. As soon as we started talking diet and bio- medical > she said > > > there was no proof and no proper studies for any of that, she poo > pooed DAN! > > > and Shattock. She said it was neurological and genetic - end of > story! > > > When we saw she had made up her mind not to help us we didn't argue > too > > > vociferously (but we did argue) > > > She talked a lot about pruning and head size and measured all our > big heads > > > but of course, offered no help. > > > She said it is DEFINITELY NOT a medical or gut condition and the > fact that > > > loads of autistic kids have gut conditions - coincidence of course! > > > Sara > > > > > > Dr Gillian Baird - Guildford > meeting > > > last night > > > > > > Since we've been discussing the paediatrican Dr Gillian Baird on > this > > > list recently, I thought some of you might like to hear what she was > > > talking about at a Surrey NAS meeting last night. WARNING - my > > > information is SECOND HAND as I wasn't able to get to the meeting > > > myself, but have heavily quizzed two mums at gym just now who did > > > attend. If anyone else on this list was actually there please chip > > > in!! > > > > > > Dr Gillian Baird came over to my friends as an open minded and > caring > > > paediatrican who seemed to really know what she was talking about. > > > > > > According to my sources, Dr Baird said in the meeting that autism is > > > definately a real medical condition, a neurological condition. > There > > > are marked differences in the brains of autistic vs non- autistic > > > children. She talked about pruning of the brain cells being faulty. > > > I'm told she presented lots of research studies and graphs to back > up > > > her arguments (my sources couldn't follow these). It is good though > > > to hear someone as well respected as her in the mainstream say that > > > autism is a medical condition out loud at an NAS meeting. I hope > > > they were taking notes! > > > > > > Dr Baird also said very clearly that autism is definately rising > very > > > rapidly over recent years and that the rise can NOT be put down to > > > better diagnosis alone (she is one of the UK's formost diagnostic > > > experts herself so coming from her this is very good). The big rise > > > in autism is in the sub-set of regressive, late onset autism. > > > > > > Why the rise in autism? Something triggering it at around 1.5- > > > 2years. But this doesn't have to be an external trigger (??) Could > > > be because of the genetic suseptability. (I wish I'd been there to > > > quiz her more fully about genentic epidemics.... ) Could be > > > environmental trigger too, but from what I was told this was not the > > > favoured explaination. No mention of mercury, toxic load, detox > > > problems, methylation issues etc etc etc. > > > > > > So what about medical treatment? Not much of substance here. She > > > highlighted the lack of research studies and the difficulties > getting > > > big enough samples to get statistically signifcant results. Dr > Baird > > > said they'd tried to get a controlled study off the ground to look > at > > > the gfcf diet but couldn't get funding (!). Until there is a proper > > > study the jury remains out. My friend thinks she said secretin > > > doesn't work. Gut issues were focused around constipation. > > > > > > Please do add or correct this if you were there. Wish I had been - > a > > > missed opportunity. > > > > > > Sharon > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > DISCLAIMER > > > No information contained in this post is to be construed as medical > advice. > > > If you need medical advice, please seek it from a suitably qualified > > > practitioner. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Pity, you should have stayed on the paed list. You need them to sign the DLA form. THATS ALL my paed is good for and he knows it. He signed my sons DLA form, send it off to DLA and within 3 weeks renewed claim. My Paed does not want to know about chelation/biomed. He wants to keep his well paid job and toe the line with PCT. Bridget. > > From: " peta3366 " <peta3366@...> > Date: 2006/05/25 Thu PM 03:44:33 BST > Autism Treatment > Subject: Re: Guerilla tacticts, was: Dr Gillian Baird - Guildford meeting last night > > well done Natasha - that made me laugh. My last app with paed went so badly that I said there was no point in seeing her again because she didn't want to treat Charlie and she wouldn't listen to a thing I said so I think she has discharged me! Peta - -- In Autism Treatment , " natasa778 " <neno@...