Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 On 5/28/02 5:39 PM, " TomSchuckman@... " <TomSchuckman@...> wrote: > My name is Tom Schuckman, age 53, 6 ft tall, heavy wieght. Work at Chrysler > and I will have my full 30 years in 3 months from now...528-02 > I am a Vietnam Vet: 68-70, served as a doorgunner...helicopters with the 240th > Assault Hel. Co. I have rhuematoid and osteo arthritis and Fibromyalgia. Had > a bad cycle crash last Nov. 3rd when a truck rana stop sign and wiped out my > Goldwing...broke 12 ribs and collapsed the R. lung. > I need to change doctors very soon,and also get a pain management > specialist. Am taking some meds now, but they are not working as well as they > should. Just to get me over the hump so I can retire in dignity. My wife is > an RN. I live in Kenosha, WI 53142. I am a Polar Bear club member. > > tomschuckman@... > > Tom Schuckman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 On 5/28/02 6:33 PM, " TomSchuckman@... " <TomSchuckman@...> wrote: > Hello, > My name is Tom Schuckman, and I just joined your group. My youngest sister, > , is 35, married with 5 boys..two toddles. she was thought to have > Regner's disease, but now in a special hospital in MN ..in really bad shape, > she has something of a cousin to that disease. She is dying. > Attached is what the disorder is: > > > Tom Schuckman tomschuckman@... > > Relapsing polycliondritis Author/s: J. Ricker Poisdorfer Definition Relapsing > polychondritis is a disease characterized by autoimmune-like episodic or > progressive inflammation of cartilage and other connective tissue, such as the > nose, ears, throat, joints, kidneys, and heart. Description Cartilage is a > tough, flexible tissue that turns into bone in many places in the body. Bones > all start out as carfflage in the fetus. Consequently, children have more > cartilage than adults. Cartilage persists in adults in the linings of joints, > the ears, the nose, the airway and the ribs near the breast bone. All these > sites are attacked by relapsing polychondritis, which usually occurs equally > in middle-aged mates and females. It is ftequently diagnosed along with > rheumatoid arthritis, systemic lupus erythematosus, and other connective > tissue diseases. Causes & symptoms The most common first symptom of relapsing > polychondritis is pain and swelling of the external ear. Usually, both ears > turn red or purple and are tender to the touch. The swelling can extend into > the ear canal and beyond, causing ear infections, hearing loss, balance > disturbances with vertigo and vomiting, and eventually a droopy ear. The nose > is often afflicted as well and can deteriorate into a flattened nose bridge > called saddle nose. Inflammation of the eye occurs less frequently, but cm > lead to blindness. As relapsing polychondritis advances, it causes more > dangerous symptoms such as deterioration of the cartilage that holds the > windpipe open. Progressive disease can destroy the integrity of the airway and > compromise breathing. Destruction of the rib cartilage can collapse the chest, > again hindering breathing. Joints everywhere are involved in episodes of > arthritis, with pain and swelling. Other tissues besides cartilage are also > involved, leading to a variety of problems with the skin and other tissues. > Occasionally, the aorta or heart valves are damaged. The disease may occur in > episodes with complete remission between, or it may smolder along for years, > causing progressive destruction. Diagnosis A characteristic array of symptoms > and physical fmdings will yield a diagnosis of relapsing polychondritis. > Laboratory tests are sometime helpful. Biopsies of the affected cartilage may > confirm the diagnosis. Further diagnostic test are done to confirm other > associated conditions such as rheumatoid arthritis. It is important to > evaluate the airway, although only IO% of patients will die from airway > complications. Treatment Mild inflammations can be treated with aspirin or > nonsteroidal anti-inflammatory drugs (NSAIDS) such as ibuprofen. > Corticosteroids (most often prednisone) are usually prescribed for more > advanced conditions and do improve the disease. They may have to be continued > over long periods of time, in which case their usage must be closely watched > to avoid complications. Immune suppression with cyclophosphamide, > azathioprine, cyclosporine, or dapsone is reserved for more aggressive cases. > A collapsed chest or airway may require surgical suppom and a heart valve or > aorta may need repair or replacing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Hello!!! I have RA for more than one year now.I am under chloroquine and celecoxib (sos),frequently I my angles get stiff and difficult to walk,especially after going walk for long distances.thoguh If I take celcoxib,it will be relieved,I dont want to take celcoxib. apart from that disease is under control,my esr is quite o.k, I mean normal,my doctor says it " s nothing I mean the ankle stiffness, change your shoes etc,etc.Is there any suggestion to this problem. Many Greetings, Senthil KUmar.S. ```````````````````````````````````````````````````````````````````````` The wind subsides, the leaves still fall!!! ```````````````````````````````````````````````````````````````````````` Mr.S.Senthil Kumar, C/O Prof.P.K.Das, Dept of IPC, IISc, Bangalore - 12, Karnataka, India, South Asia, Asia, World, Solar System, Milkyway, Universe, My head?!?!?! ```````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hi Senthil. My ankles are very stiff too. The only thing I know that helps me is to soak them in hot water and try to exercise them. I'm glad the meds are keeping your disease under control. a > Hello!!! > I have RA for more than one year now.I am under chloroquine > and celecoxib (sos),frequently I my angles get stiff and difficult > to walk,especially after going walk for long distances.thoguh If > I take celcoxib,it will be relieved,I