Re: out of lurkdom

[Guest guest]

Welcome Penny,

I am glad to hear your experience with Remicade was favorable, as I also

am getting it. So far it is doing me very good. What kind of work do you do?

I haven't worked anywhere in over a year. They have closed the Museum where I

worked part time as a curator. This I could do and still be on SS Disability,

which I've been on for 2 years.

Know you will enjoy this group and find them very informative. a and

really give a lot to research and linking us up with where to find

answers to any questions we might have.

Again Welcome,

Be Blessed,

Becky

[Guest guest]

Wecome, Penny! Tess from just NW of Portland, here. I'm glad you're

here. There is much kindness and great support here.

Hugs of Hope...

Tess

[Guest guest]

Welcome Penny! It's encouraging to hear of your great results with

remicade. I hope

you quickly get back to where you were before the surgery.

a

[Guest guest]

welcome penny, i've kinda been out of it for a day or so with my son's

surgery. i'm kathy 42 and my son dan 18. he is home and trying to nap

now.just thought i'd say hi!! kathy in il

[Guest guest]

Hey everyone,

I am hoping that you all are doing well or better. This have been tough

around here. Kids have been sick all over again. has that terrible deep

body racking cough like he did last year. He also has those 2 scab like

circles on his head. They have dried up a bit but not looking any better then

that. He is still on ABs for it. Having trouble with the plum. Just want them

to call in a med for the cough so that he stops getting headaches and pulled

muscles from coughing but they won't cause his yearly referrals aren't up to

date and they don't care that I had to wait a week to make his appt with his

primary cause they didn't have march's schedule yet. He refuses to go to the

block clinic cause its a different dr every time and they always under treat

him. In other words he doesn't trust them and neither do I. So his Ortho dr

is treating him for everything right now.

I just had an IEP meeting at the high school for and he is doing well

in school. they are very happy with his work. He is well liked by his

teachers and his peers. Next year he takes drivers ed and his is excited. He

gets his permit in about 3 weeks. He will be 15 on the 20th and will

finally be a teenager on the 6th. He is also excited. also gets to

take a vocational test next year as well. It tells what his interest are and

what his strength and weaknesses are. When he is in 11th and 12th grade he

will be able to go to the vocational school if he wants cause after next year

he will have all his electives done so he can do that and he can also work

and get credit for it. He will go to work at Coastal Ford with and his

dad. will be going to the Ortho dr to have his knees and ankles check

out but last night I noticed a lump on his spinal cord up in between his

shoulder blades near his neck. He says thats where the bar hits when he is

lifting weights but its really big so I told him that he has to have it check

out. He got a bit upset cause he thinks I am being over protective but I

explained that if the dr said it was nothing to worry about fine but all the

could be's and what if's is what worries me. I would hate for him to walk up

one morning and not be able to move from the shoulders down cause we didn't

do anything about it. He finally agreed so next wed. he goes.

My friend had her baby yesterday. she was 4 days over due. She had a fairly

easy labor. Got to the hospital at 3am and had her shortly after 5am. I went

to the hospital today to see them. The baby is absolutely beautiful. Mom is

tired, dad has a glow and a smile that won't quit. Both grandma's look happy.

I didn't get to hold her cause she was sleeping. She gave her mom a hard time

all night. She wanted to eat all night. Oh yeah her name is Zoe Marie. Please

don't ask me how to spell her last night cause her daddy is half Greek and

has a very Greek name. All my boys are eager to see the baby. I know is

going to fall in love with Zoe and Zoe will love . All babies love

.

Ok I got to go now. My time to relax. Got another headache started. Been

having them alot lately again. I think its time to increase the Zolfot. I

have already increase the imitrex from 50mgs to 100mgs. Works much better. By

the way we are talking more seriously about having my tubal reversed. All I

have to do is call and make set up a surgery date. wants me to do it

before I turn 35 and i just had my 34th b-day on the 10th.

Well you all have a good and pain free weekend.

Lot's of love

hh

[Guest guest]

What kind of work do you do?

> Becky

Thanks for the welcome! I work for the county district attorneys

office as a legal assist. They are very flexible with me, with doc

appts and having someone else do my running around if needed, but

I just hooked a backpack up to my walker and find I can load up with

files and get around pretty good most days! With FLMA, I cant be

penalized for having to stay home on a bad day too.

I mentioned I had surgery recently...well in November I had a gastric

bypass, you know, weight loss surgery. I had gained soo much after

years of prednisone, and no mobility, (oh and eating too much!) I was

really spiralling down health wise. Since then I have lost 140

pounds!! (I only share this incase anyone else is in the same boat,

and was as hopeless as I) Although it hasnt been a cure all, it sure

cant hurt to have all that weight off my joints. Also, it really

limits what I can eat, which goes back to the food alergy theory that

some feel aggrivates RA.

Penny, in cold but sunny Portland!

[Guest guest]

Hello Penny, In answer to your question back on March 1st,

What kind of work do you do? > Becky I have been on SS disability for two

years, haven't worked for about 2 3/4 yrs. However, I started to work in Oct.

1971 with a small company named " PEAVEY ELECTRONICS " which had been founded

by Hartley D. Peavey, whom I had graduated from high school with in 1960.

This company was making sound equipment: amplifiers and power amps for

musicians. I work in production from 1971 until Jan.1990. Took a years

sabatical then worked part time as Curator/Hostess in the company museum from

March 1991 until my 1st major RA flare in June 1999. Probably a lot of you

have seen Peavey products as the company has grown to international level and

quite a number of the popular musician artist use Peavey. We also made

guitars, keyboards, and architectural sound equipment for businesses,

churches, malls, schools, etc.. Enough of that.

Sorry to be so long in answering but I had gotten so far behind on my

e-mail, as we have been camping and my husband bought him a newer Bass boat

so we've been fishing some on these beautiful days we've been having here in

the south. Everything is greening up so quick, the spring flowers are

blooming, its really nice in between the rain and cool fronts. Sounds like we

will get rain both Sat. and Sun. which makes the day messy. We, family and

friends, always gather out at my brothers place for a hamburger cookout and

egg hunt.

Hope all have a Great Easter weekend, and that we'll remember the

reason we celebrate it. I pray that all will be pain free and enjoy the

activities of the day.

We'll be going to our son's in Texas about April 10th for our youngest

grandson's birthday, so we'll be gone again for awhile. Therefore I will

probably get behind again, but I will be back.

May you all Be Blessed.

Becky