Stacey & all.. Re: New to group

[Guest guest]

Welcome Stacey & ALL newbies! I'm sorry to not add all your names. Believe

me, you are *warmly* welcomed!

Hello! I am 33 and was dx'd at age 13 with JRA and I am now in my 20th year.

I also have fibromyalgia. Been on most of the drugs mentioned on this list.

Am currently on Prednisone, Arava, Remicade, Ultram, Amitriptyline, Vicodin,

Paxil. Vits and iron, folic acid. Didronel. Ask me anything.

I am glad you found us here. I know without a doubt you will love it here. I

can't say enough good about everyone here, one word describes us, family.

Don't worry too much about your son, I have found kids to be absolutely

wonderful with me and my RA. He will do fine. You can also find activities

to do while you lay on the couch or in bed. Like, hook up a nerf basketball

hoop you can toss from the couch and he can fetch the ball. Make a sticker

book together. I don't have kids myself but I have watched friends kids a

lot and they love me and we did these things together. The sticker book can

really be a special thing! The little boy I did that with wouldn't let his

Mom help him with it, he said this is for me and Rainy. I can't tell you how

much that meant to me. Anyway, it isn't " what " you do together that matters.

It's the fact that you are " doing together. " Don't forget, kid movies and

cartoons are esp good, you can sneak in a nap without them really knowing.

just nod and smile and agree once in a while! Even though you can't get up

and bounce around they don't notice that when you are having fun with

something else. You just have to be creative. Board games where you can

lay down would be excellent. Coloring. Gosh, wish I had to kid to play with

now!

I'm sure Moms here have lots of ideas for ya. Like I said, I'm not a Mom

but I do have lots of ideas.

This is some of the info you can get from us here besides health info. We

are here to help with ALL aspects of your/our lives to make things easier.

Also tips on making cleaning easier. If there is anything you have

questions about, or need help with, NO question is dumb, ever! We all feel

that in order to feel good we have to address all parts of our life.

Warm welcomes,

~Rainy

[ ] New to group

> Hi,

> I'm new to this. I found this group through a search on AOL. My name is

> Stacey. I am 35 yrs old, divorced and a mother of a 6 yr old. I was

> diagnosed with RA 2 yrs ago. I had to quit working as a medical asst last

> year and just got my approval for disability. I have been having many

> problems lately. Just stopped Enbrel and tried Kineret which gave me

> terrible blood red welts all over my abdomen and legs. So I just stopped

> that last week. I take Methotrexate 25mg injections once/week.

Prednisone

> 15mg/day, Actonel 30mg/week, Zoloft 100mg/day, folic acid, calcium, and so

> on. It seems that my RA just isn't responding to anything lately. I'm

> finding it increasingly difficult to keep a positive attitude. The pain

> never stops. I have recently developed sciatica and low back pain. MRI

> scheduled for next week. My son has adapted rather well to the situation.

> His father is not around (thank goodness). I feel so guilty sometimes

when I

> have to tell him, " Not now honey, maybe when mommy feels better. " He is

in

> kindergarten and plays T-ball. I tried volunteering at the school, but

just

> couldn't keep up. He seems to be well adjusted though. I have contacted

> many support groups in my area, but they are mostly older people whose

> children have grown and do not have any of the same interests that I do.

> Well I just wanted to check in and get acquainted. Thanks for listening.

> Sometimes that means the most.

> Stacey