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Hi Suzanne,

What are your symptoms? Curious.

I wanted to say that I have been on Prednisone since I was 13, 20 years now.

I've tried very hard to lower it, to see if I could get off it. No chance. I

take another drug to help build my bones.

~Rainy

----- Original Message -----

From: " Suzanne " <suzshay@...>

I'm somewhat angry that it took 2 years for someone to listen to me and

respond with a rheumatology referral. I can't help but wonder whether I

would have arthritis in so many joints if I had received proper care

earlier. I knew there was something *really* wrong with me, and it was

really scaring me, but convincing my primary care physician has been a

challenge. I must say she was actually *almost* apologetic at our last

appointment. But the recurrent thread of our conversation was, do you know

how rare your symptoms are, we did all the right tests, there wasn't any way

to come up with an RA diagnosis based on the results of your tests, yadda,

yadda, yadda.

> I didn't think doctors prescribed Prednisone for that continuous time

> length, due to all the " bad " side effects. Interesting... When I first

> started the Prednisone and had such dramatic improvement, I called the

> doctor's office and asked if I could " forget " the methotrexate and just

stay

> on the prednisone. The answer was an emphatic NO! That the goal was to

get

> me off the prednisone as soon as was practical.

> Listen to your friend!! Having a passion is a very positive emotion. And

> why plan for the worst, when it may not come to pass. Sounds like you're

> having fun.

>

> Suzanne

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