having children

[Guest guest]

The choice to have children is a tough one. I will tell you that I made that

choice. My choice is now a beautiful (healthy) 21 year old young woman. To have

not had her in my life would have been tragic. She is the light of my life. I

asked her today " Would you have rather had a healthy mom instead of a mom with

CMT. " She said " Well, I would have rather had a sane mom.(she is also a wise

guy). then she said " Did you do the best you could in raising me? " I said yes.

She said " So, There you go. " Make your decision for yourself. You know there are

many children who so desperatly need parents to love. Adoption is also a choice.

Hope this helps.

Theyskens <st@...> wrote:

Hi everyone,

I have got a question to those of you who have cmt and have decided to

have children:

I am 28 years old and I would like to have a child. What do I have to

expect during

pregnancy. I know, Kathleen told me a few months ago that there are

women who

needed a wheelchair because of the fact they were pregnant. But I guess

this is the

worst case. What did you experience? And was it a question for you

wheter having

children or not? How old were you when you had your child? What happened

during

pregnancy, did you have pain (I mean if you had pain before)? Did you

take medicine

like anti-depressants (prozac or so)?

Thanks for your help.

Best wishes from Germany,

---------------------------------

---------------------------------

[Guest guest]

HI all,

I thought that I would share my feelings about CMT and the effects I

had on me when I had my daughter. Because of my pregnancy I was

diagnosed with the CMT, until the (age 22) I was just a klutz to

everyone that I met.

My daughter Bethany does have CMT and at times she may get mad at her

disease, but never at me. She is 9 and knows that everyone is

different. Some of us have brown hair, some of us have green eyes,

but she looks at her CMT as a difference, not a huge problem.

Because of the effects that my pregnancy had on my body was so

negative I decided not to have any more children, but I know that if

I

did have more kids I would hopefully be able to show them that they

can live a great life with CMT. My daughter calls her CMT an

inconvience, not a big deal. Even though she has to wear AFO's most

of the time, she is treated no different at school, actually the kids

that are her friends help her when kids that are not her friends

start

to pick on her.

My daughter is very involved with MDA and has been an ambassador for

2

1/2 years now. She goes and speaks to crowds as large as 400+ people

and has the confidence to do so. She wears her AFO's with pride,

since they help her walk without falling as much.

Hope this helps!!!

Dawn and Bethany