Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Thank you so much , that was very kind of you. I wonder sometimes if the stress may have escalated my arthritis. It really didn't hit me hard until I stopped worrying about my hubby so much and let go of the fear and let him be " ok " . Then I kind of fell apart physically. Debbie Mc -- [ ] Debbie Mc I'm so sorry to read of your husband's brain injury, Debbie. Sounds like he is doing very well now, but I'm sure the whole experience must have been very difficult for you both. Best of luck to you! Re: [ ] Judy in IN / Debbie Mc > I'm glad he's doing well. Here is the link for the TBINET groups. The main > page lists the several brain injury groups and gives an explanation of them. > The main group, Care-TBI is the most active, and they added more groups for > specific needs like for spouses, parents, and for high-functioning brain > injured like our husbands. http://www.tbinet.org/support1.htm#care When > you go down to the menu on the page and click on a group link, it will take > you down further on the page and give instructions for joining. > > Good luck Judy. If you need anything, I'm here. Remember, everyone's > injury and recovery is different, so don't let another's experience scare > you. They can help you to understand your husbands reactions and > perceptions, and help you to help him. > > Debbie Mc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Hello Debbie, I was replying to one of your e-mails from yesterday I think and my computer went. Guess that a message for me to go back and take it easy. I just want to say yes it is a shock when they tell you yes it is RA. And sure denial can still be there and boy the anger too. But what can help me is I just remember a few things. One with your God and this group you are never alone. And for me it is just one more thing that I am going to have to be a fighter with. I'll fight this and win. The last few days not feeling well, o.k. but I won't give up that the next day or next few hours I can't start to get better. We never can give up on ourselves is what I am trying to say. And so I can make sense later, I'll check back, rest for the moment. Love and prayers, Sheri --- Debbie Mc <angelrose@...> wrote: > Well, I got the word from my doctor finally that my > Rheumy has confirmed the > diagnosis of RA. I have to go for more x-rays of > my hands again in 3 > months to see how the enchondroma is looking. I see > my doctor tomorrow for > a prescription for Methotrexate. Ok, now I'm > scared. I can't be in denial > any longer. That's that. Now, anyone got any pep > talk " ish " kind of advise > for me? > > Debbie Mc > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Debbie Mc: I am happy to hear you are doing OK....I felt great until the pred ended and then down I came... keep waiting for the MTX to start working...I find like you said the day or two after I am sooo tired...and running to the bathroon...once I get past the two days it goes away....I guess maybe I expected to much....hope it keeps going good for you..I have my fingers crossed......Kathi in OK --- Debbie Mc <debmc58@...> wrote: > Hi Kathy! How are you doing? I have been feeling > 100% better. Haven't had to up my prednisone > because of flares at all in the last two weeks. I > was thinking it was just wishful thinking that it > was working already, but I think it is. I feel > great all week except the pain starts creeping back > by Thursday. I take my MTX on Friday night. I > haven't had any ill effects from it except that I'm > really tired all day Saturday, but by Sunday I feel > great again. I haven't heard anything from my > doctor about my blood work last week and I see him > next week for more. We are going to start tapering > the prednisone next week too. I thought it took up > to 6 months for MTX to kick in, but what I looked up > said anywhere from 3 to 6 weeks. > > Debbie Mc > [ ] I'm so excited! > > > > > > Hi Everyone. I just called this clinical trial in > > Gainesville, and it's for > > Remicade. It's a year long study to see if using > > Remicade will enable > > patients to decrease their Methotrexate. They > > preliminarily screened me, > > and said I qualify. I'm going there tomorrow to > > have the TB test and the > > labs done and she said if everything goes well I > > could get my first infusion > > as early as next week! > > > > I've been having such a hard time, and have been > so > > discouraged. In this > > trial there is no placebo, so that's a big plus. > > She said they also do the > > bone density testing at the beginning and end of > the > > trial---another bonus. > > I just hope my white blood count is high enough by > > tomorrow. She said if it > > isn't, they can try again in 30 days. > > > > Are there any things I should know about remicade > > before I sign on the > > " dotted line " ? > > > > Hope you are all having a great day, too! > > > > Hugs, > > Carol > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Where is Debbie Mc....I hope everything is OK it has been quite awhile since we heard from her......does anyone know anything? Kathi in OK Quote Link to comment Share on other sites More sharing options...
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