Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 wow stacy, i can understand your fear. i do not have answers for your ?'s though. definatly do some investigating and ask alot of questions. write them down. then call and ask. they may have to get back to you after they speak to the doctor. but you have every right to have them. they are there to help you. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 Hi Stacey, I looked into this procedure sometime ago. I wanted to do it because it is not a drug. I didn't have the good veins needed for the procedure. Go to the web site there is information, you can call them, plus they use to offer a video. I wish I could have tried it. Lynn ---------- > From: staceycrwfrd@... > > Subject: [ ] Rheumy visit > Date: Saturday, April 06, 2002 12:59 PM > > Hi all, > Sorry I haven't written in a couple of days. Hands were so swollen and > painful. I saw the rheumy yesterday. He saw the marks that are still there > from the Kineret reaction and was disappointed, as was I. He gave me a depo > shot in the butt and is now trying to get my ins to approve prosorba column. > Does anyone know anything about this treatment or anyone who has tried it. > This scares me terribly. From what I gathered, it is kind of like dialysis, > where you are hooked up to a machine that filters your blood for about 3-4 > hours once a week for 12 weeks. My younger sister, who is an RN is excited > because she thinks this will be the one. She also works in a dialysis unit. > I still have to search the net for more info. Did I say this scares me!!! > Doc says he has 3 patients who tried it and 1 had good results and the other > 2 did not respond to the treatment. I don't know, but I don't like the idea > of a machine (or anything else for that matter) draining the blood out of my > body, filtering it, and then putting it back. With my luck, there would be a > power outage right in the middle of the works. Did I say I was scared of > this?!!!! Any info?? Anyone?? Please help. > Thanks > Stacey > > > Quote Link to comment Share on other sites More sharing options...
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