RE: Just whining.....

[Guest guest]

Oh, Jenn! That's just awful. I'm going through the same thing right now,

and have been at my wit's end. They thought in the beginning I might have

Lupus, but I've since been diagnosed with RA. I did well last month, but

have had a flare the past week and a half that has made it difficult for me

to function. Yesterday I broke down in tears about 5 times. Today is the

first day I have felt somewhat better.

<<. I called my Rheumy today to beg for something since I at

least had the appt. scheduled but he said he was sorry and that he

couldn't help me. >>

I don't have bowel problems, but is that why he can't give you anything? Do

you have something for the pain? I haven't asked my rheumy for anything for

pain, but will on my next appt. I have some Vicoprofen (for headaches) that

I've used when it just got too much to handle. I can't imagine anyone

having to suffer this way without something to ease it. When I called my

rheumy about this flare, he put me on 20/15/10/5 prednisone (3 days ea).

The first two days on prednisone I felt like a new person! Then, I started

to hurt again, almost worse. He also upped my MTX to 10 mg. I started on

10 mg prednisone today.

It really is terrible that your employer can't be more compassionate and

loyal. I can't imagine what it must be like to try to work through this

pain. We have a small business and I do the accounting from home, and that

offers me a lot of flexibility. I've been very grateful for that these past

two weeks.

I will have you in my prayers today, and if you need to vent, I'll be here

to listen. I'm sorry you're having to go through this!

Hugs,

Carol in FL

[ ] Just whining.....

Hey everyone. First off, let me say what a blessing this group has

already been to me. I was so touched to see replies to my post and

to receive one email privately. It's so comforting to know that

strangers with the same crazy disease can bond in support of each

other. Second, i'm sorry that so far I've only posted to vent. I

know that it's ok, so why do we continue to feel like we should

apologize for what we are feeling?!? Okay, now on to the venting.

Things have been getting worse since I got back from the Mayo Clinic

on Good Friday. Whatever this crazy thing is (initially thought to

be lupus but now leaning towards RA) it just keeps getting worse.

I'm only on 7.5 mg of prednisone as I am scheduled to go for a

colonoscopy in 2.5 weeks to find out the cause of my irritable bowel

issues. I called my Rheumy today to beg for something since I at

least had the appt. scheduled but he said he was sorry and that he

couldn't help me. He is allowing me to up my pred. to 10mg on the

first day that I can eat following the procedure. Talk about

frustrating.

Meanwhile I can barely get in and out of bed or on and off of the

toilet. My friend has to help me in and out of my car. And to top

matters off my retail boss is having issues with the fact that I have

trouble climbing up and down on a ladder when there are other

qualified people to do it. Not that I'm perfect but I bust my butt

everyday when most days I'd rather die. Stress is my ever present

enemy it seems, as it probably is for everyone on this list. Thanks

so much for listening. Unfortunately, things, medication wise,won't

improve for several weeks. Hard to have hope at this time.

Hoping for a pain free day for everyone,

Jenn in SW FL

[Guest guest]

Hi Jenn

Venting is cleansing. Sometimes we just need to get it out. That's why I

also love this group. It is very therapeutic for me. Most of the time I

hear about what a wonderful job certain meds are doing for most people. Its

also good to hear that I am not the only one not responding to these meds. I

am not alone.

I too, worked on my feet all day long. I worked in a medical office as a

medical assistant. My office manager was wonderful. We had a great working

relationship. The problem was her boss who ran the corporation. I felt bad

because my boss was taking a lot of heat for me not being able to keep up all

the time like I once did. I also needed help walking and eventually would

sit and cry from the frustration of being in so much pain and wanting to do

things that my body wouldn't let me do anymore. Well, I was eventually fired

last may and it was one of the best things that could have happened to me at

the time. It gave me time to focus on myself and my son, who is six. It was

hard financially, but things have a way of working out. There are many

agencies to help. I was approved for SSI last month. My son is happier than

ever now that mommy is home. His dad doesn't come around anymore. I can

rest whenever the need arises, and I don't have to ask permission to go to a

dr. appointment. Things work out. I wish you comfort in your wait for the

right med coctail for you. Hang in there.

Stacey in PA