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In a message dated 06/06/2006 17:56:04 GMT Daylight Time, mark.grabiec@... writes:

We did one IV EDTA in the US. I cant say we've seen improvements from that per se but he did pull a massive amount of lead - right off the end of the chart. Since then we've done EDTA suppositories which are not as effective but they are the next most effective form of EDTA, apparently.

Ditto for us ... I thought seemed pretty good after her IV-EDTA but was probably just happy to be home, jet lagged etc so not playing up so much!! We ahve DMSA suppositories to try but havent started yet we are also using TD-EDTA the Norwegian stuff every second day just a tiny bit. We will start with the suppositories after our OAT and CDSA come back in around 3-4 weeks eg our summer hols.

Like Steph said we pulled loadsa lead and if I could do it here easily I would probably.

Caroline, HTH

xxx

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In a message dated 06/06/2006 17:56:04 GMT Daylight Time, mark.grabiec@... writes:

We did one IV EDTA in the US. I cant say we've seen improvements from that per se but he did pull a massive amount of lead - right off the end of the chart. Since then we've done EDTA suppositories which are not as effective but they are the next most effective form of EDTA, apparently.

Ditto for us ... I thought seemed pretty good after her IV-EDTA but was probably just happy to be home, jet lagged etc so not playing up so much!! We ahve DMSA suppositories to try but havent started yet we are also using TD-EDTA the Norwegian stuff every second day just a tiny bit. We will start with the suppositories after our OAT and CDSA come back in around 3-4 weeks eg our summer hols.

Like Steph said we pulled loadsa lead and if I could do it here easily I would probably.

Caroline, HTH

xxx

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Hi

We did one IV EDTA in the US. I cant say we've seen improvements from

that per se but he did pull a massive amount of lead - right off the

end of the chart. Since then we've done EDTA suppositories which are

not as effective but they are the next most effective form of EDTA,

apparently.

Steph x

>

> Has anybody undergone or is undergoing this treatment on a regular

basis

> either here or in the U.S? If so, could you let me know where and

what

> is involved and whether you have seen any benefits?

> With many thanks

>

>

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Hi

We did one IV EDTA in the US. I cant say we've seen improvements from

that per se but he did pull a massive amount of lead - right off the

end of the chart. Since then we've done EDTA suppositories which are

not as effective but they are the next most effective form of EDTA,

apparently.

Steph x

>

> Has anybody undergone or is undergoing this treatment on a regular

basis

> either here or in the U.S? If so, could you let me know where and

what

> is involved and whether you have seen any benefits?

> With many thanks

>

>

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Hi

We recently went to the States for 2 months and did 23 lots of IV's -

more ETDA than DMPS because Charlie has a lot of lead. We did 3 a week

for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every 2

weeks to make sure body coping ok. It made him stimmy but he coped

fine and has improved alot. Because of his lead problem we didn't get

as far as we hoped ie mercury hardly showed at all for 1st 5 weeks or

so then it started to come out.

Benefits:

language and cognition way up - prepositions and long sentences. Able

to answer some questions ( attention still a problem). He can say

things we have done ie " we have been to the woods Mummy. " Charlie was

non verbal less than two years ago ( he is nearly 5)

Interacts loads more with brother and at school ( mainstream with one

to one)

Generally much more aware

He can now dress himself

He can now swallow big pills(couldn't do this before)

He can now ride his bike ( with stabalisers) he couldn't get pedalling

before we went away.

We still have a way to go because we know there is alot of mercury in

him ( e fillings in 1st trimester; rhogam and all vaccines)

We went to bradstreets clinic which is very good - they investigated

IV's for 2 years before they started them and it is now standard

treatment. They also add glutathione and vit c in IV's and don't give

high doses.

We have just started DMPS suppositories which dr says are second best -

IV's 100% effective; supps 75%.

