Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Ah... so I am not the only one. ::SIGH:: I have been waiting for almost two weeks for mine. And my insurance won't let me get more than a month's supply at a time or order it before I finish the last month's supply. Boy am I glad the doc put me back on the many pills as a precaution when he heard that Embril was on back order again. Ronnee who also hopes the rest of y'all get to enjoy the beautiful day Auntblabbie2000@... wrote: > Well, I have now joined the ranks of Enbrel Victims. I called for my > refill > on Thursday and was told on Monday after I called on Friday to make > sure that > they were not having problems filling Enbrel after the letter I > received and > all the publicity that they were now experiencing delays in receiving > Enbrel.....DUH......... My Remicade infusion, barring any complications, > doesn't start until next Thursday and not even at my doctor's office. > I have > to go to some oncologist office. I am hoping that the Enbrel has some > carry-over effect, but I am experiencing an intensification of pain in my > hands, lower joints and just about every place else plus a noticeable > increase in fatigue. It will probably be a long week and a half along > with > my other problems, but at least I have received some of the Enbrel > benefits, > while I know we have other members who have yet to even get their > first dose. > I am sorry for carrying on about " poor me " ....... > > Hope everyone can enjoy this Spring Day with a minimal of pain. > > Gentle, tender, angel hugs, > > Debs in FL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Oh My! Oh My! I have enough Enbrel till June, will the shortage be over then? Temple 3 Fox Haven Way Chelmsford, MA 01824 dat2352@... http://www.homestead.com/kuddlekrittersfarm/index.html http://www.homestead.com/kuddlekrittersdairygoats/index.html http://www.homestead.com/kuddlekraft/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Sorry, Deb! Any chance that they could move your Remicade treatment date up? Could you be placed on a cancellation list? I hate to think that you will have to wait that long in-between, especially since you are having an increase in pain already. How about giving one of the doctors a call about this? I've got to tell you this subject line gave me a big scare - I thought someone in our group or close to our group died as a result of using Enbrel. Not that the shortage is any small matter. [ ] Enbrel Victim > Well, I have now joined the ranks of Enbrel Victims. I called for my refill > on Thursday and was told on Monday after I called on Friday to make sure that > they were not having problems filling Enbrel after the letter I received and > all the publicity that they were now experiencing delays in receiving > Enbrel.....DUH......... My Remicade infusion, barring any complications, > doesn't start until next Thursday and not even at my doctor's office. I have > to go to some oncologist office. I am hoping that the Enbrel has some > carry-over effect, but I am experiencing an intensification of pain in my > hands, lower joints and just about every place else plus a noticeable > increase in fatigue. It will probably be a long week and a half along with > my other problems, but at least I have received some of the Enbrel benefits, > while I know we have other members who have yet to even get their first dose. > I am sorry for carrying on about " poor me " ....... > > Hope everyone can enjoy this Spring Day with a minimal of pain. > > Gentle, tender, angel hugs, > > Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Debs I'm really sorry. As much as you've been through and now to add this on top of everything else is very discouraging. It really irks me that this shortage exists in the first place. Immunex knew there was a supply problem before they petitioned the FDA to approve it for psoriasis and AS. So much for the waiting list keeping the supply available for those already on the medication. Can your doctor move up your remicade appointment? It may be worth a phone call if you tell him how bad you're feeling. Praying for an enbrel delivery for Debs, a [ ] Enbrel Victim Well, I have now joined the ranks of Enbrel Victims. I called for my refill on Thursday and was told on Monday after I called on Friday to make sure that they were not having problems filling Enbrel after the letter I received and all the publicity that they were now experiencing delays in receiving Enbrel.....DUH......... My Remicade infusion, barring any complications, doesn't start until next Thursday and not even at my doctor's office. I have to go to some oncologist office. I am hoping that the Enbrel has some carry-over effect, but I am experiencing an intensification of pain in my hands, lower joints and just about every place else plus a noticeable increase in fatigue. It will probably be a long week and a half along with my other problems, but at least I have received some of the Enbrel benefits, while I know we have other members who have yet to even get their first dose. I am sorry for carrying on about " poor me " ....... Hope everyone can enjoy this Spring Day with a minimal of pain. Gentle, tender, angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Ronnee, I'm sorry you too have been affected by the shortage. I hope it comes in soon. a Re: [ ] Enbrel Victim Ah... so I am not the only one. ::SIGH:: I have been waiting for almost two weeks for mine. And my insurance won't let me get more than a month's supply at a time or order it before I finish the last month's supply. Boy am I glad the doc put me back on the many pills as a precaution when he heard that Embril was on back order again. Ronnee who also hopes the rest of y'all get to enjoy the beautiful day Auntblabbie2000@... wrote: > Well, I have now joined the ranks of Enbrel Victims. I called for my > refill > on Thursday and was told on Monday after I called on Friday to make > sure that > they were not having problems filling Enbrel after the letter I > received and > all the publicity that they were now experiencing delays in receiving > Enbrel.....DUH......... My Remicade infusion, barring any complications, > doesn't start until next Thursday and not even at my doctor's office. > I have > to go to some oncologist office. I am hoping that the Enbrel has some > carry-over effect, but I am experiencing an intensification of pain in my > hands, lower joints and just about every place else plus a noticeable > increase in fatigue. It will probably be a long week and a half along > with > my other problems, but at least I have received some of the Enbrel > benefits, > while I know we have other members who have yet to even get their > first dose. > I am sorry for carrying on about " poor me " ....... > > Hope everyone can enjoy this Spring Day with a minimal of pain. > > Gentle, tender, angel hugs, > > Debs in FL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 > Oh My! Oh My! > I have enough Enbrel till June, will the shortage be over then? > Temple > 3 Fox Haven Way > Chelmsford, MA 01824 > My rheumatologist told me today that until Immunex gets the plant in Connecticut up and running, there will be shortages until at least October. Most people I know are having to wait a month or so for refills. I've been 2 weeks without mine and the choices that he gave me were the steroid shots every couple of weeks or switching to Remicade. Needless to say, I'm starting Remicade on Thursday. I think it will be interesting to see how many RA patients will get fed up with this bureaucratic nonsense and switch to another more obtainable option. I believe that they spent their energy trying to get FDA approval for other uses of Enbrel and they should have concentrated on making sure that the supply they were making was enough to meet the demand. Just my humble 2 cents. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 <<I believe that they spent their energy trying to get FDA approval for other uses of Enbrel and they should have concentrated on making sure that the supply they were making was enough to meet the demand.>> Kim, I'm not on Enbrel yet, but I think you're right on that they should have waited for FDA approval until they had enough supply. Carol in FL [ ] Re: Enbrel Victim > Oh My! Oh My! > I have enough Enbrel till June, will the shortage be over then? > Temple > 3 Fox Haven Way > Chelmsford, MA 01824 > My rheumatologist told me today that until Immunex gets the plant in Connecticut up and running, there will be shortages until at least October. Most people I know are having to wait a month or so for refills. I've been 2 weeks without mine and the choices that he gave me were the steroid shots every couple of weeks or switching to Remicade. Needless to say, I'm starting Remicade on Thursday. I think it will be interesting to see how many RA patients will get fed up with this bureaucratic nonsense and switch to another more obtainable option. I believe that they spent their energy trying to get FDA approval for other uses of Enbrel and they should have concentrated on making sure that the supply they were making was enough to meet the demand. Just my humble 2 cents. Kim Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.