Re: RE: I wanted you to see this

[Guest guest]

Kathi,

I had read of Sharon Monsky before. This news is very sad indeed. In her

short life she accomplished a great deal. What a bright, determined,

courageous, optimistic person she was.

I've never seen " For Hope " but I want to. I wonder if I can purchase a

copy online somewhere.

Thanks for passing this information on.

[ ] RE: I wanted you to see this

>

> I was wondering if you had heard of Sharon Monsky...or saw the

> movie For Hope about Bob Sagets sister Mrs.Monsky played herself in

> the movie she was so upbeat about finding a cure...and now she will

> never see one....makes you want to appreciate everything you have in

> your life and hold it a little closer...and pray that they will start

> to find some cures for the connective tissue diseases if not in our

> lifetime than in our daughters.....Kathi in OK

>

>

>

>

> This is sad news for all of us - Sharon was a real inspiration and did

> so much for Scleroderma Research

>

>

>

> and Awareness......thought you'd like this information -

> Scleroderma Research Foundation: http://www.srfcure.org/

> Sharon's Photo is here plus all the information about the Research

> Foundation

> MONSKY, Sharon (October 23, 1953- May 11, 2002)

> Sharon Monsky passed away on Saturday night, May 11. She was a victim

> of

> systemic scleroderma - a chronic disease of the connective tissues -

> and

> had lived with it for nearly twenty-one years. She is survived by her

> three children, Max, , Montana, and their father, Mark Scher.

> Her mother, Ramelle Monsky, her sister Robin Monsky, and her brother

> Henry Monsky also survive her.

> She was born on October 23, 1953 in Omaha, Nebraska. In her youth,

> Sharon was a nationally ranked figure skater and a top United States

> Olympic contender. In 1965, she was the youngest female figure skater

> to

> have ever achieved the Senior Ladies' Gold Medal Compulsory Skating

> Award.

> Sharon received her BA in Economics from Pitzer College, where she

> graduated top of her class. She then moved to San Francisco where she

> worked on the Pacific stock exchange for First Chicago and ran the

> most

> active options trading desk at the exchange. Sharon received her MBA

> from Stanford University Graduate School of Business in 1980 and was

> offered a coveted position with the renowned San Francisco management

> consulting firm, McKinsey and Company, Inc.

> She was on track to be one of the youngest women partners in

> McKinsey's

> history, when, in 1982, she was struck with scleroderma - a little

> known, widespread, and incurable disease that affects mostly women in

> their child bearing years. It was then she started investigative

> research into the disease. She found that there was little to no

> documentation on scleroderma and quickly put her business skills to

> work. In 1987, Sharon founded the Scleroderma Research Foundation -

> the

> only one of it's kind, driven on finding the cure for scleroderma by

> blending together science, research, private funding and political

> leadership. The organization exists today as the only one in the

> nation

> dedicated exclusively to finding a cure for scleroderma.

> Sharon leaves a legacy behind - Two research centers; The San

> Francisco

> Bay Area Scleroderma Research Center at UCSF and the East Coast

> Scleroderma Research Center at Hopkins in Boston. She has

> traveled

> to Washington many times, meeting with Presidents Reagan, Bush, and

> the

> Clintons to raise worldwide awareness for scleroderma, increase

> federal

> funding, and assist in every way possible to find a cure for a disease

> affecting nearly half a million Americans. She has made many friends

> in

> politics, including Senator Barbara Boxer as well as many dear friends

> in the entertainment industry.

> Sharon won numerous prestigious awards; in 1994 she won six America's

> Awards, dubbed the " Nobel Prize For Goodness " ; in 1996, the American

> Medical Association's International Health and Medical Film Award was

> presented to her in recognition of her courage and achievements as

> well

> as her part and consultation on the ABC Television Film, " For Hope " ;

> in

> 1997 she was presented the National Volunteer Advocacy Award by

> Research

> America in Washington - the United States' premier health research

> advocacy organization; and every couple years, for nearly two decades,

> as chairman of the Scleroderma Research Foundation, Sharon spearheaded

> " Cool Comedy - Hot Cuisine, " the Foundation's signature fundraising

> event. The benefit helped to raise awareness and much-needed funds to

> cure the disease which ultimately took her life.

