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, what a discouraging thing to have happen! I know what it's like to

be in a grocery store and just want to get home so badly because of the

pain. And I remember how hard I prayed that the rheumatologist I picked

out of the phone book would be able to help me. By the way, he is! We're

not there yet, but he has me on aggressive medications to prevent joint

damage, and is compassionate about pain. I couldn't be happier with him.

Keep in mind that her RA could be very different than yours, and it sounds

like you're having a pretty severe flare right now. Maybe she didn't

receive the same treatment you will because she didn't need it. I would

think that if she can stand up and check groceries all day, she certainly

has a mild case of RA (lucky her!).

I will keep you in my prayers, and pray this is the right rheumatologist for

you.

Hugs,

Carol in FL

[ ] bad expereince vent

Hi,

I'm new here this week & waiting to see my rheumatologist for the 1st time

on 6/13.

Today was especially hard for me & I just needed to vent.

I went food shopping and as I was lifting items of the shelves, I was

getting in more and more pain. I was finding it hard to walk & didnt know

what to do with my cart full of groceries. This is all new to me. At the

register I asked the cashier to please pack the bags lightly as I was in a

lot of pain. (by this point I thought I was going to be stuck standing

there) She asked me what was wrong & I told her I had RA. She sd she did too

& she asked who my doctor was. I told her I hadnt seen him yet but told her

who I was going to. She told me he used to be her doctor and she thought he

was awful! She sd he didnt do a thing for her & never helped her. I just

wanted to cry right then in the store. I had been expected to wait by my pcp

until Aug. to go see one, as she didnt " feel it was an emergency " So, I

fired her, opened the yellow pages, got a new pcp and an appt with a

rheumatologist for 2 wks from now. I was proud of myself for taking matters

into my own hands & speeding up the process as I cant even walk. Now I hear

this doctor is awful as I am standing there in severe pain.

I already had all my records forwarded to him. I just told myself, " well

that is her experience, maybe mine will be different. " I am trying to hold

onto hope for today. She sd her new dr. has her on 12 pills a day & has been

a great help. <sigh>

By the time I drove home I was in so much pain that I couldnt walk. I had to

page my husband at work & tell him there was a carload of groceries that I

couldnt unload. I felt awful. I laid on my bed & I honestly didnt care if

they all rotted in the heat. I couldnt do it.

Thank you God, he works close by & came home and did it. I cant food shop

again until I receive some treatment. And now I feel so depressed hearing

about this woman's experience with the doctor that I am counting down the

days to see.

Thanks for listening.

Blessings,

C.

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My thoughts exactly Carol! I have a hard enough time getting my groceries

from the shelves to the car. I can¹t imagine the pain of cashiering at a

grocery store! She most definitely has to have a mild case.

please try to have an open mind and form your own opinion about this

doctor. I¹ve heard good and bad things with just about all the doctors I¹ve

ever been to.

I can¹t count how many times I¹ve walked into a grocery store, filled my

cart and had to leave it because of the pain. Sure someone could help me

get the groceries to the car, but if there¹s no one home to cart them in, it

would do no good. I felt bad about someone having to put all the stuff

back, but I didn¹t have a choice. Now that my mom is retired and is my

shopping buddy, I don¹t have to worry about this. It¹s depressing since I

feel that I should be carrying HER groceries, but again, it¹s not my fault.

Hope your feet feel better.

a

On 5/29/02 3:42 PM, " Carol " <carol@...> wrote:

> , what a discouraging thing to have happen! I know what it's like to

> be in a grocery store and just want to get home so badly because of the

> pain. And I remember how hard I prayed that the rheumatologist I picked

> out of the phone book would be able to help me. By the way, he is! We're

> not there yet, but he has me on aggressive medications to prevent joint

> damage, and is compassionate about pain. I couldn't be happier with him.

>

> Keep in mind that her RA could be very different than yours, and it sounds

> like you're having a pretty severe flare right now. Maybe she didn't

> receive the same treatment you will because she didn't need it. I would

> think that if she can stand up and check groceries all day, she certainly

> has a mild case of RA (lucky her!).