dont want to take celcoxib. > apart from that disease is under control,my esr is quite o.k, > I mean normal,my doctor says it " s nothing I mean the ankle stiffness, > change your shoes etc,etc.Is there any suggestion to this problem. > > Many Greetings, > Senthil KUmar.S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Hi, I am new to the group. I have fibro and my husband has RA. I know quite a lot about the fibro and have mine somewhat under controlMOST of the time. I t is the ra I know very little about. He was diagnosed about 6 months ago.He is on indomethacin and methotrexate. He has terrible anger outbursts and I am wondering if it is the medicine or the RA. Does anyone take vitimins or eat certain foods that help the fibro or RA? Diane in Maine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Hi, I am new to the group. I have fibro and my husband has RA. I know quite a lot about the fibro and have mine somewhat under controlMOST of the time. I t is the ra I know very little about. He was diagnosed about 6 months ago.He is on indomethacin and methotrexate. He has terrible anger outbursts and I am wondering if it is the medicine or the RA. Does anyone take vitimins or eat certain foods that help the fibro or RA? Diane in Maine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 It may be his frustration level at not being able to function in the same way. Only drug that I am aware of that can cause mood swing is prednisone. Have taken indocin and methotrexate (I have RA) and am unaware of any probs with the drugs. Is there a possibility of lupus at all ( For those with lupus PLEASE understand I am not suggesting that lupus causes issues with impulse control)- can cause some inflammation of other organ tissue- I knew someone who indicated some inflammation of brain tissue and had anger issues. Not sure whether there weren't other issues involved. Welcome here. I have had RA for 20+ years and have not heard of anger issues BUT there maybe others here with diff. experience. Welcome! -------------- Original message ---------------------- From: RubyAcreRabbitry@... > > > Hi, > I am new to the group. I have fibro and my husband has RA. I know quite a > lot about the fibro and have mine somewhat under controlMOST of the time. I t > is the ra I know very little about. He was diagnosed about 6 months ago.He is > on indomethacin and methotrexate. He has terrible anger outbursts and I am > wondering if it is the medicine or the RA. Does anyone take vitimins or eat > certain foods that help the fibro or RA? > Diane in Maine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 It may be his frustration level at not being able to function in the same way. Only drug that I am aware of that can cause mood swing is prednisone. Have taken indocin and methotrexate (I have RA) and am unaware of any probs with the drugs. Is there a possibility of lupus at all ( For those with lupus PLEASE understand I am not suggesting that lupus causes issues with impulse control)- can cause some inflammation of other organ tissue- I knew someone who indicated some inflammation of brain tissue and had anger issues. Not sure whether there weren't other issues involved. Welcome here. I have had RA for 20+ years and have not heard of anger issues BUT there maybe others here with diff. experience. Welcome! -------------- Original message ---------------------- From: RubyAcreRabbitry@... > > > Hi, > I am new to the group. I have fibro and my husband has RA. I know quite a > lot about the fibro and have mine somewhat under controlMOST of the time. I t > is the ra I know very little about. He was diagnosed about 6 months ago.He is > on indomethacin and methotrexate. He has terrible anger outbursts and I am > wondering if it is the medicine or the RA. Does anyone take vitimins or eat > certain foods that help the fibro or RA? > Diane in Maine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Diane,....welcome to the group! You will find lots of information here, and great people. If your husband is on MTX, make sure he is taking folic acid, very important. I have not heard of the Indomethacin. A lot of people get depression with chronic illness, so that might be a factor. Does he have a rheumatologist? I would sure let the doctor know what's going on. I do take quite a bit of vitamins, and find that I'm eating a lot better. My appetite isn't what it was, since taking the MTX. I'm glad that you have your fibro in control, that is good news. I'm so glad to get to know you, Tawny > > Hi, > I am new to the group. I have fibro and my husband has RA. I know quite a > lot about the fibro and have mine somewhat under controlMOST of the time. I t > is the ra I know very little about. He was diagnosed about 6 months ago.He is > on indomethacin and methotrexate. He has terrible anger outbursts and I am > wondering if it is the medicine or the RA. Does anyone take vitimins or eat > certain foods that help the fibro or RA? > Diane in Maine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Diane,....welcome to the group! You will find lots of information here, and great people. If your husband is on MTX, make sure he is taking folic acid, very important. I have not heard of the Indomethacin. A lot of people get depression with chronic illness, so that might be a factor. Does he have a rheumatologist? I would sure let the doctor know what's going on. I do take quite a bit of vitamins, and find that I'm eating a lot better. My appetite isn't what it was, since taking the MTX. I'm glad that you have your fibro in control, that is good news. I'm so glad to get to know you, Tawny > > Hi, > I am new to the group. I have fibro and my husband has RA. I know quite a > lot about the fibro and have mine somewhat under controlMOST of the time. I t > is the ra I know very little about. He was diagnosed about 6 months ago.He is > on indomethacin and methotrexate. He has terrible anger outbursts and I am > wondering if it is the medicine