We have been very pleased with results - he has had so many insults -

nice lead pipes where we live and I ate tuna all through pregnancy - I

couldn't have gone more wrong if I tried! We feel this has speeded

things upa bit - the sooner we get rid of the metals the sooner he can

get better. But I know IV's are controversial and if they are not done

or monitored properly it might be a different story.

HTH

Peta-

-- In Autism Treatment , Cath

<catherine.devereux@...> wrote:

>

> Has anybody undergone or is undergoing this treatment on a regular

basis

> either here or in the U.S? If so, could you let me know where and

what

> is involved and whether you have seen any benefits?

> With many thanks

>

>

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Hi

We recently went to the States for 2 months and did 23 lots of IV's -

more ETDA than DMPS because Charlie has a lot of lead. We did 3 a week

for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every 2

weeks to make sure body coping ok. It made him stimmy but he coped

fine and has improved alot. Because of his lead problem we didn't get

as far as we hoped ie mercury hardly showed at all for 1st 5 weeks or

so then it started to come out.

Benefits:

language and cognition way up - prepositions and long sentences. Able

to answer some questions ( attention still a problem). He can say

things we have done ie " we have been to the woods Mummy. " Charlie was

non verbal less than two years ago ( he is nearly 5)

Interacts loads more with brother and at school ( mainstream with one

to one)

Generally much more aware

He can now dress himself

He can now swallow big pills(couldn't do this before)

He can now ride his bike ( with stabalisers) he couldn't get pedalling

before we went away.

We still have a way to go because we know there is alot of mercury in

him ( e fillings in 1st trimester; rhogam and all vaccines)

We went to bradstreets clinic which is very good - they investigated

IV's for 2 years before they started them and it is now standard

treatment. They also add glutathione and vit c in IV's and don't give

high doses.

We have just started DMPS suppositories which dr says are second best -

IV's 100% effective; supps 75%.

We have been very pleased with results - he has had so many insults -

nice lead pipes where we live and I ate tuna all through pregnancy - I

couldn't have gone more wrong if I tried! We feel this has speeded

things upa bit - the sooner we get rid of the metals the sooner he can

get better. But I know IV's are controversial and if they are not done

or monitored properly it might be a different story.

HTH

Peta-

-- In Autism Treatment , Cath

<catherine.devereux@...> wrote:

>

> Has anybody undergone or is undergoing this treatment on a regular

basis

> either here or in the U.S? If so, could you let me know where and

what

> is involved and whether you have seen any benefits?

> With many thanks

>

>

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Hi Peta,

I am interested in seeing Bradstreet next time I am in Florida. Do you know if he has a long waiting list ?Jane

Re: IV EDTA and IV DMPS

Hi We recently went to the States for 2 months and did 23 lots of IV's - more ETDA than DMPS because Charlie has a lot of lead. We did 3 a week for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every 2 weeks to make sure body coping ok. It made him stimmy but he coped fine and has improved alot. Because of his lead problem we didn't get as far as we hoped ie mercury hardly showed at all for 1st 5 weeks or so then it started to come out.Benefits:language and cognition way up - prepositions and long sentences. Able to answer some questions ( attention still a problem). He can say things we have done ie " we have been to the woods Mummy." Charlie was non verbal less than two years ago ( he is nearly 5)Interacts loads more with brother and at school ( mainstream with one to one)Generally much more awareHe can now dress himselfHe can now swallow big pills(couldn't do this before)He can now ride his bike ( with stabalisers) he couldn't get pedalling before we went away.We still have a way to go because we know there is alot of mercury in him ( e fillings in 1st trimester; rhogam and all vaccines)We went to bradstreets clinic which is very good - they investigated IV's for 2 years before they started them and it is now standard treatment. They also add glutathione and vit c in IV's and don't give high doses.We have just started DMPS suppositories which dr says are second best -IV's 100% effective; supps 75%.We have been very pleased with results - he has had so many insults - nice lead pipes where we live and I ate tuna all through pregnancy - I couldn't have gone more wrong if I tried! We feel this has speeded things upa bit - the sooner we get rid of the metals the sooner he can get better. But I know IV's are controversial and if they are not done or monitored properly it might be a different story.HTHPeta>> Has anybody undergone or is undergoing this treatment on a regular basis > either here or in the U.S? If so, could you let me know where and what > is involved and whether you have seen any benefits?> With many thanks> >

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We keep trying to see him in July when we're there for Growing

Minds. Dr Usman asked him and he said " Ok " and then his office

said " no " . THey are very heavily booked.

