Guest guest Posted June 1, 2002 Report Share Posted June 1, 2002 Hi Louise. Yes, I go for Remicade every 4 weeks. I couldn't go this month because of some adverse events from it, so I am in a very bad flare. I feel like I am really never out of it. About 4 hours after Remicade I get tingling in my arms and hands for about 12 hours. Has this ever happened to anyone out there? I have never posted because, but lurk....and listen. Roxanne-39-RA PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2002 Report Share Posted June 1, 2002 Hi Louise...before my last Remicade IV, it had worn off at about 6 1/2 weeks. It was just like you said...poof!...all the wonderful things went away. So my doctor is changing me to a 7 week schedule, and may go to a 6. (This doesn't have anything, I'm pretty sure, to do with the crazy sun flare I got after my last Remicade IV...it was fine for the few days til I guess I was overexposed to the sun.). Anyway, after my upcoming surgery we're trying the 7 week cycle. Much Love & Many Gentle Hugs... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Hi a, thanks for asking about the remicade. Yes, I had to see a neurologist and in the midst of 4 MRI's and EMG's to see what is going on. I will keep everyone posted. Roxanne-Pennsylvania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Hi Roxanne. I hope you¹re feeling a little better and can get the remicade soon. I¹ve never tried remicade, so I can¹t give you any insight. It¹s one of the only RA meds I haven¹t tried. Did you ask your doctor about it? Is that why they are postponing your infusion? a On 6/1/02 1:48 PM, " SchurrRox@... " <SchurrRox@...> wrote: > Hi Louise. > > Yes, I go for Remicade every 4 weeks. I couldn't go this month because of > some adverse events from it, so I am in a very bad flare. I feel like I am > really never out of it. About 4 hours after Remicade I get tingling in my > arms and hands for about 12 hours. Has this ever happened to anyone out > there? I have never posted because, but lurk....and listen. > > Roxanne-39-RA > PA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 Louise, I am a newbie to Remicade. I am just going to receive my third Remicade infusion on 6/11/02 along with the IV iron infusion. However, the last week to 10 days has been shear hell with my painful joints especially my hands, wrist elbows and shoulders in addition to that lovely injury with my knee. I spoke with the rheumy regarding this problem and all he said was to increase the pain medication during that time to get me thru it. Helpful, huh????? Maybe your rheumy will have a better suggestion than mine! Hope you have a wonderful weekend and hopefully pain free. Gentle, tender, angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.