Re: i ran into a big wall!!!!

[Guest guest]

i had that hump before prednisone. i went to that atty this morning. he only

handles w/c. so he referred me to someone else. i called him and he told me

to file a complaint with the eeoc, and if it comes up for mediation to call

him them. i called the eeoc. it gives a number to file a complaint, that an

appt must be made. i call that number it says to leave a message. then says

the voice mail is full and it hangs up on you!!! i spent yesterday putting

together the past 7 years, to run into walls today. i've got 3 dr's and a

therapy appt tomorrow. (i'll need some codene after that!!!) therapy on

thursday, eye dr on friday. therapy on saturday. then tues the 30th (my last

day of insurance. i have 3 dr appts. i am going to make the rounds. get all

the scripts and samples i can before they cut me off. this is ridiculous.

kathy in il

[Guest guest]

i have just asked my friend at work to find the timely and portable laws in

illinois. my mom mentioned her and my sister would split the premium, but my

sister has bought a new car. and my parents just ran up more credit card debt

with laser eye surgery on their dog. plus i'm sure cobra would be quite

costly. i want to be able to look at some options. but unsure how much time i

have. kathy in il

[Guest guest]

<< then tues the 30th (my last day of insurance. i have 3 dr appts. i am

going to make the rounds. get all

the scripts and samples i can before they cut me off.>>

Sorry you've had such a frustrating day, Kathy. It's so hard to get in

touch with some of these agencies! Maybe you'll have to go there in person

or write to them?

Are you going to apply for COBRA continuation of your insurance? I only

bring this up because I don't have insurance right now, and I called to ask

about getting coverage and they said you have to be in remission for 5 years

in order to qualify. I'm not sure, but as long as you don't let your health

insurance lapse, I don't think they can deny coverage. I know that is just

one more thing on your plate, but it sure makes it a lot harder to access

the better medications if you don't have insurance.

Hang in there!

Hugs,

Carol in FL

Re: [ ] i ran into a big wall!!!!

i had that hump before prednisone. i went to that atty this morning. he only

handles w/c. so he referred me to someone else. i called him and he told me

to file a complaint with the eeoc, and if it comes up for mediation to call

him them. i called the eeoc. it gives a number to file a complaint, that an

appt must be made. i call that number it says to leave a message. then says

the voice mail is full and it hangs up on you!!! i spent yesterday putting

together the past 7 years, to run into walls today. i've got 3 dr's and a

therapy appt tomorrow. (i'll need some codene after that!!!) therapy on

thursday, eye dr on friday. therapy on saturday. then tues the 30th (my last

day of insurance. i have 3 dr appts. i am going to make the rounds. get all

the scripts and samples i can before they cut me off. this is ridiculous.

kathy in il

[Guest guest]

Hi Kathy,

I have just really been reading lately. Not feeling so great. I read

this note of yours and I feel so bad for you. I know how you feel, I am

involved with an insurance claim now. It is a terrible thing to go thru

and very stressful. These people who cause us so much stress and

additional pain should be in our shoes for one hour. But it doesn't work

that way. Keep calling that number and trying to get help. I agree you

should look into medicade or anything else that is out there. I know it

will be tiring doing all you have to do this week, I wish there was a way

you could relax. I hope in the following days you can get some answers.

You are in my prayers.

Lynn I guess I should sign this way now since we have a new Lynn. Lynn

(Me Mom)

----------

> From: kringlemom@...

>

> Subject: Re: [ ] i ran into a big wall!!!!

> Date: Monday, April 22, 2002 5:24 PM

>

> i had that hump before prednisone. i went to that atty this morning. he

only

> handles w/c. so he referred me to someone else. i called him and he told

me

> to file a complaint with the eeoc, and if it comes up for mediation to

call

> him them. i called the eeoc. it gives a number to file a complaint, that

an

> appt must be made. i call that number it says to leave a message. then

says

> the voice mail is full and it hangs up on you!!! i spent yesterday

putting

> together the past 7 years, to run into walls today. i've got 3 dr's and a

> therapy appt tomorrow. (i'll need some codene after that!!!) therapy on

> thursday, eye dr on friday. therapy on saturday. then tues the 30th (my

last

> day of insurance. i have 3 dr appts. i am going to make the rounds. get

all

> the scripts and samples i can before they cut me off. this is ridiculous.