> wrote: > > , same here. Have to use all my willpower to shut myself up when > faced with such stupidity and arrogance. Have recently resorte to > guerilla tacticts, sending a few scientific articles (like the one Mandi > just posted) to our paediatrician. Anonimously. Childish of me, and > probably not effective, but sure made me feel better LOL > > Natasa > > > > > How bizarre! We have just come back from our appointment with > Gillian Baird > > > in London and it was a complete waste of time. She was pro-ABA or > > > pro-education, as she put it, which is a damn sight better than our > > > paediatrician. As soon as we started talking diet and bio- medical > she said > > > there was no proof and no proper studies for any of that, she poo > pooed DAN! > > > and Shattock. She said it was neurological and genetic - end of > story! > > > When we saw she had made up her mind not to help us we didn't argue > too > > > vociferously (but we did argue) > > > She talked a lot about pruning and head size and measured all our > big heads > > > but of course, offered no help. > > > She said it is DEFINITELY NOT a medical or gut condition and the > fact that > > > loads of autistic kids have gut conditions - coincidence of course! > > > Sara > > > > > > Dr Gillian Baird - Guildford > meeting > > > last night > > > > > > Since we've been discussing the paediatrican Dr Gillian Baird on > this > > > list recently, I thought some of you might like to hear what she was > > > talking about at a Surrey NAS meeting last night. WARNING - my > > > information is SECOND HAND as I wasn't able to get to the meeting > > > myself, but have heavily quizzed two mums at gym just now who did > > > attend. If anyone else on this list was actually there please chip > > > in!! > > > > > > Dr Gillian Baird came over to my friends as an open minded and > caring > > > paediatrican who seemed to really know what she was talking about. > > > > > > According to my sources, Dr Baird said in the meeting that autism is > > > definately a real medical condition, a neurological condition. > There > > > are marked differences in the brains of autistic vs non- autistic > > > children. She talked about pruning of the brain cells being faulty. > > > I'm told she presented lots of research studies and graphs to back > up > > > her arguments (my sources couldn't follow these). It is good though > > > to hear someone as well respected as her in the mainstream say that > > > autism is a medical condition out loud at an NAS meeting. I hope > > > they were taking notes! > > > > > > Dr Baird also said very clearly that autism is definately rising > very > > > rapidly over recent years and that the rise can NOT be put down to > > > better diagnosis alone (she is one of the UK's formost diagnostic > > > experts herself so coming from her this is very good). The big rise > > > in autism is in the sub-set of regressive, late onset autism. > > > > > > Why the rise in autism? Something triggering it at around 1.5- > > > 2years. But this doesn't have to be an external trigger (??) Could > > > be because of the genetic suseptability. (I wish I'd been there to > > > quiz her more fully about genentic epidemics.... ) Could be > > > environmental trigger too, but from what I was told this was not the > > > favoured explaination. No mention of mercury, toxic load, detox > > > problems, methylation issues etc etc etc. > > > > > > So what about medical treatment? Not much of substance here. She > > > highlighted the lack of research studies and the difficulties > getting > > > big enough samples to get statistically signifcant results. Dr > Baird > > > said they'd tried to get a controlled study off the ground to look > at > > > the gfcf diet but couldn't get funding (!). Until there is a proper > > > study the jury remains out. My friend thinks she said secretin > > > doesn't work. Gut issues were focused around constipation. > > > > > > Please do add or correct this if you were there. Wish I had been - > a > > > missed opportunity. > > > > > > Sharon > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > DISCLAIMER > > > No information contained in this post is to be construed as medical > advice. > > > If you need medical advice, please seek it from a suitably qualified > > > practitioner. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Pity, you should have stayed on the paed list. You need them to sign the DLA form. THATS ALL my paed is good for and he knows it. He signed my sons DLA form, send it off to DLA and within 3 weeks renewed claim. My Paed does not want to know about chelation/biomed. He wants to keep his well paid job and toe the line with PCT. Bridget. > > From: " peta3366 " <peta3366@...