> >

> > Has anybody undergone or is undergoing this treatment on a

regular

> basis

> > either here or in the U.S? If so, could you let me know where

and

> what

> > is involved and whether you have seen any benefits?

> > With many thanks

> >

> >

>

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peta3366 wrote:

> Hi

> We recently went to the States for 2 months and did 23 lots of IV's -

> more ETDA than DMPS because Charlie has a lot of lead. We did 3 a week

> for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every 2

> weeks to make sure body coping ok. It made him stimmy but he coped

> fine and has improved alot. Because of his lead problem we didn't get

> as far as we hoped ie mercury hardly showed at all for 1st 5 weeks or

> so then it started to come out.

> Benefits:

> language and cognition way up - prepositions and long sentences. Able

> to answer some questions ( attention still a problem). He can say

> things we have done ie " we have been to the woods Mummy. " Charlie was

> non verbal less than two years ago ( he is nearly 5)

> Interacts loads more with brother and at school ( mainstream with one

> to one)

> Generally much more aware

> He can now dress himself

> He can now swallow big pills(couldn' t do this before)

> He can now ride his bike ( with stabalisers) he couldn't get pedalling

> before we went away.

> We still have a way to go because we know there is alot of mercury in

> him ( e fillings in 1st trimester; rhogam and all vaccines)

> We went to bradstreets clinic which is very good - they investigated

> IV's for 2 years before they started them and it is now standard

> treatment. They also add glutathione and vit c in IV's and don't give

> high doses.

> We have just started DMPS suppositories which dr says are second best -

> IV's 100% effective; supps 75%.

> We have been very pleased with results - he has had so many insults -

> nice lead pipes where we live and I ate tuna all through pregnancy - I

> couldn't have gone more wrong if I tried! We feel this has speeded

> things upa bit - the sooner we get rid of the metals the sooner he can

> get better. But I know IV's are controversial and if they are not done

> or monitored properly it might be a different story.

> HTH

> Peta-

>

> -- In Autism-Biomedical- Europe@grou ps.com

> <mailto:Autism Treatment%40>, Cath

> <catherine.devereux @...> wrote:

> >

> > Has anybody undergone or is undergoing this treatment on a regular

> basis

> > either here or in the U.S? If so, could you let me know where and

> what

> > is involved and whether you have seen any benefits?

> > With many thanks

> >

> >

>

>

Hi Peta,

Thanks very much for all the details, gives me a better idea of whats

involved if we go. Jack is a total lead head and his doc is suggesting

we may need to go down the route of spending some time intensively over

there doing the IVs after we've tried to get his guts more under

control! We are about to switch to DMSA supps and oral DMPS alternately.

Who is your doc? Are they rxing the DMPS supps for his mercury? If so

how are you addressing the lead? Also wondered how you are getting on

with the supps? Are they easy to administer - any tips? I also heard

they were second most effective method to IVs.

Did you stay with relatives when you went to the U.S as I think we'd

have to rent somewhere which will add to what it will all cost? One

final Q - sorry there are so many! Could you give me an idea of how much

the treatment cost?

With many thanks

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CarolineTraa@... wrote:

> In a message dated 06/06/2006 17:56:04 GMT Daylight Time,

> mark.grabiec@... writes:

>

> We did one IV EDTA in the US. I cant say we've seen improvements from

> that per se but he did pull a massive amount of lead - right off the

> end of the chart. Since then we've done EDTA suppositories which are

> not as effective but they are the next most effective form of EDTA,

> apparently.

