Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Hello everyone! I am guilty, I have been getting mail from this wonderful group for a couple of weeks now, but I have been in such horrible pain, I have not felt like typing. So now it is time for me to introduce myself...... My name is . I live in Oregon. I am 46 years old. I have RA and also fibro and IC. My RA is real bad right now. I was dxed with it two years ago. I am on methrotrate, predisone, mobic, and folic acid. I just started the mobic today. Has anyone ever been on mobic? So far it has made me sleepy. I hope it doesnt make me any more sleepy than I am, now, as I am a home daycare provider, and need to be alert. Looking forward to meeting all of you! Soft Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Welcome! I'm new here, and an Oregonian, too! I'm sorry you're going through such a bad flare. I'm not familiar with the new med you're on...I just started Remicade last week. I hope things get better for you soon. With Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Tess_St_Pierre@... wrote: Welcome! I'm new here, and an Oregonian, too! I'm sorry you're going through such a bad flare. I'm not familiar with the new med you're on...I just started Remicade last week. I hope things get better for you soon. With Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi Kathy... thanks for the welcome! I've never heard of Applegate, so I'll have to do some exploring! There are many, many little towns in Oregon. With Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 HI Tess! Thanks for the welcome! How are you doing on the remicade? My Dr said that he may have me try it if this mobic does not help me. I hope that something works, I hope to get off of the predisone as it makes me gain so much weight. Where in Oregon are you? I live in Gladstone. Do you know where that is? Soft hugs, <>< -- Re: [ ] Hello, Im new also Welcome! I'm new here, and an Oregonian, too! I'm sorry you're going through such a bad flare. I'm not familiar with the new med you're on...I just started Remicade last week. I hope things get better for you soon. With Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi ...I live on the NW outskirts of Portland, off the Sunset Highway. I sure do know where Gladstone is...I lived in Oregon City 75-76...my husband called Gladstone " Happy Rock. " : ) I'll keep you posted on my experience with Remicade...my next infusion is Feb. 8. With Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi , Many or our members are on Mobic, all with different reactions. I myself am also on it about a month. I have not noticed the sleepiness, I just don't see where it helps a whole lot. I see my rheumy next week and will discuss it with him then. The sleepiness may just be your body trying to adjust to something new, but I agree that with the little people that you care for, sleepiness is not something that you can afford. Hope the side effects subside for you and you get some relief. Gentle, tender, angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 HI Debs! Thanks for the info on Mobic. I do notice that today I do feel alittle better. I have alot of burning, and it seems to have taken some of the burning away. I am hoping that I can get off of predisone all together, as I have said that it has made me gain so much weight. I know that it does increase your appitite, but I do think that it does make a person retain fluid also, because I try to watch what I eat, and I keep gaining. Are you on predisone? It really works wonders, but I am tired of the weight gain, and I am worried about what damage it can cause by taking it for long periods. I was on 60 mg, now I am down to 20mg a day. last year I was able to mantain on only 5mg with the metrotraxate, but it seems that my RA is getting worst for some reason. Hoping that we all have a pain free day today! Hugs, <>< -- Re: [ ] Hello, Im new also Hi , Many or our members are on Mobic, all with different reactions. I myself am also on it about a month. I have not noticed the sleepiness, I just don't see where it helps a whole lot. I see my rheumy next week and will discuss it with him then. The sleepiness may just be your body trying to adjust to something new, but I agree that with the little people that you care for, sleepiness is not something that you can afford. Hope the side effects subside for you and you get some relief. Gentle, tender, angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 HI Tess! Do you feel worst when it is raining, or hot? I feel worst when it is raining when the temp is higher than say in the 40s. Or if it is foggy. Now last week when it was colder and we were having our snow, I was feeling somewhat better. Which makes no sence to me. Looking forward to pain free days for all of us! Hugs, <>< -- Re: [ ] Hello, Im new also Hi ...I live on the NW outskirts of Portland, off the Sunset Highway. I sure do know where Gladstone is...I lived in Oregon City 75-76...my husband called Gladstone " Happy Rock. " : ) I'll keep you posted on my experience with Remicade...my next infusion is Feb. 8. With Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 hey tess, sorry you had to cut your hair. maybe it will be easier to style now. i kinda gave up on mine, usually pull it back into a pony tail. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi , Yep, I am on the prednisone also. I also gained about 80 lbs since March 01 when I had pneumonia and very bad asthma attack. They had me up to 80 mg 3 x a day, YIKES! I was Sybil with an eating disorder! I was on IV fluids only while I was in the hospital and came home looking like a Macy's Day Parade Balloon. It was horrible. I have dropped some of the weight but at Christmas they upped the prednisone again to 40 mg a day and am trying to come down from that. I was put on Mobic after the higher dosage of Celebrex caused an exacerbation of the lupus symptoms. In addition to the mtx I also take Enbrel twice a week. And as a bonus from the high doses of prednisone, I developed diabetes. Yeah, the hits just keep on coming!!!! Don't get discouraged and try to have a good weekend....... Gentle, tender, angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi ...I seem to feel worse whenever the weather changes...so in NW Oregon it's a bit of a rollercoaster! The psoriasis (I have psoriatic arth. as well as RA) is MUCH better in the summer. The methotrexate has a good effect on the psoriasis, too, but it has never gone away. I have so much of it on my scalp right now...despite the metho, med. shampoo, diprolene creme...my (very thick) hair was half-way down my back and I had it cut to the nape of my neck today, hoping that will take some pressure off my scalp. Well, there's my 'whine' with dinner!!! Hope & Hugs... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2002 Report Share Posted February 4, 2002 Hi Tess, just read your post to ...I also will have a Remicade treatment February 8th. This will be my 5th and so far so good. Be Blessed, Becky Quote Link to comment Share on other sites More sharing options...
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