>

> I will keep you in my prayers, and pray this is the right rheumatologist for

> you.

>

> Hugs,

> Carol in FL

>

> [ ] bad expereince vent

>

> Hi,

>

> I'm new here this week & waiting to see my rheumatologist for the 1st time

> on 6/13.

>

> Today was especially hard for me & I just needed to vent.

>

> I went food shopping and as I was lifting items of the shelves, I was

> getting in more and more pain. I was finding it hard to walk & didnt know

> what to do with my cart full of groceries. This is all new to me. At the

> register I asked the cashier to please pack the bags lightly as I was in a

> lot of pain. (by this point I thought I was going to be stuck standing

> there) She asked me what was wrong & I told her I had RA. She sd she did too

> & she asked who my doctor was. I told her I hadnt seen him yet but told her

> who I was going to. She told me he used to be her doctor and she thought he

> was awful! She sd he didnt do a thing for her & never helped her. I just

> wanted to cry right then in the store. I had been expected to wait by my pcp

> until Aug. to go see one, as she didnt " feel it was an emergency " So, I

> fired her, opened the yellow pages, got a new pcp and an appt with a

> rheumatologist for 2 wks from now. I was proud of myself for taking matters

> into my own hands & speeding up the process as I cant even walk. Now I hear

> this doctor is awful as I am standing there in severe pain.

>

> I already had all my records forwarded to him. I just told myself, " well

> that is her experience, maybe mine will be different. " I am trying to hold

> onto hope for today. She sd her new dr. has her on 12 pills a day & has been

> a great help. <sigh>

>

> By the time I drove home I was in so much pain that I couldnt walk. I had to

> page my husband at work & tell him there was a carload of groceries that I

> couldnt unload. I felt awful. I laid on my bed & I honestly didnt care if

> they all rotted in the heat. I couldnt do it.

>

> Thank you God, he works close by & came home and did it. I cant food shop

> again until I receive some treatment. And now I feel so depressed hearing

> about this woman's experience with the doctor that I am counting down the

> days to see.

>

> Thanks for listening.

>

> Blessings,

> C.

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

>

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Dear ...I'm sorry this happened. I know how frustrating &

discouraging it all can be.

Remember that everybody's perception of people is different...perhaps

this rheummy wasn't a good match for the grocery checker, but might be

for you.

I'm lighting my candle and keeping you, and all in this blessed group,

in my prayers. Be sweet to yourself...you're going through enough.

Love & Hugs....

Tess

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Hi ,

I know how you feel about a shopping trip. It has happened to me. Now they

know me at the store and have someone to put my groceries in the car. That is

fine as long as there is someone at home to take them out. You have to schedule

your shopping trips.

I would go to the doctor and judge him for myself. I wouldn't listen to a

stranger. She couldn't have RA bad because as we all know you just could not do

her job. Just go to the appointment, if you don't like him then look for

someone else.

Lynn (MeMom)

klc you later wrote:

> Hi,

>

> I'm new here this week & waiting to see my rheumatologist for the 1st time

> on 6/13.

>

> Today was especially hard for me & I just needed to vent.

>

> I went food shopping and as I was lifting items of the shelves, I was

> getting in more and more pain. I was finding it hard to walk & didnt know

> what to do with my cart full of groceries. This is all new to me. At the

> register I asked the cashier to please pack the bags lightly as I was in a

> lot of pain. (by this point I thought I was going to be stuck standing

> there) She asked me what was wrong & I told her I had RA. She sd she did too

> & she asked who my doctor was. I told her I hadnt seen him yet but told her

> who I was going to. She told me he used to be her doctor and she thought he

> was awful! She sd he didnt do a thing for her & never helped her. I just

> wanted to cry right then in the store. I had been expected to wait by my pcp

> until Aug. to go see one, as she didnt " feel it was an emergency " So, I

> fired her, opened the yellow pages, got a new pcp and an appt with a

> rheumatologist for 2 wks from now. I was proud of myself for taking matters

> into my own hands & speeding up the process as I cant even walk. Now I hear

> this doctor is awful as I am standing there in severe pain.

