Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 In a message dated 06/06/2006 17:56:04 GMT Daylight Time, mark.grabiec@... writes: We did one IV EDTA in the US. I cant say we've seen improvements from that per se but he did pull a massive amount of lead - right off the end of the chart. Since then we've done EDTA suppositories which are not as effective but they are the next most effective form of EDTA, apparently. Ditto for us ... I thought seemed pretty good after her IV-EDTA but was probably just happy to be home, jet lagged etc so not playing up so much!! We ahve DMSA suppositories to try but havent started yet we are also using TD-EDTA the Norwegian stuff every second day just a tiny bit. We will start with the suppositories after our OAT and CDSA come back in around 3-4 weeks eg our summer hols. Like Steph said we pulled loadsa lead and if I could do it here easily I would probably. Caroline, HTH xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 In a message dated 06/06/2006 17:56:04 GMT Daylight Time, mark.grabiec@... writes: We did one IV EDTA in the US. I cant say we've seen improvements from that per se but he did pull a massive amount of lead - right off the end of the chart. Since then we've done EDTA suppositories which are not as effective but they are the next most effective form of EDTA, apparently. Ditto for us ... I thought seemed pretty good after her IV-EDTA but was probably just happy to be home, jet lagged etc so not playing up so much!! We ahve DMSA suppositories to try but havent started yet we are also using TD-EDTA the Norwegian stuff every second day just a tiny bit. We will start with the suppositories after our OAT and CDSA come back in around 3-4 weeks eg our summer hols. Like Steph said we pulled loadsa lead and if I could do it here easily I would probably. Caroline, HTH xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 Hi We did one IV EDTA in the US. I cant say we've seen improvements from that per se but he did pull a massive amount of lead - right off the end of the chart. Since then we've done EDTA suppositories which are not as effective but they are the next most effective form of EDTA, apparently. Steph x > > Has anybody undergone or is undergoing this treatment on a regular basis > either here or in the U.S? If so, could you let me know where and what > is involved and whether you have seen any benefits? > With many thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 Hi We did one IV EDTA in the US. I cant say we've seen improvements from that per se but he did pull a massive amount of lead - right off the end of the chart. Since then we've done EDTA suppositories which are not as effective but they are the next most effective form of EDTA, apparently. Steph x > > Has anybody undergone or is undergoing this treatment on a regular basis > either here or in the U.S? If so, could you let me know where and what > is involved and whether you have seen any benefits? > With many thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 Hi We recently went to the States for 2 months and did 23 lots of IV's - more ETDA than DMPS because Charlie has a lot of lead. We did 3 a week for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every 2 weeks to make sure body coping ok. It made him stimmy but he coped fine and has improved alot. Because of his lead problem we didn't get as far as we hoped ie mercury hardly showed at all for 1st 5 weeks or so then it started to come out. Benefits: language and cognition way up - prepositions and long sentences. Able to answer some questions ( attention still a problem). He can say things we have done ie " we have been to the woods Mummy. " Charlie was non verbal less than two years ago ( he is nearly 5) Interacts loads more with brother and at school ( mainstream with one to one) Generally much more aware He can now dress himself He can now swallow big pills(couldn't do this before) He can now ride his bike ( with stabalisers) he couldn't get pedalling before we went away. We still have a way to go because we know there is alot of mercury in him ( e fillings in 1st trimester; rhogam and all vaccines) We went to bradstreets clinic which is very good - they investigated IV's for 2 years before they started them and it is now standard treatment. They also add glutathione and vit c in IV's and don't give high doses. We have just started DMPS suppositories which dr says are second best - IV's 100% effective; supps 75%. We have been very pleased with results - he has had so many insults - nice lead pipes where we live and I ate tuna all through pregnancy - I couldn't have gone more wrong if I tried! We feel this has speeded things upa bit - the sooner we get rid of the metals the sooner he can get better. But I know IV's are controversial and if they are not done or monitored properly it might be a different story. HTH Peta- -- In Autism Treatment , Cath <catherine.devereux@...