> Thanks to Sharon's work, over 14 million dollars has been raised for

> innovative research. She has brought much to the world of science and

> increased knowledge of this previously unknown and unrecognized

> disease.

> She believed very strongly in the Foundation's slogan, " Together, we

> can

> make a difference. "

>

> Services will be held 1 PM, Tuesday, May 14, 2002, at her home: 2401

> Garden Street, Santa Barbara. She will be interred immediately

> following

> services at the Santa Barbara Cemetery, after which the family will be

> receiving guests back at the 2401 Garden Street address. All

> contributions would greatly be appreciated and can be sent to the

> Scleroderma Research Foundation, 2320 Bath St, Suite 315, Santa

> Barbara,

> CA 93105, (805)563-9133; (800)441- CURE.

> Arrangements by McDermott-Crockett Mortuary.

[Guest guest]

: Unfortunatly the movie was never released for

sale....sometimes they run it on Lifetime...usually

during National Scleroderma Awareness Month..if I

happen to see it ..Ill let you know..it really was a

good movie...although worst case scenerio...although

they did portray trying to get a diagnosis really well

and we all know the truth of that....Kathi in OK

--- <Matsumura_Clan@...> wrote:

> Kathi,

>

> I had read of Sharon Monsky before. This news is

> very sad indeed. In her

> short life she accomplished a great deal. What a

> bright, determined,

> courageous, optimistic person she was.

>

> I've never seen " For Hope " but I want to. I wonder

> if I can purchase a

> copy online somewhere.

>

> Thanks for passing this information on.

>

>

>

>

>

> [ ] RE: I wanted you to see

> this

>

>

> >

> > I was wondering if you had heard of Sharon

> Monsky...or saw the

> > movie For Hope about Bob Sagets sister Mrs.Monsky

> played herself in

> > the movie she was so upbeat about finding a

> cure...and now she will

> > never see one....makes you want to appreciate

> everything you have in

> > your life and hold it a little closer...and pray

> that they will start

> > to find some cures for the connective tissue

> diseases if not in our

> > lifetime than in our daughters.....Kathi in OK

> >

> >

> >

> >

> > This is sad news for all of us - Sharon was a real

> inspiration and did

> > so much for Scleroderma Research

> >

> >

> >

> > and Awareness......thought you'd like this

> information -

> > Scleroderma Research Foundation:

> http://www.srfcure.org/

> > Sharon's Photo is here plus all the information

> about the Research

> > Foundation

> > MONSKY, Sharon (October 23, 1953- May 11, 2002)

> > Sharon Monsky passed away on Saturday night, May

> 11. She was a victim

> > of

> > systemic scleroderma - a chronic disease of the

> connective tissues -

> > and

> > had lived with it for nearly twenty-one years. She

> is survived by her

> > three children, Max, , Montana, and their

> father, Mark Scher.

> > Her mother, Ramelle Monsky, her sister Robin

> Monsky, and her brother

> > Henry Monsky also survive her.

> > She was born on October 23, 1953 in Omaha,

> Nebraska. In her youth,

> > Sharon was a nationally ranked figure skater and a

> top United States

> > Olympic contender. In 1965, she was the youngest

> female figure skater

> > to

> > have ever achieved the Senior Ladies' Gold Medal

> Compulsory Skating

> > Award.

> > Sharon received her BA in Economics from Pitzer

> College, where she

> > graduated top of her class. She then moved to San

> Francisco where she

> > worked on the Pacific stock exchange for First

> Chicago and ran the

> > most

> > active options trading desk at the exchange.

> Sharon received her MBA

> > from Stanford University Graduate School of

> Business in 1980 and was

> > offered a coveted position with the renowned San

> Francisco management

> > consulting firm, McKinsey and Company, Inc.

> > She was on track to be one of the youngest women

> partners in

> > McKinsey's

> > history, when, in 1982, she was struck with

> scleroderma - a little

> > known, widespread, and incurable disease that

> affects mostly women in

> > their child bearing years. It was then she started

> investigative

> > research into the disease. She found that there

> was little to no

> > documentation on scleroderma and quickly put her

> business skills to

> > work. In 1987, Sharon founded the Scleroderma

> Research Foundation -

> > the

> > only one of it's kind, driven on finding the cure

> for scleroderma by

> > blending together science, research, private

> funding and political

> > leadership. The organization exists today as the

> only one in the

> > nation

> > dedicated exclusively to finding a cure for

> scleroderma.

