A positive approach to movement disorders and incurable illnesses in gral. terms

[Guest guest]

Hi friends of this great forum.

I come from Spain-Europe to this support group to collaborate, and

specially to this area, after having done the same (I could

say `successfully') in similar groups in my country, and so in my

language (Spanish).

I must say I started to live with torsion dystonia (an incurable

movement disorder that causes pain, cramps, lack of skill, etc., and

many difficulties in daily life) when I was about 11. Now I am 43 and

some months ago I felt I could help other people with my personal

experience, my way of facing this illness now and in the past, and so

on. Moreover, my particular familiar conditons had become more

difficult than ever when my wife was diagnosed multiple sclerosis. At

that moment I knew I had to work harder for her, for our son and, why

not, also for other people with this kind of trauma. I hadn't fallen

into depression until then, kind of a miracle, and there had come

many other threatens to be faced.

So here I am trying to share the keys of my experience, what I

call `a positive approach to dystonia' but also to… any other

chronic, incurable, or similar disorders.

I use to say that, of course, I am not a model of anything, and I

also say I trust those people who help you with an extra bit of

understading, something so really expensive to get these

days. `Understanding': in my opinion, the best medicine to deal with.

In a simple way, and absolutely far from any interest but showing my

own experience, I have spent long time months designing and

developing a webspace from which I try to help sharing very carefully

the best of me in a practical way and considerating not only physical

aspects but animics too.

The url

http://webs.ono.com/distoweb

was been recently published in Spanish (2008 Feb, 6th.), and English

(2008 Apr, 9th), and I hope I will reach lots of patients with

dystonia, parkinson, etc. who can find it useful in their lives.

Please, this is as yours as mine. Do not doubt doing with it whatever

you feel it can be useful to other people, specially to ill people

close to depression. I feel it can help.

My best wishes,

Valencia-Spain

[Guest guest]

Thank you. I also have Dystonia. I will take a look at this. suedistoweb <fer14@...> wrote: Hi friends of this great forum.I come from Spain-Europe to this support group to collaborate, and specially to this area, after having done the same (I could say `successfully') in similar groups in my country, and so in my language (Spanish). I must say I started to live with torsion dystonia (an incurable movement disorder that causes pain,

cramps, lack of skill, etc., and many difficulties in daily life) when I was about 11. Now I am 43 and some months ago I felt I could help other people with my personal experience, my way of facing this illness now and in the past, and so on. Moreover, my particular familiar conditons had become more difficult than ever when my wife was diagnosed multiple sclerosis. At that moment I knew I had to work harder for her, for our son and, why not, also for other people with this kind of trauma. I hadn't fallen into depression until then, kind of a miracle, and there had come many other threatens to be faced.So here I am trying to share the keys of my experience, what I call `a positive approach to dystonia' but also to… any other chronic, incurable, or similar disorders. I use to say that, of course, I am not a model of anything, and I also say I trust those people who help you with an extra bit of

understading, something so really expensive to get these days. `Understanding': in my opinion, the best medicine to deal with.In a simple way, and absolutely far from any interest but showing my own experience, I have spent long time months designing and developing a webspace from which I try to help sharing very carefully the best of me in a practical way and considerating not only physical aspects but animics too. The urlhttp://webs.ono.com/distoweb was been recently published in Spanish (2008 Feb, 6th.), and English (2008 Apr, 9th), and I hope I will reach lots of patients with dystonia, parkinson, etc. who can find it useful in their lives. Please, this is as yours as mine. Do not doubt doing with it whatever you feel it can be useful to other people, specially to ill people close to depression. I feel it can help.My best

wishes,Valencia-Spain betterbodybuddies/?yguid=137091429 http://www.peternoone.com.