> kathy in il

>

>

>

[Guest guest]

can some one tell me what it means to have a high red blood count? Is it

normal for RA? This doctor I'm seeing is not talking or doing anything.

Maybe it's time to change doctors. I am so depressed. I am tired a lot, have

pain and she doesn't seem to care.

ette

-- Re: [ ] i ran into a big wall!!!!

i had that hump before prednisone. i went to that atty this morning. he only

handles w/c. so he referred me to someone else. i called him and he told me

to file a complaint with the eeoc, and if it comes up for mediation to call

him them. i called the eeoc. it gives a number to file a complaint, that an

appt must be made. i call that number it says to leave a message. then says

the voice mail is full and it hangs up on you!!! i spent yesterday putting

together the past 7 years, to run into walls today. i've got 3 dr's and a

therapy appt tomorrow. (i'll need some codene after that!!!) therapy on

thursday, eye dr on friday. therapy on saturday. then tues the 30th (my last

day of insurance. i have 3 dr appts. i am going to make the rounds. get all

the scripts and samples i can before they cut me off. this is ridiculous.

kathy in il

[Guest guest]

oh, kathy...

i'm so sorry you are losing ins. coverage. i've been uninsured almost

2 years now...not a good situation.

good luck at your appts.

lane...in texas hill country

> i had that hump before prednisone. i went to that atty this

morning. he only

> handles w/c. so he referred me to someone else. i called him and he

told me

> to file a complaint with the eeoc, and if it comes up for mediation

to call

> him them. i called the eeoc. it gives a number to file a complaint,

that an

> appt must be made. i call that number it says to leave a message.

then says

> the voice mail is full and it hangs up on you!!! i spent yesterday

putting

> together the past 7 years, to run into walls today. i've got 3 dr's

and a

> therapy appt tomorrow. (i'll need some codene after that!!!)

therapy on

> thursday, eye dr on friday. therapy on saturday. then tues the 30th

(my last

> day of insurance. i have 3 dr appts. i am going to make the rounds.

get all

> the scripts and samples i can before they cut me off. this is

ridiculous.

> kathy in il

[Guest guest]

thanks lynn, actually today i have 4 dr appts!!! one thursday, one friday one

saturday and 3 tuesday!!! i am trying to see everyone while i can and stock

up on scripts and samples. i don't think i'll have time to be calling today.

but maybe tomorrow. i will not be able to last very long. i just may have to

go out and get a part-timer unless i qualify for unemployment. i don't think

i can cash the severence money. i think that will release them from any other

involvement. so i will have to be careful wqhen it comes. kathy in il

[Guest guest]

Hi Kathy,

Boy, have you been thru it! As far as my severance, I could not get it

UNLESS I signed the release. As far as my COBRA, in the state of Florida, I

had 60 days from my date of determination and I am still fighting with them.

I got confirmation from the post office, that they tried to deliver my check

on Friday, and they never picked it up, so it was delivered on Saturday. As

of 5:00 PM yesterday, I still had NO insurance. The formal complaint letters

go out today. My next step will be to go to the media. So far, in one

week's time, my employer/health carrier has been in the newspaper, 3 days and

not favorable publicity. So it can't be just me!!!!!!!

I wish I had some magic words or a magic wand to make all this go away, but

alas, this is the real world. I will be sending you my love and pray that

God gives you the strength to get thru these difficult days.

Gentle, tender, ex-working girl angel hugs,

Debs in FL

[Guest guest]

so if you sign the release, you are telling them you will not go after them.

what about unemployment? i am just scrambling trying to get everything

settled. my foot dr says there is nothing much he can do for me and says i am

getting worse. he sent me to a neurologist today, but with only a few days

left of coverage i really don't know what i can do. i did get to leave my

complaint message at the eeoc today!!! i left my phone # and address so we

shall see what happens. if i don't hear anything by the end of next week, i

will call again. i'm just trying to figure how to survive being $400 a month

short. kathy in il

[Guest guest]

Yep, that is right Kathy. I could not file any legal action against them.

However, I could file for unemployment if I was able to look for gainful

employment. I guess the bottom line was I couldn't get disability from my

employer AND get unemployment benefits because if I was looking for work, I

wasn't disabled. Kind of a catch 22....

