Re: Enbrel Shortage Victim

[Guest guest]

, sorry about that. Don't want to give anyone heart trouble on top of

everything else! Hope that this title is a little less alarming.

Yes, I have made calls to my rheumy and the oncologist. The oncologist, no

budging as he has been on vacation and he is doing my rheumy a favor, yadda,

yadda, yadda, blah, blah, blah.......Talked to the rheumy and they said that

their rx rep just told them about the shortage and the reps suggestion was to

tell your patients to just decrease the dose to once a week. Yadda, yadda,

yadda, blah, blah, blah. I only have a week and a half to go and they will

keep me supplied in pain medication which doesn't replace the Enbrel. I am

sure that the rheumy has some starter kits, but I would rather leave them for

people who don't have any other options. I am just going to keep my sites on

next Thursday and keep positive thoughts flowing that the Remicade will

answer a lot of the pain problems that I am experiencing. Of course, I can't

talk about what life is going to be like around here for my family! Another

rocky roller coaster ride with Sybil at the control!!!!! LOL.

See I can be assertive if I have to!!!!!! Surprises even me sometimes!

Thanks for your concern. I still feel bad for the people who have to wait

and indefinite period of time to even start the Enbrel. I do believe that

this is another example of the pharmaceutical industry needs some drastic

regulation. Oh well, that is another topic.

Talk to you soon.....

Deb

[Guest guest]

Yes this title is less alarming LOL! Debs according to the story I posted

(subject line: enbrel shortage explanation) it seems that the FDA is more the

problem than Immunex. Why should it take 3 years for the FDA to inspect a

building that manufactures medications. I can understand that there is a lot

of rules and regulations, but for them to take 3 years sounds pretty

unreasonable.

I don't know what is worse, being on enbrel and having it work so well and

getting it yanked away or waiting to try it for the first time. I hope your

waiting isn't to unbearable.

a

Re: [ ] Enbrel Shortage Victim

, sorry about that. Don't want to give anyone heart trouble on top of

everything else! Hope that this title is a little less alarming.

Yes, I have made calls to my rheumy and the oncologist. The oncologist, no

budging as he has been on vacation and he is doing my rheumy a favor, yadda,

yadda, yadda, blah, blah, blah.......Talked to the rheumy and they said that

their rx rep just told them about the shortage and the reps suggestion was to

tell your patients to just decrease the dose to once a week. Yadda, yadda,

yadda, blah, blah, blah. I only have a week and a half to go and they will

keep me supplied in pain medication which doesn't replace the Enbrel. I am

sure that the rheumy has some starter kits, but I would rather leave them for

people who don't have any other options. I am just going to keep my sites on

next Thursday and keep positive thoughts flowing that the Remicade will

answer a lot of the pain problems that I am experiencing. Of course, I can't

talk about what life is going to be like around here for my family! Another

rocky roller coaster ride with Sybil at the control!!!!! LOL.

See I can be assertive if I have to!!!!!! Surprises even me sometimes!

Thanks for your concern. I still feel bad for the people who have to wait

and indefinite period of time to even start the Enbrel. I do believe that

this is another example of the pharmaceutical industry needs some drastic

regulation. Oh well, that is another topic.

Talk to you soon.....

Deb

[Guest guest]

My thoughts on this. For the Remicade company, this is good. Because those

waiting for their Enbrel are being put on Remicade to try and they may

discover that it works better for them and that they like the idea of once

every 8 weeks rather than the injections. I never tried Enbrel and had the

chance to, but I didn't like the idea of giving myself an injection. Not bcs

I am afraid of needles or anything like that. But bcs I am lazy. I don't

even like to set up my weekly pill thing. I can see myself putting off

giving myself the injection. Now I am glad I shied away from it and then I

got lucky and Remicade was released.

~Rainy

Re: [ ] Enbrel Shortage Victim

> Yes this title is less alarming LOL! Debs according to the story I posted

(subject line: enbrel shortage explanation) it seems that the FDA is more

the problem than Immunex. Why should it take 3 years for the FDA to inspect

a building that manufactures medications. I can understand that there is a

lot of rules and regulations, but for them to take 3 years sounds pretty

unreasonable.

> I don't know what is worse, being on enbrel and having it work so well and

getting it yanked away or waiting to try it for the first time. I hope your

waiting isn't to unbearable.

> a