>

> Ditto for us ... I thought seemed pretty good after her

> IV-EDTA but was probably just happy to be home, jet lagged etc so not

> playing up so much!! We ahve DMSA suppositories to try but havent

> started yet we are also using TD-EDTA the Norwegian stuff every second

> day just a tiny bit. We will start with the suppositories after our

> OAT and CDSA come back in around 3-4 weeks eg our summer hols.

> Like Steph said we pulled loadsa lead and if I could do it here easily

> I would probably.

> Caroline, HTH

> xxx

>

Hi Steph and Caroline,

Thanks for the update. I do think we may have to think about IVs with

Jack, have been slaving away with low dose 4 hourly TD DMSA and ALA and

am not sure we're pulling much at all, apart from our hair out! Dr Mc

seems to think suppositories are next best thing to IV at the mo so

we've got to give the DMSA supps a go - Steph - any tips, must say not

looking forward to that one! We're going to take a urine toxic metals

following a DMSA supp (first urine after given supp in the night) and

then also following weekend when do an oral DMPS round to see if we are

getting a pull. Have either of you done urine toxic metals or fecal

metals following using supps?

Am awaiting the arrival of mine - will keep you posted!

Love

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Hi Jane I believe he does-but things change so give them a call:001

321 953 0278-- I can't recommend them highly enough

Peta- In Autism-

Biomedical-Europe , " Jane Hogan " <jane_hogan@...>

wrote:

>

> Hi Peta,

>

> I am interested in seeing Bradstreet next time I am in Florida.

Do you know if he has a long waiting list ?

>

> Jane

>

>

> Re: IV EDTA and IV DMPS

>

>

> Hi

> We recently went to the States for 2 months and did 23 lots of

IV's -

> more ETDA than DMPS because Charlie has a lot of lead. We did 3

a week

> for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every

2

> weeks to make sure body coping ok. It made him stimmy but he

coped

> fine and has improved alot. Because of his lead problem we

didn't get

> as far as we hoped ie mercury hardly showed at all for 1st 5

weeks or

> so then it started to come out.

> Benefits:

> language and cognition way up - prepositions and long sentences.

Able

> to answer some questions ( attention still a problem). He can

say

> things we have done ie " we have been to the woods Mummy. "

Charlie was

> non verbal less than two years ago ( he is nearly 5)

> Interacts loads more with brother and at school ( mainstream

with one

> to one)

> Generally much more aware

> He can now dress himself

> He can now swallow big pills(couldn't do this before)

> He can now ride his bike ( with stabalisers) he couldn't get

pedalling

> before we went away.

> We still have a way to go because we know there is alot of

mercury in

> him ( e fillings in 1st trimester; rhogam and all vaccines)

> We went to bradstreets clinic which is very good - they

investigated

> IV's for 2 years before they started them and it is now standard

> treatment. They also add glutathione and vit c in IV's and don't

give

> high doses.

> We have just started DMPS suppositories which dr says are second

best -

> IV's 100% effective; supps 75%.

> We have been very pleased with results - he has had so many

insults -

> nice lead pipes where we live and I ate tuna all through

pregnancy - I

> couldn't have gone more wrong if I tried! We feel this has

speeded

> things upa bit - the sooner we get rid of the metals the sooner

he can

> get better. But I know IV's are controversial and if they are

not done

> or monitored properly it might be a different story.

> HTH

> Peta-

>

> -- In Autism Treatment , Cath

> <catherine.devereux@> wrote:

> >

> > Has anybody undergone or is undergoing this treatment on a

regular

> basis

> > either here or in the U.S? If so, could you let me know where

and

> what

> > is involved and whether you have seen any benefits?

> > With many thanks

> >

> >

>

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Hi Jane I believe he does-but things change so give them a call:001

321 953 0278-- I can't recommend them highly enough

Peta- In Autism-

Biomedical-Europe , " Jane Hogan " <jane_hogan@...>

wrote:

>

> Hi Peta,

>

> I am interested in seeing Bradstreet next time I am in Florida.

Do you know if he has a long waiting list ?