Good luck,

Debs in FL

[Guest guest]

As far as I know a high red count is good. The red cells are the ones that

carry iron around and a high count would mean you have lots of iron which means

you have lots of hemoglobin which mean you have lots of oxygen. Opposite of

anemic but I can't imagine how it would be bad! Just my opinion and

understanding-no medical background.

Temple

3 Fox Haven Way

Chelmsford, MA 01824

dat2352@...

http://www.homestead.com/kuddlekrittersfarm/index.html

http://www.homestead.com/kuddlekrittersdairygoats/index.html

http://www.homestead.com/kuddlekraft/index.html

Re: [ ] i ran into a big wall!!!!

i had that hump before prednisone. i went to that atty this morning. he only

handles w/c. so he referred me to someone else. i called him and he told me

to file a complaint with the eeoc, and if it comes up for mediation to call

him them. i called the eeoc. it gives a number to file a complaint, that an

appt must be made. i call that number it says to leave a message. then says

the voice mail is full and it hangs up on you!!! i spent yesterday putting

together the past 7 years, to run into walls today. i've got 3 dr's and a

therapy appt tomorrow. (i'll need some codene after that!!!) therapy on

thursday, eye dr on friday. therapy on saturday. then tues the 30th (my last

day of insurance. i have 3 dr appts. i am going to make the rounds. get all

the scripts and samples i can before they cut me off. this is ridiculous.

kathy in il

[Guest guest]

i've been trying to rack my brains to see what to do. but i feel stuck right

now. same boat. can't work. can't afford not to. kathy in il

[Guest guest]

thanks cris, i thought i would be getting my long term disability benefits

but i was getting too close i guess. i am not on enbrel anymore. i got way

too sick on it. i have the main prescription assistance information service,

guide to prescription assistance programs. my counselor got this for me. i

have to go through that too. they are all different guidelines. how ofter and

how much. it was enough to deal with by itself. but now this and just normal

auto immune life. makes me crazy!!! kathy in il

[Guest guest]

Kathy, So sorry for all the complications.....as if the disease

weren't enough. When I became disabled (from Amtrak) Cobra was

automatic for six months because my disability was health related.

You might ask about that. In the railroad industry we had a pretty

good union so, of course, it might not be the same for you. And we

use the RRB (railroad retirement board) instead of SSA. Nonetheless,

I had to wait a whole year to get full retirement benefits for

permanent disability.Thought I'd be spending my retirement in a

mental hospital. All the stress is nearly unbearable. But hang in

there. We are all here to listen.

One thing I wanted to mention is that if you do lose your insurance,

Wyeth-Ayerst does have a program for free Enbrel. See the Enbrel web

page for the phone # and they will give you the details. I don't know

what meds you take, but most pharmaceutical companies have similar

programs for folks who have no coverage. It can't hurt to ask, right?

Please have faith that things will improve. Easy to say, I know. But

a lot of us have been there and if you can keep your sanity things do

get better. When a door closes a window opens, true. Just sometimes

you have to use a crow bar to loosen the window:-)

Hope you can relax a little and get some rest between appointments.

You are in my prayers.

Cris in Ohio

> i had that hump before prednisone. i went to that atty this

morning. he only

> handles w/c. so he referred me to someone else. i called him and he

told me

> to file a complaint with the eeoc, and if it comes up for mediation

to call

> him them. i called the eeoc. it gives a number to file a complaint,

that an

> appt must be made. i call that number it says to leave a message.

then says

> the voice mail is full and it hangs up on you!!! i spent yesterday

putting

> together the past 7 years, to run into walls today. i've got 3 dr's

and a

> therapy appt tomorrow. (i'll need some codene after that!!!)

therapy on

> thursday, eye dr on friday. therapy on saturday. then tues the 30th

(my last

> day of insurance. i have 3 dr appts. i am going to make the rounds.

get all

> the scripts and samples i can before they cut me off. this is

ridiculous.

