Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 , what a discouraging thing to have happen! I know what it's like to be in a grocery store and just want to get home so badly because of the pain. And I remember how hard I prayed that the rheumatologist I picked out of the phone book would be able to help me. By the way, he is! We're not there yet, but he has me on aggressive medications to prevent joint damage, and is compassionate about pain. I couldn't be happier with him. Keep in mind that her RA could be very different than yours, and it sounds like you're having a pretty severe flare right now. Maybe she didn't receive the same treatment you will because she didn't need it. I would think that if she can stand up and check groceries all day, she certainly has a mild case of RA (lucky her!). I will keep you in my prayers, and pray this is the right rheumatologist for you. Hugs, Carol in FL [ ] bad expereince vent Hi, I'm new here this week & waiting to see my rheumatologist for the 1st time on 6/13. Today was especially hard for me & I just needed to vent. I went food shopping and as I was lifting items of the shelves, I was getting in more and more pain. I was finding it hard to walk & didnt know what to do with my cart full of groceries. This is all new to me. At the register I asked the cashier to please pack the bags lightly as I was in a lot of pain. (by this point I thought I was going to be stuck standing there) She asked me what was wrong & I told her I had RA. She sd she did too & she asked who my doctor was. I told her I hadnt seen him yet but told her who I was going to. She told me he used to be her doctor and she thought he was awful! She sd he didnt do a thing for her & never helped her. I just wanted to cry right then in the store. I had been expected to wait by my pcp until Aug. to go see one, as she didnt " feel it was an emergency " So, I fired her, opened the yellow pages, got a new pcp and an appt with a rheumatologist for 2 wks from now. I was proud of myself for taking matters into my own hands & speeding up the process as I cant even walk. Now I hear this doctor is awful as I am standing there in severe pain. I already had all my records forwarded to him. I just told myself, " well that is her experience, maybe mine will be different. " I am trying to hold onto hope for today. She sd her new dr. has her on 12 pills a day & has been a great help. <sigh> By the time I drove home I was in so much pain that I couldnt walk. I had to page my husband at work & tell him there was a carload of groceries that I couldnt unload. I felt awful. I laid on my bed & I honestly didnt care if they all rotted in the heat. I couldnt do it. Thank you God, he works close by & came home and did it. I cant food shop again until I receive some treatment. And now I feel so depressed hearing about this woman's experience with the doctor that I am counting down the days to see. Thanks for listening. Blessings, C. _________________________________________________________________ Join the world's largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 My thoughts exactly Carol! I have a hard enough time getting my groceries from the shelves to the car. I can¹t imagine the pain of cashiering at a grocery store! She most definitely has to have a mild case. please try to have an open mind and form your own opinion about this doctor. I¹ve heard good and bad things with just about all the doctors I¹ve ever been to. I can¹t count how many times I¹ve walked into a grocery store, filled my cart and had to leave it because of the pain. Sure someone could help me get the groceries to the car, but if there¹s no one home to cart them in, it would do no good. I felt bad about someone having to put all the stuff back, but I didn¹t have a choice. Now that my mom is retired and is my shopping buddy, I don¹t have to worry about this. It¹s depressing since I feel that I should be carrying HER groceries, but again, it¹s not my fault. Hope your feet feel better. a On 5/29/02 3:42 PM, " Carol " <carol@...> wrote: > , what a discouraging thing to have happen! I know what it's like to > be in a grocery store and just want to get home so badly because of the > pain. And I remember how hard I prayed that the rheumatologist I picked > out of the phone book would be able to help me. By the way, he is! We're > not there yet, but he has me on aggressive medications to prevent joint > damage, and is compassionate about pain. I couldn't be happier with him. > > Keep in mind that her RA could be very different than yours, and it sounds > like you're having a pretty severe flare right now. Maybe she didn't > receive the same treatment you will because she didn't need it. I would > think that if she can stand up and check groceries all day, she certainly > has a mild case of RA (lucky her!). > > I will keep you in my prayers, and pray this is the right rheumatologist for > you. > > Hugs, > Carol in FL > > [ ] bad expereince vent > > Hi, > > I'm new here this week & waiting to see my rheumatologist for the 1st time > on 6/13. > > Today was especially hard for me & I just needed to vent. > > I went food shopping and as I was lifting items of the shelves, I was > getting in more and more pain. I was finding it hard to walk & didnt know > what to do with my