>

> I already had all my records forwarded to him. I just told myself, " well

> that is her experience, maybe mine will be different. " I am trying to hold

> onto hope for today. She sd her new dr. has her on 12 pills a day & has been

> a great help. <sigh>

>

> By the time I drove home I was in so much pain that I couldnt walk. I had to

> page my husband at work & tell him there was a carload of groceries that I

> couldnt unload. I felt awful. I laid on my bed & I honestly didnt care if

> they all rotted in the heat. I couldnt do it.

>

> Thank you God, he works close by & came home and did it. I cant food shop

> again until I receive some treatment. And now I feel so depressed hearing

> about this woman's experience with the doctor that I am counting down the

> days to see.

>

> Thanks for listening.

>

> Blessings,

> C.

>

> _________________________________________________________________

> Join the world’s largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

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Thank you . I will try to keep an open mind regarding my new doctor.

I needed to hear those words of encouragment!

Blessings,

C.

>From: Ruf-Caimi <ruf-caimi@...>

>Reply-

>

>Subject: Re: [ ] bad expereince vent

>Date: Wed, 29 May 2002 17:14:54 -0400

>

>Hi ,

> I know how you feel about a shopping trip. It has happened to me.

>Now they

>know me at the store and have someone to put my groceries in the car. That

>is

>fine as long as there is someone at home to take them out. You have to

>schedule

>your shopping trips.

> I would go to the doctor and judge him for myself. I wouldn't listen

>to a

>stranger. She couldn't have RA bad because as we all know you just could

>not do

>her job. Just go to the appointment, if you don't like him then look for

>someone else.

>Lynn (MeMom)

>

>klc you later wrote:

>

> > Hi,

> >

> > I'm new here this week & waiting to see my rheumatologist for the 1st

>time

> > on 6/13.

> >

> > Today was especially hard for me & I just needed to vent.

> >

> > I went food shopping and as I was lifting items of the shelves, I was

> > getting in more and more pain. I was finding it hard to walk & didnt

>know

> > what to do with my cart full of groceries. This is all new to me. At the

> > register I asked the cashier to please pack the bags lightly as I was in

>a

> > lot of pain. (by this point I thought I was going to be stuck standing

> > there) She asked me what was wrong & I told her I had RA. She sd she did

>too

> > & she asked who my doctor was. I told her I hadnt seen him yet but told

>her

> > who I was going to. She told me he used to be her doctor and she thought

>he

> > was awful! She sd he didnt do a thing for her & never helped her. I just

> > wanted to cry right then in the store. I had been expected to wait by my

>pcp

> > until Aug. to go see one, as she didnt " feel it was an emergency " So,

>I

> > fired her, opened the yellow pages, got a new pcp and an appt with a

> > rheumatologist for 2 wks from now. I was proud of myself for taking

>matters

> > into my own hands & speeding up the process as I cant even walk. Now I

>hear

> > this doctor is awful as I am standing there in severe pain.

> >

> > I already had all my records forwarded to him. I just told myself,

> " well

> > that is her experience, maybe mine will be different. " I am trying to

>hold

> > onto hope for today. She sd her new dr. has her on 12 pills a day & has

>been

> > a great help. <sigh>

> >

> > By the time I drove home I was in so much pain that I couldnt walk. I

>had to

> > page my husband at work & tell him there was a carload of groceries that

>I

> > couldnt unload. I felt awful. I laid on my bed & I honestly didnt care

>if

> > they all rotted in the heat. I couldnt do it.

> >

> > Thank you God, he works close by & came home and did it. I cant food

>shop

> > again until I receive some treatment. And now I feel so depressed

>hearing

> > about this woman's experience with the doctor that I am counting down

>the

> > days to see.

> >

> > Thanks for listening.

