Just whining.....

[Guest guest]

Hey everyone. First off, let me say what a blessing this group has

already been to me. I was so touched to see replies to my post and

to receive one email privately. It's so comforting to know that

strangers with the same crazy disease can bond in support of each

other. Second, i'm sorry that so far I've only posted to vent. I

know that it's ok, so why do we continue to feel like we should

apologize for what we are feeling?!? Okay, now on to the venting.

Things have been getting worse since I got back from the Mayo Clinic

on Good Friday. Whatever this crazy thing is (initially thought to

be lupus but now leaning towards RA) it just keeps getting worse.

I'm only on 7.5 mg of prednisone as I am scheduled to go for a

colonoscopy in 2.5 weeks to find out the cause of my irritable bowel

issues. I called my Rheumy today to beg for something since I at

least had the appt. scheduled but he said he was sorry and that he

couldn't help me. He is allowing me to up my pred. to 10mg on the

first day that I can eat following the procedure. Talk about

frustrating.

Meanwhile I can barely get in and out of bed or on and off of the

toilet. My friend has to help me in and out of my car. And to top

matters off my retail boss is having issues with the fact that I have

trouble climbing up and down on a ladder when there are other

qualified people to do it. Not that I'm perfect but I bust my butt

everyday when most days I'd rather die. Stress is my ever present

enemy it seems, as it probably is for everyone on this list. Thanks

so much for listening. Unfortunately, things, medication wise,won't

improve for several weeks. Hard to have hope at this time.

Hoping for a pain free day for everyone,

Jenn in SW FL