> wrote: > > Has anybody undergone or is undergoing this treatment on a regular basis > either here or in the U.S? If so, could you let me know where and what > is involved and whether you have seen any benefits? > With many thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 Hi We recently went to the States for 2 months and did 23 lots of IV's - more ETDA than DMPS because Charlie has a lot of lead. We did 3 a week for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every 2 weeks to make sure body coping ok. It made him stimmy but he coped fine and has improved alot. Because of his lead problem we didn't get as far as we hoped ie mercury hardly showed at all for 1st 5 weeks or so then it started to come out. Benefits: language and cognition way up - prepositions and long sentences. Able to answer some questions ( attention still a problem). He can say things we have done ie " we have been to the woods Mummy. " Charlie was non verbal less than two years ago ( he is nearly 5) Interacts loads more with brother and at school ( mainstream with one to one) Generally much more aware He can now dress himself He can now swallow big pills(couldn't do this before) He can now ride his bike ( with stabalisers) he couldn't get pedalling before we went away. We still have a way to go because we know there is alot of mercury in him ( e fillings in 1st trimester; rhogam and all vaccines) We went to bradstreets clinic which is very good - they investigated IV's for 2 years before they started them and it is now standard treatment. They also add glutathione and vit c in IV's and don't give high doses. We have just started DMPS suppositories which dr says are second best - IV's 100% effective; supps 75%. We have been very pleased with results - he has had so many insults - nice lead pipes where we live and I ate tuna all through pregnancy - I couldn't have gone more wrong if I tried! We feel this has speeded things upa bit - the sooner we get rid of the metals the sooner he can get better. But I know IV's are controversial and if they are not done or monitored properly it might be a different story. HTH Peta- -- In Autism Treatment , Cath <catherine.devereux@...> wrote: > > Has anybody undergone or is undergoing this treatment on a regular basis > either here or in the U.S? If so, could you let me know where and what > is involved and whether you have seen any benefits? > With many thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 Hi Peta, I am interested in seeing Bradstreet next time I am in Florida. Do you know if he has a long waiting list ?Jane Re: IV EDTA and IV DMPS Hi We recently went to the States for 2 months and did 23 lots of IV's - more ETDA than DMPS because Charlie has a lot of lead. We did 3 a week for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every 2 weeks to make sure body coping ok. It made him stimmy but he coped fine and has improved alot. Because of his lead problem we didn't get as far as we hoped ie mercury hardly showed at all for 1st 5 weeks or so then it started to come out.Benefits:language and cognition way up - prepositions and long sentences. Able to answer some questions ( attention still a problem). He can say things we have done ie " we have been to the woods Mummy." Charlie was non verbal less than two years ago ( he is nearly 5)Interacts loads more with brother and at school ( mainstream with one to one)Generally much more awareHe can now dress himselfHe can now swallow big pills(couldn't do this before)He can now ride his bike ( with stabalisers) he couldn't get pedalling before we went away.We still have a way to go because we know there is alot of mercury in him ( e fillings in 1st trimester; rhogam and all vaccines)We went to bradstreets clinic which is very good - they investigated IV's for 2 years before they started them and it is now standard treatment. They also add glutathione and vit c in IV's and don't give high doses.We have just started DMPS suppositories which dr says are second best -IV's 100% effective; supps 75%.We have been very pleased with results - he has had so many insults - nice lead pipes where we live and I ate tuna all through pregnancy - I couldn't have gone more wrong if I tried! We feel this has speeded things upa bit - the sooner we get rid of the metals the sooner he can get better. But I know IV's are controversial and if they are not done or monitored properly it might be a different story.HTHPeta>> Has anybody undergone or is undergoing this treatment on a regular basis > either here or in the U.S? If so, could you let me know where and what > is involved and whether you have seen any benefits?> With many thanks> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 We keep trying to see him in July when we're there for Growing Minds. Dr Usman asked him and he said " Ok " and then his office said " no " . THey are very heavily booked. > > > > Has anybody undergone or is undergoing this treatment on a regular > basis > > either here or in the U.S? If so, could you let me know where and > what > > is involved and whether you have seen any benefits? > > With many thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 peta3366 wrote: > Hi > We recently went to the States for 2 months and did 23 lots of IV's - > more ETDA than DMPS because Charlie has a lot of lead. We did 3 a week > for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every 2 > weeks to make sure body coping ok. It made him stimmy but he coped > fine and has improved alot. Because of his lead problem we didn't get > as far as we hoped ie mercury hardly showed at all for 1st 5 weeks or > so then it started to come out. > Benefits: > language and cognition way up - prepositions and