> >

> > Blessings,

> > C.

> >

> > _________________________________________________________________

> > Join the world’s largest e-mail service with MSN Hotmail.

> > http://www.hotmail.com

> >

> >

> >

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Tess,

I really admire the way that you can always be there for others even when

you are having a difficult time yourself.

Are you feeling any better?

Blessings,

C.

>Dear ...I'm sorry this happened. I know how frustrating &

>discouraging it all can be.

>

>Remember that everybody's perception of people is different...perhaps

>this rheummy wasn't a good match for the grocery checker, but might be

>for you.

>

>I'm lighting my candle and keeping you, and all in this blessed group,

>in my prayers. Be sweet to yourself...you're going through enough.

>

>Love & Hugs....

>

>Tess

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

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<My thoughts exactly Carol! I have a hard enough time getting my groceries

from the shelves to the car. I can¹t imagine the pain of cashiering at a

grocery store! She most definitely has to have a mild case.>

I dont know why, but this gave me a much needed chuckle! Thanks.

< please try to have an open mind and form your own opinion about this

doctor. I¹ve heard good and bad things with just about all the doctors I¹ve

ever been to.>

I really needed to be reminded of that - again, thanks for the support.

<I can¹t count how many times I¹ve walked into a grocery store, filled my

cart and had to leave it because of the pain. Sure someone could help me

get the groceries to the car, but if there¹s no one home to cart them in, it

would do no good. I felt bad about someone having to put all the stuff

back, but I didn¹t have a choice. Now that my mom is retired and is my

shopping buddy, I don¹t have to worry about this. It¹s depressing since I

feel that I should be carrying HER groceries, but again, it¹s not my fault.

Hope your feet feel better.

a>

So, I'm not alone in this experience. I have to learn now to plan ahead.

Blessings,

C.

>

>

>

>On 5/29/02 3:42 PM, " Carol " <carol@...> wrote:

>

> > , what a discouraging thing to have happen! I know what it's like

>to

> > be in a grocery store and just want to get home so badly because of the

> > pain. And I remember how hard I prayed that the rheumatologist I

>picked

> > out of the phone book would be able to help me. By the way, he is!

>We're

> > not there yet, but he has me on aggressive medications to prevent joint

> > damage, and is compassionate about pain. I couldn't be happier with

>him.

> >

> > Keep in mind that her RA could be very different than yours, and it

>sounds

> > like you're having a pretty severe flare right now. Maybe she didn't

> > receive the same treatment you will because she didn't need it. I would

> > think that if she can stand up and check groceries all day, she

>certainly

> > has a mild case of RA (lucky her!).

> >

> > I will keep you in my prayers, and pray this is the right rheumatologist

>for

> > you.

> >

> > Hugs,

> > Carol in FL

> >

> > [ ] bad expereince vent

> >

> > Hi,

> >

> > I'm new here this week & waiting to see my rheumatologist for the 1st

>time

> > on 6/13.

> >

> > Today was especially hard for me & I just needed to vent.

> >

> > I went food shopping and as I was lifting items of the shelves, I was

> > getting in more and more pain. I was finding it hard to walk & didnt

>know

> > what to do with my cart full of groceries. This is all new to me. At the

> > register I asked the cashier to please pack the bags lightly as I was in

>a

> > lot of pain. (by this point I thought I was going to be stuck standing

> > there) She asked me what was wrong & I told her I had RA. She sd she did

>too

> > & she asked who my doctor was. I told her I hadnt seen him yet but told

>her

> > who I was going to. She told me he used to be her doctor and she thought

>he

> > was awful! She sd he didnt do a thing for her & never helped her. I just

> > wanted to cry right then in the store. I had been expected to wait by my

>pcp

> > until Aug. to go see one, as she didnt " feel it was an emergency " So,

>I

> > fired her, opened the yellow pages, got a new pcp and an appt with a

> > rheumatologist for 2 wks from now. I was proud of myself for taking

>matters

> > into my own hands & speeding up the process as I cant even walk. Now I

>hear

> > this doctor is awful as I am standing there in severe pain.