> > Sharon leaves a legacy behind - Two research

> centers; The San

> > Francisco

> > Bay Area Scleroderma Research Center at UCSF and

> the East Coast

> > Scleroderma Research Center at Hopkins in

> Boston. She has

> > traveled

> > to Washington many times, meeting with Presidents

> Reagan, Bush, and

> > the

> > Clintons to raise worldwide awareness for

> scleroderma, increase

> > federal

> > funding, and assist in every way possible to find

> a cure for a disease

> > affecting nearly half a million Americans. She has

> made many friends

> > in

> > politics, including Senator Barbara Boxer as well

> as many dear friends

> > in the entertainment industry.

> > Sharon won numerous prestigious awards; in 1994

> she won six America's

> > Awards, dubbed the " Nobel Prize For Goodness " ; in

> 1996, the American

> > Medical Association's International Health and

> Medical Film Award was

> > presented to her in recognition of her courage and

> achievements as

> > well

> > as her part and consultation on the ABC Television

> Film, " For Hope " ;

> > in

> > 1997 she was presented the National Volunteer

> Advocacy Award by

> > Research

> > America in Washington - the United States' premier

> health research

> > advocacy organization; and every couple years, for

> nearly two decades,

> > as chairman of the Scleroderma Research

> Foundation, Sharon spearheaded

> > " Cool Comedy - Hot Cuisine, " the Foundation's

> signature fundraising

> > event. The benefit helped to raise awareness and

> much-needed funds to

> > cure the disease which ultimately took her life.

> > Thanks to Sharon's work, over 14 million dollars

> has been raised for

> > innovative research. She has brought much to the

> world of science and

> > increased knowledge of this previously unknown and

> unrecognized

> > disease.

> > She believed very strongly in the Foundation's

> slogan, " Together, we

> > can

> > make a difference. "

> >

> > Services will be held 1 PM, Tuesday, May 14, 2002,

> at her home: 2401

> > Garden Street, Santa Barbara. She will be interred

> immediately

> > following

> > services at the Santa Barbara Cemetery, after

> which the family will be

> > receiving guests back at the 2401 Garden Street

> address. All

> > contributions would greatly be appreciated and can

> be sent to the

> > Scleroderma Research Foundation, 2320 Bath St,

> Suite 315, Santa

> > Barbara,

> > CA 93105, (805)563-9133; (800)441- CURE.

> > Arrangements by McDermott-Crockett Mortuary.

>

>

__________________________________________________

[Guest guest]

I do know the story of the movie, Kathi, but I have missed it. Darn!

I've seen a couple of lupus films, one on Lifetime, and I was glued to

the screen.

Thanks for keeping an eye out for it. Although I am very aware of

scleroderma, I am usually quite unaware of awareness months for

anything. Sigh.

Thanks,

Re: [ ] RE: I wanted you to see this

> : Unfortunatly the movie was never released for

> sale....sometimes they run it on Lifetime...usually

> during National Scleroderma Awareness Month..if I

> happen to see it ..Ill let you know..it really was a

> good movie...although worst case scenerio...although

> they did portray trying to get a diagnosis really well

> and we all know the truth of that....Kathi in OK

[Guest guest]

OK youve got me lol....Kathi

--- <Matsumura_Clan@...> wrote:

> I do know the story of the movie, Kathi, but I have

> missed it. Darn!

> I've seen a couple of lupus films, one on Lifetime,

> and I was glued to

> the screen.

>

> Thanks for keeping an eye out for it. Although I am

> very aware of

> scleroderma, I am usually quite unaware of awareness

> months for

> anything. Sigh.

>

> Thanks,

>

>

>

>

>

> Re: [ ] RE: I wanted you to

> see this

>

>

> > : Unfortunatly the movie was never released

> for

> > sale....sometimes they run it on

> Lifetime...usually

> > during National Scleroderma Awareness Month..if I

> > happen to see it ..Ill let you know..it really was

> a

> > good movie...although worst case

> scenerio...although

> > they did portray trying to get a diagnosis really

> well

> > and we all know the truth of that....Kathi in OK

>

>

__________________________________________________