>

> Jane

>

>

> Re: IV EDTA and IV DMPS

>

>

> Hi

> We recently went to the States for 2 months and did 23 lots of

IV's -

> more ETDA than DMPS because Charlie has a lot of lead. We did 3

a week

> for 8 weeks and 40 hours of HBOT. We did RBC and CMP tests every

2

> weeks to make sure body coping ok. It made him stimmy but he

coped

> fine and has improved alot. Because of his lead problem we

didn't get

> as far as we hoped ie mercury hardly showed at all for 1st 5

weeks or

> so then it started to come out.

> Benefits:

> language and cognition way up - prepositions and long sentences.

Able

> to answer some questions ( attention still a problem). He can

say

> things we have done ie " we have been to the woods Mummy. "

Charlie was

> non verbal less than two years ago ( he is nearly 5)

> Interacts loads more with brother and at school ( mainstream

with one

> to one)

> Generally much more aware

> He can now dress himself

> He can now swallow big pills(couldn't do this before)

> He can now ride his bike ( with stabalisers) he couldn't get

pedalling

> before we went away.

> We still have a way to go because we know there is alot of

mercury in

> him ( e fillings in 1st trimester; rhogam and all vaccines)

> We went to bradstreets clinic which is very good - they

investigated

> IV's for 2 years before they started them and it is now standard

> treatment. They also add glutathione and vit c in IV's and don't

give

> high doses.

> We have just started DMPS suppositories which dr says are second

best -

> IV's 100% effective; supps 75%.

> We have been very pleased with results - he has had so many

insults -

> nice lead pipes where we live and I ate tuna all through

pregnancy - I

> couldn't have gone more wrong if I tried! We feel this has

speeded

> things upa bit - the sooner we get rid of the metals the sooner

he can

> get better. But I know IV's are controversial and if they are

not done

> or monitored properly it might be a different story.

> HTH

> Peta-

>

> -- In Autism Treatment , Cath

> <catherine.devereux@> wrote:

> >

> > Has anybody undergone or is undergoing this treatment on a

regular

> basis

> > either here or in the U.S? If so, could you let me know where

and

> what

> > is involved and whether you have seen any benefits?

> > With many thanks

> >

> >

>

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Hi

We are with in Bradstreets clinic. We pulled toxic

amounts of lead doing the EDTA IV's so I'm sure the DMPS supps will

pull lead as well as mercury. Andy puts the supps in soon after

Charlie falls asleep when he is in his deepest sleep and so far

fine - he doesn't wake ( only done 2- next one tonight.)He pushes

them in up to the base of his finger nail - which is why I don't do

it with my talons!

We rented a villa which we found for £400 per week and that was

cheap for the area - it took alot fo searching to find it.

IV's were $240 for DMPS and $177 for EDTA and the HBOT was £120 per

dive ( we did 40 out there but have done 82 hours in total). Tests

not expensive £55 for urine toxic metal and $20 odd for others.

The total bill came to $9,800 for the clinic but renting the villa,

car and buying organic food out there made it pretty expensive.

I know it's alot of money but people buy new cars and get their

houses extended and spend much more.

We went to Olan Mills today and had some photos taken of the boys -

Charlie did as he was told and repeated what the guy told him to

say. He probably thought Charlie was a bit slow but the improvement

in him from a year ago was amazing - I didn't even tell them he was

autistic which was a first. So I am a fan of IV's but I too would be

very careful with the dr - I know we were lucky to get into

Bradstreets clinic before they closed their books.

Good luck

Peta

> > >

> > > Has anybody undergone or is undergoing this treatment on a

regular

> > basis

> > > either here or in the U.S? If so, could you let me know where

and

> > what

> > > is involved and whether you have seen any benefits?

> > > With many thanks

> > >

> > >

> >

> >

>

> Hi Peta,

> Thanks very much for all the details, gives me a better idea of

whats

> involved if we go. Jack is a total lead head and his doc is

suggesting

> we may need to go down the route of spending some time intensively

over

> there doing the IVs after we've tried to get his guts more under

> control! We are about to switch to DMSA supps and oral DMPS

alternately.