or the RA. Does anyone take vitimins or eat > certain foods that help the fibro or RA? > Diane in Maine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 --Hello Diane, I am fairly new to this group to. Its tough having a husband that has disorders and you suffering too! Is he sure that he has RA? Has he been tested by a Neurologist for Multiple Sclerosis?? Usually the final and most reliable test is a Spinal Tap. The fluid they collect, tells them a lot of information. My husband's drs thought he had everything because he was in so much pain, and this went on for several years. Finally they did the MS test and they were positive. He was 67 when he was dx'd and its very progressive and moving fast. His right leg went first, then the left and now both arms and hands seem to be atrophing when they are still. He is in a wc and can't move without help. Looking back over the years and remembering the time that he had " Pulled muscles " , they were probably MS and we just didn't have a dr that suspected it. Good luck to both of you! I have RA, OA, possibly Lupus, and Peripheral Neuropathy, a disorder of the Central Nervous System that causes horrible, burning, itchy pain on the skin area where the nerve endings are inflammed. I don't think I have ever had anything quite this un nerving and painful in my life. I will keep you both in my prayers. Cile cile_61@... if you would like to talk - In , RubyAcreRabbitry@w... wrote: > > Hi, > I am new to the group. I have fibro and my husband has RA. I know quite a > lot about the fibro and have mine somewhat under controlMOST of the time. I t > is the ra I know very little about. He was diagnosed about 6 months ago.He is > on indomethacin and methotrexate. He has terrible anger outbursts and I am > wondering if it is the medicine or the RA. Does anyone take vitimins or eat > certain foods that help the fibro or RA? > Diane in Maine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 --Hello Diane, I am fairly new to this group to. Its tough having a husband that has disorders and you suffering too! Is he sure that he has RA? Has he been tested by a Neurologist for Multiple Sclerosis?? Usually the final and most reliable test is a Spinal Tap. The fluid they collect, tells them a lot of information. My husband's drs thought he had everything because he was in so much pain, and this went on for several years. Finally they did the MS test and they were positive. He was 67 when he was dx'd and its very progressive and moving fast. His right leg went first, then the left and now both arms and hands seem to be atrophing when they are still. He is in a wc and can't move without help. Looking back over the years and remembering the time that he had " Pulled muscles " , they were probably MS and we just didn't have a dr that suspected it. Good luck to both of you! I have RA, OA, possibly Lupus, and Peripheral Neuropathy, a disorder of the Central Nervous System that causes horrible, burning, itchy pain on the skin area where the nerve endings are inflammed. I don't think I have ever had anything quite this un nerving and painful in my life. I will keep you both in my prayers. Cile cile_61@... if you would like to talk - In , RubyAcreRabbitry@w... wrote: > > Hi, > I am new to the group. I have fibro and my husband has RA. I know quite a > lot about the fibro and have mine somewhat under controlMOST of the time. I t > is the ra I know very little about. He was diagnosed about 6 months ago.He is > on indomethacin and methotrexate. He has terrible anger outbursts and I am > wondering if it is the medicine or the RA. Does anyone take vitimins or eat > certain foods that help the fibro or RA? > Diane in Maine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2005 Report Share Posted January 15, 2005 Hello, Diane! If your husband hasn't had these types of episodes before taking methotrexate and indomethacin, I would contact his doctor and ask about it. Side effects for methotrexate: http://www.rxlist.com/cgi/generic/mtx_ad.htm Side effects for indomethacin: http://www.rxlist.com/cgi/generic/indometh_ad.htm As was previously suggested, if your husband isn't taking folic acid with the methotrexate, that should be discussed with his physician as well. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Re: Welcome to > > > Hi, > I am new to the group. I have fibro and my husband has RA. I know quite a > lot about the fibro and have mine somewhat under controlMOST of the time. > I t > is the ra I know very little about. He was diagnosed about 6 months ago.He > is > on indomethacin and methotrexate. He has terrible anger outbursts and I > am > wondering if it is the medicine or the RA. Does anyone take vitimins or > eat > certain foods that help the fibro or RA? > Diane in Maine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2005 Report Share Posted January 15, 2005 Hello, Diane! If your husband hasn't had these types of episodes before taking methotrexate and indomethacin, I would contact his doctor and ask about it. Side effects for methotrexate: http://www.rxlist.com/cgi/generic/mtx_ad.htm Side effects for indomethacin: http://www.rxlist.com/cgi/generic/indometh_ad.htm As was previously suggested, if your husband isn't taking folic acid with the methotrexate, that should be discussed with his physician as well. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Re: Welcome to > > > Hi, > I am new to the group. I have fibro and my husband has RA. I know quite a > lot about the fibro and have mine somewhat under controlMOST of the time. > I t > is the ra I know very little about. He was diagnosed about 6 months ago.He > is > on indomethacin and methotrexate. He has terrible anger outbursts and I > am > wondering if it is the medicine or the RA. Does anyone take vitimins or > eat > certain foods that help the fibro or RA? > Diane in Maine Quote Link to comment Share on other sites More sharing options...
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