> > Date: 2006/05/25 Thu PM 03:44:33 BST > Autism Treatment > Subject: Re: Guerilla tacticts, was: Dr Gillian Baird - Guildford meeting last night > > well done Natasha - that made me laugh. My last app with paed went so badly that I said there was no point in seeing her again because she didn't want to treat Charlie and she wouldn't listen to a thing I said so I think she has discharged me! Peta - -- In Autism Treatment , " natasa778 " <neno@...> wrote: > > , same here. Have to use all my willpower to shut myself up when > faced with such stupidity and arrogance. Have recently resorte to > guerilla tacticts, sending a few scientific articles (like the one Mandi > just posted) to our paediatrician. Anonimously. Childish of me, and > probably not effective, but sure made me feel better LOL > > Natasa > > > > > How bizarre! We have just come back from our appointment with > Gillian Baird > > > in London and it was a complete waste of time. She was pro-ABA or > > > pro-education, as she put it, which is a damn sight better than our > > > paediatrician. As soon as we started talking diet and bio- medical > she said > > > there was no proof and no proper studies for any of that, she poo > pooed DAN! > > > and Shattock. She said it was neurological and genetic - end of > story! > > > When we saw she had made up her mind not to help us we didn't argue > too > > > vociferously (but we did argue) > > > She talked a lot about pruning and head size and measured all our > big heads > > > but of course, offered no help. > > > She said it is DEFINITELY NOT a medical or gut condition and the > fact that > > > loads of autistic kids have gut conditions - coincidence of course! > > > Sara > > > > > > Dr Gillian Baird - Guildford > meeting > > > last night > > > > > > Since we've been discussing the paediatrican Dr Gillian Baird on > this > > > list recently, I thought some of you might like to hear what she was > > > talking about at a Surrey NAS meeting last night. WARNING - my > > > information is SECOND HAND as I wasn't able to get to the meeting > > > myself, but have heavily quizzed two mums at gym just now who did > > > attend. If anyone else on this list was actually there please chip > > > in!! > > > > > > Dr Gillian Baird came over to my friends as an open minded and > caring > > > paediatrican who seemed to really know what she was talking about. > > > > > > According to my sources, Dr Baird said in the meeting that autism is > > > definately a real medical condition, a neurological condition. > There > > > are marked differences in the brains of autistic vs non- autistic > > > children. She talked about pruning of the brain cells being faulty. > > > I'm told she presented lots of research studies and graphs to back > up > > > her arguments (my sources couldn't follow these). It is good though > > > to hear someone as well respected as her in the mainstream say that > > > autism is a medical condition out loud at an NAS meeting. I hope > > > they were taking notes! > > > > > > Dr Baird also said very clearly that autism is definately rising > very > > > rapidly over recent years and that the rise can NOT be put down to > > > better diagnosis alone (she is one of the UK's formost diagnostic > > > experts herself so coming from her this is very good). The big rise > > > in autism is in the sub-set of regressive, late onset autism. > > > > > > Why the rise in autism? Something triggering it at around 1.5- > > > 2years. But this doesn't have to be an external trigger (??) Could > > > be because of the genetic suseptability. (I wish I'd been there to > > > quiz her more fully about genentic epidemics.... ) Could be > > > environmental trigger too, but from what I was told this was not the > > > favoured explaination. No mention of mercury, toxic load, detox > > > problems, methylation issues etc etc etc. > > > > > > So what about medical treatment? Not much of substance here. She > > > highlighted the lack of research studies and the difficulties > getting > > > big enough samples to get statistically signifcant results. Dr > Baird > > > said they'd tried to get a controlled study off the ground to look > at > > > the gfcf diet but couldn't get funding (!). Until there is a proper > > > study the jury remains out. My friend thinks she said secretin > > > doesn't work. Gut issues were focused around constipation. > > > > > > Please do add or correct this if you were there. Wish I had been - > a > > > missed opportunity. > > > > > > Sharon > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > DISCLAIMER > > > No information contained in this post is to be construed as medical > advice. > > > If you need medical advice, please seek it from a suitably qualified > > > practitioner. > > > > > > Quote Link to comment Share on other sites More sharing options...
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