> Who is your doc? Are they rxing the DMPS supps for his mercury? If

so

> how are you addressing the lead? Also wondered how you are getting

on

> with the supps? Are they easy to administer - any tips? I also

heard

> they were second most effective method to IVs.

> Did you stay with relatives when you went to the U.S as I think

we'd

> have to rent somewhere which will add to what it will all cost?

One

> final Q - sorry there are so many! Could you give me an idea of

how much

> the treatment cost?

> With many thanks

>

>

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Guest guest

Hi

We are with in Bradstreets clinic. We pulled toxic

amounts of lead doing the EDTA IV's so I'm sure the DMPS supps will

pull lead as well as mercury. Andy puts the supps in soon after

Charlie falls asleep when he is in his deepest sleep and so far

fine - he doesn't wake ( only done 2- next one tonight.)He pushes

them in up to the base of his finger nail - which is why I don't do

it with my talons!

We rented a villa which we found for £400 per week and that was

cheap for the area - it took alot fo searching to find it.

IV's were $240 for DMPS and $177 for EDTA and the HBOT was £120 per

dive ( we did 40 out there but have done 82 hours in total). Tests

not expensive £55 for urine toxic metal and $20 odd for others.

The total bill came to $9,800 for the clinic but renting the villa,

car and buying organic food out there made it pretty expensive.

I know it's alot of money but people buy new cars and get their

houses extended and spend much more.

We went to Olan Mills today and had some photos taken of the boys -

Charlie did as he was told and repeated what the guy told him to

say. He probably thought Charlie was a bit slow but the improvement

in him from a year ago was amazing - I didn't even tell them he was

autistic which was a first. So I am a fan of IV's but I too would be

very careful with the dr - I know we were lucky to get into

Bradstreets clinic before they closed their books.

Good luck

Peta

> > >

> > > Has anybody undergone or is undergoing this treatment on a

regular

> > basis

> > > either here or in the U.S? If so, could you let me know where

and

> > what

> > > is involved and whether you have seen any benefits?

> > > With many thanks

> > >

> > >

> >

> >

>

> Hi Peta,

> Thanks very much for all the details, gives me a better idea of

whats

> involved if we go. Jack is a total lead head and his doc is

suggesting

> we may need to go down the route of spending some time intensively

over

> there doing the IVs after we've tried to get his guts more under

> control! We are about to switch to DMSA supps and oral DMPS

alternately.

> Who is your doc? Are they rxing the DMPS supps for his mercury? If

so

> how are you addressing the lead? Also wondered how you are getting

on

> with the supps? Are they easy to administer - any tips? I also

heard

> they were second most effective method to IVs.

> Did you stay with relatives when you went to the U.S as I think

we'd

> have to rent somewhere which will add to what it will all cost?

One

> final Q - sorry there are so many! Could you give me an idea of

how much

> the treatment cost?

> With many thanks

>

>

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Hi Peta,

This sounds to me like great improvements! Does dr. Bradstreet

recommend a particular brand for the suppositories?

> >

> > Has anybody undergone or is undergoing this treatment on a regular

> basis

> > either here or in the U.S? If so, could you let me know where and

> what

> > is involved and whether you have seen any benefits?

> > With many thanks

> >

> >

>

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Hi

Supps come from coastal pharmacy, on box it says DMPS 125mg supp.

Peta -

-- In Autism Treatment , " mjalvareztorres "

<alvarez3@...> wrote:

>

> Hi Peta,

>

> This sounds to me like great improvements! Does dr. Bradstreet

> recommend a particular brand for the suppositories?

>

>

>

>

> > >

> > > Has anybody undergone or is undergoing this treatment on a

regular

> > basis

> > > either here or in the U.S? If so, could you let me know where

and

> > what

> > > is involved and whether you have seen any benefits?

> > > With many thanks

> > >

> > >

> >

>

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