cart full of groceries. This is all new to me. At the > register I asked the cashier to please pack the bags lightly as I was in a > lot of pain. (by this point I thought I was going to be stuck standing > there) She asked me what was wrong & I told her I had RA. She sd she did too > & she asked who my doctor was. I told her I hadnt seen him yet but told her > who I was going to. She told me he used to be her doctor and she thought he > was awful! She sd he didnt do a thing for her & never helped her. I just > wanted to cry right then in the store. I had been expected to wait by my pcp > until Aug. to go see one, as she didnt " feel it was an emergency " So, I > fired her, opened the yellow pages, got a new pcp and an appt with a > rheumatologist for 2 wks from now. I was proud of myself for taking matters > into my own hands & speeding up the process as I cant even walk. Now I hear > this doctor is awful as I am standing there in severe pain. > > I already had all my records forwarded to him. I just told myself, " well > that is her experience, maybe mine will be different. " I am trying to hold > onto hope for today. She sd her new dr. has her on 12 pills a day & has been > a great help. <sigh> > > By the time I drove home I was in so much pain that I couldnt walk. I had to > page my husband at work & tell him there was a carload of groceries that I > couldnt unload. I felt awful. I laid on my bed & I honestly didnt care if > they all rotted in the heat. I couldnt do it. > > Thank you God, he works close by & came home and did it. I cant food shop > again until I receive some treatment. And now I feel so depressed hearing > about this woman's experience with the doctor that I am counting down the > days to see. > > Thanks for listening. > > Blessings, > C. > > _________________________________________________________________ > Join the world's largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Dear ...I'm sorry this happened. I know how frustrating & discouraging it all can be. Remember that everybody's perception of people is different...perhaps this rheummy wasn't a good match for the grocery checker, but might be for you. I'm lighting my candle and keeping you, and all in this blessed group, in my prayers. Be sweet to yourself...you're going through enough. Love & Hugs.... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Hi , I know how you feel about a shopping trip. It has happened to me. Now they know me at the store and have someone to put my groceries in the car. That is fine as long as there is someone at home to take them out. You have to schedule your shopping trips. I would go to the doctor and judge him for myself. I wouldn't listen to a stranger. She couldn't have RA bad because as we all know you just could not do her job. Just go to the appointment, if you don't like him then look for someone else. Lynn (MeMom) klc you later wrote: > Hi, > > I'm new here this week & waiting to see my rheumatologist for the 1st time > on 6/13. > > Today was especially hard for me & I just needed to vent. > > I went food shopping and as I was lifting items of the shelves, I was > getting in more and more pain. I was finding it hard to walk & didnt know > what to do with my cart full of groceries. This is all new to me. At the > register I asked the cashier to please pack the bags lightly as I was in a > lot of pain. (by this point I thought I was going to be stuck standing > there) She asked me what was wrong & I told her I had RA. She sd she did too > & she asked who my doctor was. I told her I hadnt seen him yet but told her > who I was going to. She told me he used to be her doctor and she thought he > was awful! She sd he didnt do a thing for her & never helped her. I just > wanted to cry right then in the store. I had been expected to wait by my pcp > until Aug. to go see one, as she didnt " feel it was an emergency " So, I > fired her, opened the yellow pages, got a new pcp and an appt with a > rheumatologist for 2 wks from now. I was proud of myself for taking matters > into my own hands & speeding up the process as I cant even walk. Now I hear > this doctor is awful as I am standing there in severe pain. > > I already had all my records forwarded to him. I just told myself, " well > that is her experience, maybe mine will be different. " I am trying to hold > onto hope for today. She sd her new dr. has her on 12 pills a day & has been > a great help. <sigh> > > By the time I drove home I was in so much pain that I couldnt walk. I had to > page my husband at work & tell him there was a carload of groceries that I > couldnt unload. I felt awful. I laid on my bed & I honestly didnt care if > they all rotted in the heat. I couldnt do it. > > Thank you God, he works close by & came home and did it. I cant food shop > again until I receive some treatment. And now I feel so depressed hearing > about this woman's experience with the doctor that I am counting down the > days to see. > > Thanks for listening. > > Blessings, > C. > > _________________________________________________________________ > Join the world’s largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Thank you . I will try to keep an open mind regarding my new doctor. I needed to hear those words of encouragment! Blessings, C. >From: Ruf-Caimi <ruf-caimi@...