> >

> > I already had all my records forwarded to him. I just told myself,

> " well

> > that is her experience, maybe mine will be different. " I am trying to

>hold

> > onto hope for today. She sd her new dr. has her on 12 pills a day & has

>been

> > a great help. <sigh>

> >

> > By the time I drove home I was in so much pain that I couldnt walk. I

>had to

> > page my husband at work & tell him there was a carload of groceries that

>I

> > couldnt unload. I felt awful. I laid on my bed & I honestly didnt care

>if

> > they all rotted in the heat. I couldnt do it.

> >

> > Thank you God, he works close by & came home and did it. I cant food

>shop

> > again until I receive some treatment. And now I feel so depressed

>hearing

> > about this woman's experience with the doctor that I am counting down

>the

> > days to see.

> >

> > Thanks for listening.

> >

> > Blessings,

> > C.

> >

> > _________________________________________________________________

> > Join the world's largest e-mail service with MSN Hotmail.

> > http://www.hotmail.com

> >

> >

> >

> >

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Thank you Carol - I am SO filled with hope that you picked your dr. too out

of the phone book & it has been a positive experience!! I was beginning to

feel like a fool for doing so - but I was desperate to get in. This makes me

feel much more hopeful! ;)

Blessings,

C.

>, what a discouraging thing to have happen! I know what it's like to

>be in a grocery store and just want to get home so badly because of the

>pain. And I remember how hard I prayed that the rheumatologist I picked

>out of the phone book would be able to help me. By the way, he is! We're

>not there yet, but he has me on aggressive medications to prevent joint

>damage, and is compassionate about pain. I couldn't be happier with him.

>

>Keep in mind that her RA could be very different than yours, and it sounds

>like you're having a pretty severe flare right now. Maybe she didn't

>receive the same treatment you will because she didn't need it. I would

>think that if she can stand up and check groceries all day, she certainly

>has a mild case of RA (lucky her!).

>

>I will keep you in my prayers, and pray this is the right rheumatologist

>for

>you.

>

>Hugs,

>Carol in FL

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Dear ...whatever is going on with me is like being on a

merry-go-round...for a few hours I'm so-so, then I hurt like h-e-double

hockey sticks, have a fever & IBS. It really is like the " sun flare "

cancelled out my recent Remicade treatment. I went on a 1 week

mini-dose of prednisone...it didn't make a lot of difference. But with

the surgery coming up on the 11th of June, I have to be off it & mtx til

after.

Thank you for your sweet comments. I do feel incredibly blessed by

being able to share this difficult journey with you all.

Hugs of Hope...

Tess

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In a message dated 5/29/02 2:44:00 PM Central Daylight Time,

carol@... writes:

> , what a discouraging thing to have happen! I know what it's like to

> be in a grocery store and just want to get home so badly because of the

> pain. And I remember how hard I prayed that the rheumatologist I picked

> out of the phone book would be able to help me. By the way, he is! We're

> not there yet, but he has me on aggressive medications to prevent joint

> damage, and is compassionate about pain. I couldn't be happier with him.

>

> Keep in mind that her RA could be very different than yours, and it sounds

> like you're having a pretty severe flare right now. Maybe she didn't

> receive the same treatment you will because she didn't need it. I would

> think that if she can stand up and check groceries all day, she certainly

> has a mild case of RA (lucky her!).

>

> I will keep you in my prayers, and pray this is the right rheumatologist

> for

> you.

>

> Hugs,

> Carol in FL

>

>

, I agree with Carol's opinion. If the clerk can stand up all day,

great for her. RA (and most any other disease) affects everyone differently.

Keep your spirits up as much as you can. Some people don't get along with

their doctor, dentist, etc...and then try to scare everyone else off with

their bad experience. This doctor may be perfect for you. Alice in Texas

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Thank you Alice!