long sentences. Able > to answer some questions ( attention still a problem). He can say > things we have done ie " we have been to the woods Mummy. " Charlie was > non verbal less than two years ago ( he is nearly 5) > Interacts loads more with brother and at school ( mainstream with one > to one) > Generally much more aware > He can now dress himself > He can now swallow big pills(couldn' t do this before) > He can now ride his bike ( with stabalisers) he couldn't get pedalling > before we went away. > We still have a way to go because we know there is alot of mercury in > him ( e fillings in 1st trimester; rhogam and all vaccines) > We went to bradstreets clinic which is very good - they investigated > IV's for 2 years before they started them and it is now standard > treatment. They also add glutathione and vit c in IV's and don't give > high doses. > We have just started DMPS suppositories which dr says are second best - > IV's 100% effective; supps 75%. > We have been very pleased with results - he has had so many insults - > nice lead pipes where we live and I ate tuna all through pregnancy - I > couldn't have gone more wrong if I tried! We feel this has speeded > things upa bit - the sooner we get rid of the metals the sooner he can > get better. But I know IV's are controversial and if they are not done > or monitored properly it might be a different story. > HTH > Peta- > > -- In Autism-Biomedical- Europe@grou ps.com > <mailto:Autism Treatment%40>, Cath > <catherine.devereux @...> wrote: > > > > Has anybody undergone or is undergoing this treatment on a regular > basis > > either here or in the U.S? If so, could you let me know where and > what > > is involved and whether you have seen any benefits? > > With many thanks > > > > > > Hi Peta, Thanks very much for all the details, gives me a better idea of whats involved if we go. Jack is a total lead head and his doc is suggesting we may need to go down the route of spending some time intensively over there doing the IVs after we've tried to get his guts more under control! We are about to switch to DMSA supps and oral DMPS alternately. Who is your doc? Are they rxing the DMPS supps for his mercury? If so how are you addressing the lead? Also wondered how you are getting on with the supps? Are they easy to administer - any tips? I also heard they were second most effective method to IVs. Did you stay with relatives when you went to the U.S as I think we'd have to rent somewhere which will add to what it will all cost? One final Q - sorry there are so many! Could you give me an idea of how much the treatment cost? With many thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 CarolineTraa@... wrote: > In a message dated 06/06/2006 17:56:04 GMT Daylight Time, > mark.grabiec@... writes: > > We did one IV EDTA in the US. I cant say we've seen improvements from > that per se but he did pull a massive amount of lead - right off the > end of the chart. Since then we've done EDTA suppositories which are > not as effective but they are the next most effective form of EDTA, > apparently. > > Ditto for us ... I thought seemed pretty good after her > IV-EDTA but was probably just happy to be home, jet lagged etc so not > playing up so much!! We ahve DMSA suppositories to try but havent > started yet we are also using TD-EDTA the Norwegian stuff every second > day just a tiny bit. We will start with the suppositories after our > OAT and CDSA come back in around 3-4 weeks eg our summer hols. > Like Steph said we pulled loadsa lead and if I could do it here easily > I would probably. > Caroline, HTH > xxx > Hi Steph and Caroline, Thanks for the update. I do think we may have to think about IVs with Jack, have been slaving away with low dose 4 hourly TD DMSA and ALA and am not sure we're pulling much at all, apart from our hair out! Dr Mc seems to think suppositories are next best thing to IV at the mo so we've got to give the DMSA supps a go - Steph - any tips, must say not looking forward to that one! We're going to take a urine toxic metals following a DMSA supp (first urine after given supp in the night) and then also following weekend when do an oral DMPS round to see if we are getting a pull. Have either of you done urine toxic metals or fecal metals following using supps? Am awaiting the arrival of mine - will keep you posted! Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Hi Jane I believe he does-but things change so give them a call:001 321 953 0278-- I can't recommend them highly enough Peta- In Autism- Biomedical-Europe , " Jane Hogan " <jane_hogan@...