> >Reply- > >Subject: Re: [ ] bad expereince vent >Date: Wed, 29 May 2002 17:14:54 -0400 > >Hi , > I know how you feel about a shopping trip. It has happened to me. >Now they >know me at the store and have someone to put my groceries in the car. That >is >fine as long as there is someone at home to take them out. You have to >schedule >your shopping trips. > I would go to the doctor and judge him for myself. I wouldn't listen >to a >stranger. She couldn't have RA bad because as we all know you just could >not do >her job. Just go to the appointment, if you don't like him then look for >someone else. >Lynn (MeMom) > >klc you later wrote: > > > Hi, > > > > I'm new here this week & waiting to see my rheumatologist for the 1st >time > > on 6/13. > > > > Today was especially hard for me & I just needed to vent. > > > > I went food shopping and as I was lifting items of the shelves, I was > > getting in more and more pain. I was finding it hard to walk & didnt >know > > what to do with my cart full of groceries. This is all new to me. At the > > register I asked the cashier to please pack the bags lightly as I was in >a > > lot of pain. (by this point I thought I was going to be stuck standing > > there) She asked me what was wrong & I told her I had RA. She sd she did >too > > & she asked who my doctor was. I told her I hadnt seen him yet but told >her > > who I was going to. She told me he used to be her doctor and she thought >he > > was awful! She sd he didnt do a thing for her & never helped her. I just > > wanted to cry right then in the store. I had been expected to wait by my >pcp > > until Aug. to go see one, as she didnt " feel it was an emergency " So, >I > > fired her, opened the yellow pages, got a new pcp and an appt with a > > rheumatologist for 2 wks from now. I was proud of myself for taking >matters > > into my own hands & speeding up the process as I cant even walk. Now I >hear > > this doctor is awful as I am standing there in severe pain. > > > > I already had all my records forwarded to him. I just told myself, > " well > > that is her experience, maybe mine will be different. " I am trying to >hold > > onto hope for today. She sd her new dr. has her on 12 pills a day & has >been > > a great help. <sigh> > > > > By the time I drove home I was in so much pain that I couldnt walk. I >had to > > page my husband at work & tell him there was a carload of groceries that >I > > couldnt unload. I felt awful. I laid on my bed & I honestly didnt care >if > > they all rotted in the heat. I couldnt do it. > > > > Thank you God, he works close by & came home and did it. I cant food >shop > > again until I receive some treatment. And now I feel so depressed >hearing > > about this woman's experience with the doctor that I am counting down >the > > days to see. > > > > Thanks for listening. > > > > Blessings, > > C. > > > > _________________________________________________________________ > > Join the world’s largest e-mail service with MSN Hotmail. > > http://www.hotmail.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Tess, I really admire the way that you can always be there for others even when you are having a difficult time yourself. Are you feeling any better? Blessings, C. >Dear ...I'm sorry this happened. I know how frustrating & >discouraging it all can be. > >Remember that everybody's perception of people is different...perhaps >this rheummy wasn't a good match for the grocery checker, but might be >for you. > >I'm lighting my candle and keeping you, and all in this blessed group, >in my prayers. Be sweet to yourself...you're going through enough. > >Love & Hugs.... > >Tess > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 <My thoughts exactly Carol! I have a hard enough time getting my groceries from the shelves to the car. I can¹t imagine the pain of cashiering at a grocery store! She most definitely has to have a mild case.> I dont know why, but this gave me a much needed chuckle! Thanks. < please try to have an open mind and form your own opinion about this doctor. I¹ve heard good and bad things with just about all the doctors I¹ve ever been to.> I really needed to be reminded of that - again, thanks for the support. <I can¹t count how many times I¹ve walked into a grocery store, filled my cart and had to leave it because of the pain. Sure someone could help me get the groceries to the car, but if there¹s no one home to cart them in, it would do no good. I felt bad about someone having to put all the stuff back, but I didn¹t have a choice. Now that my mom is retired and is my shopping buddy, I don¹t have to worry about this. It¹s depressing since I feel that I should be carrying HER groceries, but again, it¹s not my fault. Hope your feet feel better. a> So, I'm not alone in this experience. I have to learn now to plan ahead. Blessings, C. > > > >On 5/29/02 3:42 PM, " Carol " <carol@...