I did get some encouraging news since that grocery lady scared me off about

my upcoming appt. with my new doctor! I was talking to the medical

secretary on the phone at the hospital that I WAS suppossed to go see their

rheumatologist (but took matters into my own hands when they wanted me to

wait until Aug)

Anyway - when I was on the phone with her I was telling her about how my

podiatrist feels I have RA & is sending me to a specialist,etc. She asked

who I was gong to & when I told her she said, " oh, I have lunch once a month

with a woman who works here at the hosptial who has RA. She is young & is

really in bad shape. She was seeing the heumatologist here at the hospital

(who I WOULD have seen) but she wasnt comfortable that he wass helping her

so __________ (who I am going to see in June) was recommneded to her by

someone else & now she sees him & LOVES HIM!! "

This made me feel so much better!! So there are two stories - completely

opposite. I feel MUCH better about going now. In fact the medical secretary

couldnt believe I just picked him out of the phone book, cause being in the

medical field she sd he is highly recommended!

thanks for your support!

C.

>From: davwhiskers@...

>Reply-

>

>Subject: Re: [ ] bad expereince vent

>Date: Mon, 3 Jun 2002 14:01:25 EDT

>

>In a message dated 5/29/02 2:44:00 PM Central Daylight Time,

>carol@... writes:

>

>

> > , what a discouraging thing to have happen! I know what it's like

>to

> > be in a grocery store and just want to get home so badly because of the

> > pain. And I remember how hard I prayed that the rheumatologist I

>picked

> > out of the phone book would be able to help me. By the way, he is!

>We're

> > not there yet, but he has me on aggressive medications to prevent joint

> > damage, and is compassionate about pain. I couldn't be happier with

>him.

> >

> > Keep in mind that her RA could be very different than yours, and it

>sounds

> > like you're having a pretty severe flare right now. Maybe she didn't

> > receive the same treatment you will because she didn't need it. I would

> > think that if she can stand up and check groceries all day, she

>certainly

> > has a mild case of RA (lucky her!).

> >

> > I will keep you in my prayers, and pray this is the right rheumatologist

> > for

> > you.

> >

> > Hugs,

> > Carol in FL

> >

> >

>

>, I agree with Carol's opinion. If the clerk can stand up all day,

>great for her. RA (and most any other disease) affects everyone

>differently.

> Keep your spirits up as much as you can. Some people don't get along

>with

>their doctor, dentist, etc...and then try to scare everyone else off with

>their bad experience. This doctor may be perfect for you. Alice in Texas

>

>

>

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Hi ,

That's GREAT news! I knew there was nothing to worry about. :-)

Hugs,

Carol

Re: [ ] bad expereince vent

>Date: Mon, 3 Jun 2002 14:01:25 EDT

>

>In a message dated 5/29/02 2:44:00 PM Central Daylight Time,

>carol@... writes:

>

>

> > , what a discouraging thing to have happen! I know what it's like

>to

> > be in a grocery store and just want to get home so badly because of the

> > pain. And I remember how hard I prayed that the rheumatologist I

>picked

> > out of the phone book would be able to help me. By the way, he is!

>We're

> > not there yet, but he has me on aggressive medications to prevent joint

> > damage, and is compassionate about pain. I couldn't be happier with

>him.

> >

> > Keep in mind that her RA could be very different than yours, and it

>sounds

> > like you're having a pretty severe flare right now. Maybe she didn't

> > receive the same treatment you will because she didn't need it. I would

> > think that if she can stand up and check groceries all day, she

>certainly

> > has a mild case of RA (lucky her!).

> >

> > I will keep you in my prayers, and pray this is the right rheumatologist

> > for

> > you.

> >

> > Hugs,

> > Carol in FL

> >

> >

>

>, I agree with Carol's opinion. If the clerk can stand up all day,

>great for her. RA (and most any other disease) affects everyone

>differently.

> Keep your spirits up as much as you can. Some people don't get along

>with

>their doctor, dentist, etc...and then try to scare everyone else off with

>their bad experience. This doctor may be perfect for you. Alice in Texas

>

>

>

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