Re: New to Group: Have Scleritis & Joint Pain

[Guest guest]

well that to me would mean they are a good doctor!!! thats all we can hope

for. yes mine is hard to get into too. kathy in il

[Guest guest]

Welcome, Jeanne. I'm pretty new here, too, but have found it a

wonderful group.

I'm glad your doctor is ordering tests...with these types of disorders

sometimes it does take awhile to ge a diagnosis. Please feel free to

talk about it here...there is a lot of caring, support, and information.

Tess in NW Oregon

[Guest guest]

Thanks Tess!

By the way, I love your name. I considered it for all 3 of my girls!

Just thought it required a dark head of hair...and we have all

blondies. Thanks for your kind words. I am very scared right now.

Everyone seems to be underplaying it, so I'm hopeful. But

scleritis in itself is worrisome, not to mention the bigger picture!!

I have an appointment to review my lab work next Thursday with my

PCP. I can't get in with the Rheumatologist until June 11th!! UGH! Is

this common?

Thanks again,

Jeanne

> Welcome, Jeanne. I'm pretty new here, too, but have found it a

> wonderful group.

>

> I'm glad your doctor is ordering tests...with these types of

disorders

> sometimes it does take awhile to ge a diagnosis. Please feel free

to

> talk about it here...there is a lot of caring, support, and

information.

>

> Tess in NW Oregon

[Guest guest]

Hi Jeanne,

I'm new to the group, as well. I've been diagnosed with Rheumatoid

Arthritis, and started medications about 2 months ago. I am seeing

improvement, although I'm having a bad day today.

When I made my appt. with the Rheumatologist, they told me about 6 weeks,

but they called me the week after and said they had an opening and asked if

I wanted to come in. My suggestion is to ask if they could call you if

anything opens up sooner. I believe it's pretty common to have a long wait

to get in for a first visit.

Since I had symptoms long before I mentioned it to my doctor and I was

getting much worse, I was sort of relieved to finally know what was wrong.

Nonetheless, once the Rheumatologist confirmed it I went through a period of

fear that my life would never be the same. Now that the methotrexate and

plaquenil are beginning to work, I am feeling much more optimistic. I would

just take it one day at a time.

Warmest regards,

Carol in FL

[ ] Re: New to Group: Have Scleritis & Joint Pain

Thanks Tess!

By the way, I love your name. I considered it for all 3 of my girls!

Just thought it required a dark head of hair...and we have all

blondies. Thanks for your kind words. I am very scared right now.

Everyone seems to be underplaying it, so I'm hopeful. But

scleritis in itself is worrisome, not to mention the bigger picture!!

I have an appointment to review my lab work next Thursday with my

PCP. I can't get in with the Rheumatologist until June 11th!! UGH! Is

this common?

Thanks again,

Jeanne

> Welcome, Jeanne. I'm pretty new here, too, but have found it a

> wonderful group.

>

> I'm glad your doctor is ordering tests...with these types of

disorders

> sometimes it does take awhile to ge a diagnosis. Please feel free

to

> talk about it here...there is a lot of caring, support, and

information.

>

> Tess in NW Oregon

[Guest guest]

Hi Jeanne....It is pretty common, around here, to have to wait 2 - 3

months for your first appointment with a specialist. After that, I've

had no trouble getting in pretty quickly.

I know it is nerve-wracking to have to wait. I understand, Jeanne, and

I'm sorry. If you find it helpful, post here all you want. You won't

feel so alone in the meantime.

Thanks for the kind words about my name...I do have dark

hair...chestnut, a dark brown-auburn, although the silvers & golds are

popping in more everyday!

Hugs of Hope...

Tess

[Guest guest]

Welcome Jeanne, I know the girls will help you find info on your Scleritis. I

only have RA. I am doing right well with the Remicade and have finially

weaned off the prednisone. I will go April 5th for my 5th infusion. The

joint pain in the elbows, ankles, and knees is just a part of the RA.

Be blessed,

Becky

[Guest guest]

We only have one Rhuematologist in our city, so yes it does take awhile to

see him on the first visit. Seems like now I see him often enough, LOL.

Every 8 weeks to the rhuemy I go...... Good Luck,

Be blessed,

Becky

[Guest guest]

Hi Jeannie,

Welcome to the group.

Six weeks sounds/feels like a lot of time when you are hurting, doesn't it?

Is there only 1 rheumatologist in your town? I had to travel 90 miles to

find a good rheumatologist. In that town there are 9, in my town only 1. I

don't think it took 6 weeks for my first appointment, although it probably

took about 3 weeks. The longest wait was waiting to go to my second

appointment. It was close to a month after my first appointment and I was

dying to hear what my diagnosis was and if he could help me! My first

appointment was just before the Christmas holidays which may have had

something to do with the long interval. Now I see him every 6 weeks.

Suzanne

----- Original Message -----

> blondies. Thanks for your kind words. I am very scared right now.

> Everyone seems to be underplaying it, so I'm hopeful. But

> scleritis in itself is worrisome, not to mention the bigger picture!!

>

> I have an appointment to review my lab work next Thursday with my

> PCP. I can't get in with the Rheumatologist until June 11th!! UGH! Is

> this common?