> wrote: > > > , what a discouraging thing to have happen! I know what it's like >to > > be in a grocery store and just want to get home so badly because of the > > pain. And I remember how hard I prayed that the rheumatologist I >picked > > out of the phone book would be able to help me. By the way, he is! >We're > > not there yet, but he has me on aggressive medications to prevent joint > > damage, and is compassionate about pain. I couldn't be happier with >him. > > > > Keep in mind that her RA could be very different than yours, and it >sounds > > like you're having a pretty severe flare right now. Maybe she didn't > > receive the same treatment you will because she didn't need it. I would > > think that if she can stand up and check groceries all day, she >certainly > > has a mild case of RA (lucky her!). > > > > I will keep you in my prayers, and pray this is the right rheumatologist >for > > you. > > > > Hugs, > > Carol in FL > > > > [ ] bad expereince vent > > > > Hi, > > > > I'm new here this week & waiting to see my rheumatologist for the 1st >time > > on 6/13. > > > > Today was especially hard for me & I just needed to vent. > > > > I went food shopping and as I was lifting items of the shelves, I was > > getting in more and more pain. I was finding it hard to walk & didnt >know > > what to do with my cart full of groceries. This is all new to me. At the > > register I asked the cashier to please pack the bags lightly as I was in >a > > lot of pain. (by this point I thought I was going to be stuck standing > > there) She asked me what was wrong & I told her I had RA. She sd she did >too > > & she asked who my doctor was. I told her I hadnt seen him yet but told >her > > who I was going to. She told me he used to be her doctor and she thought >he > > was awful! She sd he didnt do a thing for her & never helped her. I just > > wanted to cry right then in the store. I had been expected to wait by my >pcp > > until Aug. to go see one, as she didnt " feel it was an emergency " So, >I > > fired her, opened the yellow pages, got a new pcp and an appt with a > > rheumatologist for 2 wks from now. I was proud of myself for taking >matters > > into my own hands & speeding up the process as I cant even walk. Now I >hear > > this doctor is awful as I am standing there in severe pain. > > > > I already had all my records forwarded to him. I just told myself, > " well > > that is her experience, maybe mine will be different. " I am trying to >hold > > onto hope for today. She sd her new dr. has her on 12 pills a day & has >been > > a great help. <sigh> > > > > By the time I drove home I was in so much pain that I couldnt walk. I >had to > > page my husband at work & tell him there was a carload of groceries that >I > > couldnt unload. I felt awful. I laid on my bed & I honestly didnt care >if > > they all rotted in the heat. I couldnt do it. > > > > Thank you God, he works close by & came home and did it. I cant food >shop > > again until I receive some treatment. And now I feel so depressed >hearing > > about this woman's experience with the doctor that I am counting down >the > > days to see. > > > > Thanks for listening. > > > > Blessings, > > C. > > > > _________________________________________________________________ > > Join the world's largest e-mail service with MSN Hotmail. > > http://www.hotmail.com > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Thank you Carol - I am SO filled with hope that you picked your dr. too out of the phone book & it has been a positive experience!! I was beginning to feel like a fool for doing so - but I was desperate to get in. This makes me feel much more hopeful! Blessings, C. >, what a discouraging thing to have happen! I know what it's like to >be in a grocery store and just want to get home so badly because of the >pain. And I remember how hard I prayed that the rheumatologist I picked >out of the phone book would be able to help me. By the way, he is! We're >not there yet, but he has me on aggressive medications to prevent joint >damage, and is compassionate about pain. I couldn't be happier with him. > >Keep in mind that her RA could be very different than yours, and it sounds >like you're having a pretty severe flare right now. Maybe she didn't >receive the same treatment you will because she didn't need it. I would >think that if she can stand up and check groceries all day, she certainly >has a mild case of RA (lucky her!). > >I will keep you in my prayers, and pray this is the right rheumatologist >for >you. > >Hugs, >Carol in FL _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Dear ...whatever is going on with me is like being on a merry-go-round...for a few hours I'm so-so, then I hurt like h-e-double hockey sticks, have a fever & IBS. It really is like the " sun flare " cancelled out my recent Remicade treatment. I went on a 1 week mini-dose of prednisone...it didn't make a lot of difference. But with the surgery coming up on the 11th of June, I have to be off it & mtx til after. Thank you for your sweet comments. I do feel incredibly blessed by being able to share this difficult journey with you all. Hugs of Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 In a message dated 5/29/02 2:44:00 PM Central Daylight Time, carol@... writes: > , what a discouraging thing to have happen! I know what it's like to > be in a grocery store and just want to get home so badly because of the > pain. And I remember how hard I prayed that the rheumatologist I picked > out of the phone book would be able to help me. By the way, he is! We're > not there yet, but he has me on aggressive medications to prevent joint > damage, and is compassionate about pain. I couldn't be happier