> wrote: > > Hi Peta, > > I am interested in seeing Bradstreet next time I am in Florida. Do you know if he has a long waiting list ? > > Jane > > > Re: IV EDTA and IV DMPS > > > Hi > We recently went to the States for 2 months and did 23 lots of IV's - > more ETDA than DMPS because Charlie has a lot of lead. We did 3 a week > for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every 2 > weeks to make sure body coping ok. It made him stimmy but he coped > fine and has improved alot. Because of his lead problem we didn't get > as far as we hoped ie mercury hardly showed at all for 1st 5 weeks or > so then it started to come out. > Benefits: > language and cognition way up - prepositions and long sentences. Able > to answer some questions ( attention still a problem). He can say > things we have done ie " we have been to the woods Mummy. " Charlie was > non verbal less than two years ago ( he is nearly 5) > Interacts loads more with brother and at school ( mainstream with one > to one) > Generally much more aware > He can now dress himself > He can now swallow big pills(couldn't do this before) > He can now ride his bike ( with stabalisers) he couldn't get pedalling > before we went away. > We still have a way to go because we know there is alot of mercury in > him ( e fillings in 1st trimester; rhogam and all vaccines) > We went to bradstreets clinic which is very good - they investigated > IV's for 2 years before they started them and it is now standard > treatment. They also add glutathione and vit c in IV's and don't give > high doses. > We have just started DMPS suppositories which dr says are second best - > IV's 100% effective; supps 75%. > We have been very pleased with results - he has had so many insults - > nice lead pipes where we live and I ate tuna all through pregnancy - I > couldn't have gone more wrong if I tried! We feel this has speeded > things upa bit - the sooner we get rid of the metals the sooner he can > get better. But I know IV's are controversial and if they are not done > or monitored properly it might be a different story. > HTH > Peta- > > -- In Autism Treatment , Cath > <catherine.devereux@> wrote: > > > > Has anybody undergone or is undergoing this treatment on a regular > basis > > either here or in the U.S? If so, could you let me know where and > what > > is involved and whether you have seen any benefits? > > With many thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Hi Jane I believe he does-but things change so give them a call:001 321 953 0278-- I can't recommend them highly enough Peta- In Autism- Biomedical-Europe , " Jane Hogan " <jane_hogan@...> wrote: > > Hi Peta, > > I am interested in seeing Bradstreet next time I am in Florida. Do you know if he has a long waiting list ? > > Jane > > > Re: IV EDTA and IV DMPS > > > Hi > We recently went to the States for 2 months and did 23 lots of IV's - > more ETDA than DMPS because Charlie has a lot of lead. We did 3 a week > for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every 2 > weeks to make sure body coping ok. It made him stimmy but he coped > fine and has improved alot. Because of his lead problem we didn't get > as far as we hoped ie mercury hardly showed at all for 1st 5 weeks or > so then it started to come out. > Benefits: > language and cognition way up - prepositions and long sentences. Able > to answer some questions ( attention still a problem). He can say > things we have done ie " we have been to the woods Mummy. " Charlie was > non verbal less than two years ago ( he is nearly 5) > Interacts loads more with brother and at school ( mainstream with one > to one) > Generally much more aware > He can now dress himself > He can now swallow big pills(couldn't do this before) > He can now ride his bike ( with stabalisers) he couldn't get pedalling > before we went away. > We still have a way to go because we know there is alot of mercury in > him ( e fillings in 1st trimester; rhogam and all vaccines) > We went to bradstreets clinic which is very good - they investigated > IV's for 2 years before they started them and it is now standard > treatment. They also add glutathione and vit c in IV's and don't give > high doses. > We have just started DMPS suppositories which dr says are second best - > IV's 100% effective; supps 75%. > We have been very pleased with results - he has had so many insults - > nice lead pipes where we live and I ate tuna all through pregnancy - I > couldn't have gone more wrong if I tried! We feel this has speeded > things upa bit - the sooner we get rid of the metals the sooner he can > get better. But I know IV's are controversial and if they are not done > or monitored properly it might be a different story. > HTH > Peta- > > -- In Autism Treatment , Cath > <catherine.devereux@> wrote: > > > > Has anybody undergone or is undergoing this treatment on a regular > basis > > either here or in the U.S? If so, could you let me know where and > what > > is involved and whether you have seen any benefits? > > With many thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Hi We are with in Bradstreets clinic. We pulled toxic amounts of lead doing the EDTA IV's so I'm sure the DMPS supps will pull lead as well as mercury. Andy puts the supps in soon after Charlie falls asleep when he is in his deepest sleep and so far fine - he doesn't wake ( only done 2- next one tonight.)He pushes them in up to the base of his finger nail - which is why I don't do it with my talons! We rented a villa which we found for £400 per week and that was cheap for the area - it took alot fo searching to find it. IV's were $240 for DMPS and $177 for EDTA and the HBOT was £120 per dive ( we did 40 out there but have done 82 hours in total). Tests not expensive £55 for urine toxic metal and $20 odd for others. The total bill came to $9,800 for the clinic but renting the villa, car and buying organic food out there made it pretty expensive. I know it's alot of money but people buy new cars and get their houses extended and spend much more. We went to Olan Mills today