> kathy in il

[Guest guest]

Yikes! A brick wall is right. Good luck Kathy. I hope you get this

straightened out

without any lapse in medications.

a

Re: [ ] i ran into a big wall!!!!

i had that hump before prednisone. i went to that atty this morning. he only

handles w/c. so he referred me to someone else. i called him and he told me

to file a complaint with the eeoc, and if it comes up for mediation to call

him them. i called the eeoc. it gives a number to file a complaint, that an

appt must be made. i call that number it says to leave a message. then says

the voice mail is full and it hangs up on you!!! i spent yesterday putting

together the past 7 years, to run into walls today. i've got 3 dr's and a

therapy appt tomorrow. (i'll need some codene after that!!!) therapy on

thursday, eye dr on friday. therapy on saturday. then tues the 30th (my last

day of insurance. i have 3 dr appts. i am going to make the rounds. get all

the scripts and samples i can before they cut me off. this is ridiculous.

kathy in il

[Guest guest]

Hi Lynn. Sorry you're not feeling so great. How's the eating coming? Have

you

found things that agree with you? Did you go to the new ortho yet? I keep

praying

for a happy ending to all that is going on with you. Hopefully your attorney

will

get things moving now that they located all your files.

Hope you feel better.

hugs,

a

Re: [ ] i ran into a big wall!!!!

Hi Kathy,

I have just really been reading lately. Not feeling so great. I read

this note of yours and I feel so bad for you. I know how you feel, I am

involved with an insurance claim now.

[Guest guest]

Hi a,

How are you feeling? I do have an ortho appointment for May 17. I went

with the help of my sons father in law. Actually, this Dr., is seeing me

because of this man. But he doesn't want to be called into court or a

deposition. I decided to see what he has to say and go from there. I

tried to contact my attorney about this, but when he called back I wasn't

here. So we couldn't hook up. When I eat everything tries to come back

up. I am sticking mainly with soups, fish, eggs, trying to get protein. I

think and this is probably crazy but it has been so long since I have eaten

regular meals that I don't feel like eating. I still get very sick to my

stomach but I am learning to deal with it all. All this legal stuff is not

helping me. It is very upsetting, I keep thinking what if the ss doesn't

go through what then. It is just a difficult time. Finals are coming and

I am glad school is ending. The economics class is so hard and I don't

expect to do well, so far I only have an 75. The hardest part is yet to

come, but I am giving it my best shot.

I thank you for your prayers it is what is getting me through all this.

Hope you are feeling well with our crazy weather.

Lynn (MeMom)

----------

> From: a <paula54@...>

>

> Subject: Re: [ ] i ran into a big wall!!!!

> Date: Tuesday, April 23, 2002 7:10 PM

>

> Hi Lynn. Sorry you're not feeling so great. How's the eating coming?

Have you

> found things that agree with you? Did you go to the new ortho yet? I

keep praying

> for a happy ending to all that is going on with you. Hopefully your

attorney will

> get things moving now that they located all your files.

> Hope you feel better.

> hugs,

> a

>

> Re: [ ] i ran into a big wall!!!!

>

>

> Hi Kathy,

> I have just really been reading lately. Not feeling so great. I

read

> this note of yours and I feel so bad for you. I know how you feel, I

am

> involved with an insurance claim now.

>

>

>

[Guest guest]

Hi Lynn. Been feeling pretty lousy this week. I had 3 really good weeks and

then bam,

swell city here I come. Enbrel is nothing but water again. Sometimes I wish I

could

get the stuff analyzed to see if it's a good batch. I just don't understand how

it can give

me such relief from inflammation, but every so often it does nothing. I guess I

shouldn't

complain considering I was bedridden much of the days pre-enbrel.

Can you get a referral to an ortho that will testify for you or at least give a

deposition?

It seems like a waste to go if he isn't going to do anything for you. I know

all the legal

BS isn't helping you very much. I pray that it is over soon and you can spend

more time

figuring out how to eat again. I hope by the time you are a year post surgery,

that you

will be able to eat better.

I think under the circumstances, a 75 in economics is pretty good. If you

didn't have

so much going on I'm sure your grade would be higher. Good luck with your

final.

hugs,

a

Re: [ ] i ran into a big wall!!!!

>

>

> Hi Kathy,

> I have just really been reading lately. Not feeling so great. I

read

> this note of yours and I feel so bad for you. I know how you feel, I

am

> involved with an insurance claim now.

>

>

>