with him. > > Keep in mind that her RA could be very different than yours, and it sounds > like you're having a pretty severe flare right now. Maybe she didn't > receive the same treatment you will because she didn't need it. I would > think that if she can stand up and check groceries all day, she certainly > has a mild case of RA (lucky her!). > > I will keep you in my prayers, and pray this is the right rheumatologist > for > you. > > Hugs, > Carol in FL > > , I agree with Carol's opinion. If the clerk can stand up all day, great for her. RA (and most any other disease) affects everyone differently. Keep your spirits up as much as you can. Some people don't get along with their doctor, dentist, etc...and then try to scare everyone else off with their bad experience. This doctor may be perfect for you. Alice in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Thank you Alice! I did get some encouraging news since that grocery lady scared me off about my upcoming appt. with my new doctor! I was talking to the medical secretary on the phone at the hospital that I WAS suppossed to go see their rheumatologist (but took matters into my own hands when they wanted me to wait until Aug) Anyway - when I was on the phone with her I was telling her about how my podiatrist feels I have RA & is sending me to a specialist,etc. She asked who I was gong to & when I told her she said, " oh, I have lunch once a month with a woman who works here at the hosptial who has RA. She is young & is really in bad shape. She was seeing the heumatologist here at the hospital (who I WOULD have seen) but she wasnt comfortable that he wass helping her so __________ (who I am going to see in June) was recommneded to her by someone else & now she sees him & LOVES HIM!! " This made me feel so much better!! So there are two stories - completely opposite. I feel MUCH better about going now. In fact the medical secretary couldnt believe I just picked him out of the phone book, cause being in the medical field she sd he is highly recommended! thanks for your support! C. >From: davwhiskers@... >Reply- > >Subject: Re: [ ] bad expereince vent >Date: Mon, 3 Jun 2002 14:01:25 EDT > >In a message dated 5/29/02 2:44:00 PM Central Daylight Time, >carol@... writes: > > > > , what a discouraging thing to have happen! I know what it's like >to > > be in a grocery store and just want to get home so badly because of the > > pain. And I remember how hard I prayed that the rheumatologist I >picked > > out of the phone book would be able to help me. By the way, he is! >We're > > not there yet, but he has me on aggressive medications to prevent joint > > damage, and is compassionate about pain. I couldn't be happier with >him. > > > > Keep in mind that her RA could be very different than yours, and it >sounds > > like you're having a pretty severe flare right now. Maybe she didn't > > receive the same treatment you will because she didn't need it. I would > > think that if she can stand up and check groceries all day, she >certainly > > has a mild case of RA (lucky her!). > > > > I will keep you in my prayers, and pray this is the right rheumatologist > > for > > you. > > > > Hugs, > > Carol in FL > > > > > >, I agree with Carol's opinion. If the clerk can stand up all day, >great for her. RA (and most any other disease) affects everyone >differently. > Keep your spirits up as much as you can. Some people don't get along >with >their doctor, dentist, etc...and then try to scare everyone else off with >their bad experience. This doctor may be perfect for you. Alice in Texas > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi , That's GREAT news! I knew there was nothing to worry about. :-) Hugs, Carol Re: [ ] bad expereince vent >Date: Mon, 3 Jun 2002 14:01:25 EDT > >In a message dated 5/29/02 2:44:00 PM Central Daylight Time, >carol@... writes: > > > > , what a discouraging thing to have happen! I know what it's like >to > > be in a grocery store and just want to get home so badly because of the > > pain. And I remember how hard I prayed that the rheumatologist I >picked > > out of the phone book would be able to help me. By the way, he is! >We're > > not there yet, but he has me on aggressive medications to prevent joint > > damage, and is compassionate about pain. I couldn't be happier with >him. > > > > Keep in mind that her RA could be very different than yours, and it >sounds > > like you're having a pretty severe flare right now. Maybe she didn't > > receive the same treatment you will because she didn't need it. I would > > think that if she can stand up and check groceries all day, she >certainly > > has a mild case of RA (lucky her!). > > > > I will keep you in my prayers, and pray this is the right rheumatologist > > for > > you. > > > > Hugs, > > Carol in FL > > > > > >, I agree with Carol's opinion. If the clerk can stand up all day, >great for her. RA (and most any other disease) affects everyone >differently. > Keep your spirits up as much as you can. Some people don't get along >with >their doctor, dentist, etc...and then try to scare everyone else off with >their bad experience. This doctor may be perfect for you. Alice in Texas > > > Quote Link to comment Share on other sites More sharing options...
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