and had some photos taken of the boys - Charlie did as he was told and repeated what the guy told him to say. He probably thought Charlie was a bit slow but the improvement in him from a year ago was amazing - I didn't even tell them he was autistic which was a first. So I am a fan of IV's but I too would be very careful with the dr - I know we were lucky to get into Bradstreets clinic before they closed their books. Good luck Peta > > > > > > Has anybody undergone or is undergoing this treatment on a regular > > basis > > > either here or in the U.S? If so, could you let me know where and > > what > > > is involved and whether you have seen any benefits? > > > With many thanks > > > > > > > > > > > > Hi Peta, > Thanks very much for all the details, gives me a better idea of whats > involved if we go. Jack is a total lead head and his doc is suggesting > we may need to go down the route of spending some time intensively over > there doing the IVs after we've tried to get his guts more under > control! We are about to switch to DMSA supps and oral DMPS alternately. > Who is your doc? Are they rxing the DMPS supps for his mercury? If so > how are you addressing the lead? Also wondered how you are getting on > with the supps? Are they easy to administer - any tips? I also heard > they were second most effective method to IVs. > Did you stay with relatives when you went to the U.S as I think we'd > have to rent somewhere which will add to what it will all cost? One > final Q - sorry there are so many! Could you give me an idea of how much > the treatment cost? > With many thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Hi We are with in Bradstreets clinic. We pulled toxic amounts of lead doing the EDTA IV's so I'm sure the DMPS supps will pull lead as well as mercury. Andy puts the supps in soon after Charlie falls asleep when he is in his deepest sleep and so far fine - he doesn't wake ( only done 2- next one tonight.)He pushes them in up to the base of his finger nail - which is why I don't do it with my talons! We rented a villa which we found for £400 per week and that was cheap for the area - it took alot fo searching to find it. IV's were $240 for DMPS and $177 for EDTA and the HBOT was £120 per dive ( we did 40 out there but have done 82 hours in total). Tests not expensive £55 for urine toxic metal and $20 odd for others. The total bill came to $9,800 for the clinic but renting the villa, car and buying organic food out there made it pretty expensive. I know it's alot of money but people buy new cars and get their houses extended and spend much more. We went to Olan Mills today and had some photos taken of the boys - Charlie did as he was told and repeated what the guy told him to say. He probably thought Charlie was a bit slow but the improvement in him from a year ago was amazing - I didn't even tell them he was autistic which was a first. So I am a fan of IV's but I too would be very careful with the dr - I know we were lucky to get into Bradstreets clinic before they closed their books. Good luck Peta > > > > > > Has anybody undergone or is undergoing this treatment on a regular > > basis > > > either here or in the U.S? If so, could you let me know where and > > what > > > is involved and whether you have seen any benefits? > > > With many thanks > > > > > > > > > > > > Hi Peta, > Thanks very much for all the details, gives me a better idea of whats > involved if we go. Jack is a total lead head and his doc is suggesting > we may need to go down the route of spending some time intensively over > there doing the IVs after we've tried to get his guts more under > control! We are about to switch to DMSA supps and oral DMPS alternately. > Who is your doc? Are they rxing the DMPS supps for his mercury? If so > how are you addressing the lead? Also wondered how you are getting on > with the supps? Are they easy to administer - any tips? I also heard > they were second most effective method to IVs. > Did you stay with relatives when you went to the U.S as I think we'd > have to rent somewhere which will add to what it will all cost? One > final Q - sorry there are so many! Could you give me an idea of how much > the treatment cost? > With many thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Hi Peta, This sounds to me like great improvements! Does dr. Bradstreet recommend a particular brand for the suppositories? > > > > Has anybody undergone or is undergoing this treatment on a regular > basis > > either here or in the U.S? If so, could you let me know where and > what > > is involved and whether you have seen any benefits? > > With many thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hi Supps come from coastal pharmacy, on box it says DMPS 125mg supp. Peta - -- In Autism Treatment , " mjalvareztorres " <alvarez3@...> wrote: > > Hi Peta, > > This sounds to me like great improvements! Does dr. Bradstreet > recommend a particular brand for the suppositories? > > > > > > > > > > Has anybody undergone or is undergoing this treatment on a regular > > basis > > > either here or in the U.S? If so, could you let me know where and > > what > > > is involved and whether you have seen any benefits? > > > With many thanks > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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