New members please introduce yourself

[Guest guest]

Hi everyone,

My name is Cecil and I am new to the group. I am a 23 year

old stay at home mom of 4 year old twin boys, Christian and Zackary,

who will be turning five in January. Zackary has had the periodic

fevers at least since he was two years old. It's usually a month

apart everytime, although when he was younger, he sometimes skipped

them completely. Now, I am keeping record of it much better, and his

pediatrician is finally labeling him with . He always has the

swollen lymph nodes in his neck when he has an episode. Recently the

boys started school, and I am concerned b/c since then his fever

returned after TWO WEEKS!! This has never happened before. I live

in ton, South Carolina, so if anyone nearby would like to

share advice with me I would appreciate it. I feel helpless that I

can't do anything for him when he is fevering....tylenol doesn't

bring the fever down anymore, and hopefully the motrin will keep

working. Thanks for letting me join the group!! Any info about this

mysterious condition is great!!

Cecil

ton, SC

>

> Hi

> I send a welcome note to ALL new members, please take the time to

introduce yourself to the group and let us know how or ANY

Periodic Fever Syndrome has been diagnosed or is being diagnosed...

Also INCLUDE in your signature OR email post where you live so you

can begin to NETWORK with members close to your home or who are

familiar with doctors close to your home.

>

> God Bless

> Fran

> Fran Bulone RN

> Mom to ph 7yr CIAS1 mutation 11/05

> Waxhaw NC

> /

>

>

>

[Guest guest]

Hi. My name is Maureen and I am a new member. I have a daughter, Sara who

is 19 months old and has been fevering for about a year (I can't recall

before that). We recently switched doctors and it was a blessing. Our old

dr. never mentioned anything other than her fevers being a virus. Oh well,

that is all in the past. We have been to see a rheumatologist once and she

did blood work when she was well and wants to do it again when she has a

fever. So we have no idea what she will or will not be diagnosed with. All

of her symptoms add up to but who knows. I hope we don't have to go

through this too much longer before we can start helping Sara. Someone

mentioned sleeping in a past post. Just this past time Sara didn't sleep

which is not like her. She has always been a great sleeper. I hope it

doesn't happen again this time. It made the next day tough on her and tough

on me too since I have two other kids (a three year old and Sara's twin

sister). I will keep you all updates on any new situations. Sara should be

due for her next fever around the 23rd of this month.

Maureen Mom to Sara 19months ??

Rockaway, NJ

[Guest guest]

We've had about two dozen new members in the past few weeks, and because

it's such a large group, a newbie can feel a bit lost. It helps to write

a brief intro about yourself - who knows, you might find someone lives

in your area, or has similar interests, and that can be the basis of a

new friendship.

If you make perfumes, or are struggling to make perfumes, let us know.

Of course, don't forget to search our archives, the biggest and best on

natural perfumery on the Internet.

Sincerely,

Anya

--

Anya's Garden http://AnyasGarden.com - perfumes, aromatics, classes,

consultation

Natural Perfumers Guild + blog with daily updates

1500+ member Natural Perfumery group -

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