Guest guest Posted February 26, 1999 Report Share Posted February 26, 1999 My sister is on doxycycline 100mg 2 times a day on Mon. Wed. Fri. Vibramycin. She has AS. We look forward to her improvement. Donna Ottawa, Canada Scleroderma, Raynaud's 01/95, AP 10/97 (My Story) www.compmore.net/~donray rheumatic ankylosing spondylitis >From: lrc <lana@...> > >Hi listmembers, > >Does anyone know what antibiotic is usually prescribed for ankylosing >spondylitis? My boyfriend finally went to a rheumatologist who is >open to the AP and she said mino or doxy but I thought I read before >that others might be better. Or maybe AS isn't appropriate for the AP, >I don't know. > >Thanks to everyone! > >Lana > >------------------------------------------------------------------------ >Did you know that we have over 85,000 e-mail communities at Onelist? > >Come visit our new web site and explore a new interest > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 1999 Report Share Posted February 26, 1999 Gabe Mirkin on his radio show a few weeks ago described AS as arthritis in the spine and said he prescribes Minocin just as he does with his RA patients. Bev rheumatic ankylosing spondylitis >From: lrc <lana@...> > >Hi listmembers, > >Does anyone know what antibiotic is usually prescribed for ankylosing >spondylitis? My boyfriend finally went to a rheumatologist who is >open to the AP and she said mino or doxy but I thought I read before >that others might be better. Or maybe AS isn't appropriate for the AP, >I don't know. > >Thanks to everyone! > >Lana > >------------------------------------------------------------------------ >Did you know that we have over 85,000 e-mail communities at Onelist? > >Come visit our new web site and explore a new interest > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 ANKYLOSING SPONDYLITIS J103 10/21/99 Gabe Mirkin, M.D. When a person has severe lower back pain, doctors often order blood tests for arthritis and a genetic marker called HLAB27. (*Please note: HLA-B27 is " ASSOCIATED " with... but does not have to have that marker in order for you to have it!) Positive tests often lead to a diagnosis of ankylosing spondylitis, an arthritis of the spine with major pain where the pelvis joins the spine called the sacroiliac joint. Most doctors think that ankylosing spondylitis is an autoimmune disease in which a person's immunity is so stupid that it attacks and destroys the joints in his back, rather than just doing its job of protecting a person from infection. ****However, several recent papers show that ankylosing spondylitis may actually be caused by infection. One recent paper shows that people who have this condition are more likely to have genital (20) or intestinal symptoms (19) or infections with mycoplasma, chlamydia and ureaplasma (1). Virtually all patients have ulcers or changes in their gut similar to those seen in another so-called autoimmune disease called Crohn's disease (2,20,21,22). Other evidence of infection is that sufferers often have high blood levels of IGG and IGA antibodies that the body produces to kill Klebsiella bacteria that normally live in the intestines of healthy people (3,4,5,5A,17,24,25) and that the disease appears to be transmissible (6). The surface structure of Klebsiella contains 2 molecules similar to that of a genetic marker for ankylosing spondylitis called HLA-B27, so does another gut bacteria called Bacteroides (6A). When the pain is severe, large amounts of Klebsiella are found in stool samples, and those with ankylosing spondylitis often have intestinal ulcers in the end of the small intestine. A low starch diet that reduces the concentration of klebsiella has been reported to alleviate the back pain (7). Another recent study shows that ankylosing spondylitis may be spread from person to person. The next step is to see if long-term treatment with antibiotics, such as doxycycline, azithromycin, metronidazole or a quinolone can be effective in treating ankylosing spondylitis. The disease rarely goes away by itself (12). Please check with your doctor. HLA-B27 is " ASSOCIATED " with uveitis, reactive arthritis, inflammatory bowel disease tripped off by infection with chlamydia, campylobacter, clostridium, salmonella, shigella, yersinia, bacteroides and klebsiella (16). The new bone strengtheners appear to help control the pain (18). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 i have as also with inflamatory spondyloarthropy, fibromyalgia, diabetes, glaucoma, costchondritis. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2005 Report Share Posted June 28, 2005 My family just had a followup appointment with Dr. Bihari last Friday. He emphasized that ANY condition that is auto-immune will be helped by LDN--so if Ankylosing Spondylitis is auto-immune or has a component of auto-immune to it, it sure seems like it would be worth trying. All four of us in our family are now going to be on LDN. Dr. Bihari prescribed it for me for hypothyroidism and cervical dysplasia and for our daughter because she had mono and carries the Epstein Barr virus, which he said predisposes people to lymphoma and Hodgkins. At a prior appointment, Dr. Bihari had said that LDN has dramatically affected his 2 dozen Crohns cases--all have responded within 2-3 weeks with a complete clearing of Crohns symptoms with no return as long as they stay on LDN. Some have been stable for as long as 5-6 years. Kathie On Mon, 27 Jun 2005 23:41:34 -0000 "hoxworthgk" <hoxworthgk@...> writes:> > The reason that I am writing now is that my son, who is 24, was just > > diagnosed with Ankylosing Spondylitis, and the web sites that I have > > visited say that it is related to Chrohn's disease and is a form of > > arthritis. He has an appointment with a Rheumatic Specialist > shortly > and I was wondering if anyone thinks that ldn would be a sensible > thing to take? I have seen on the web page that it is supposed to > be > helpful with Rheumatoid Arthritis and Chrohn's Disease, and so it > seems logical that it might help with something related. Anyone know > > anything about this? I would appreciate anything anyone might have > > heard.> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 In a message dated 6/27/2005 8:34:14 PM Eastern Daylight Time, randkarnold1@... writes: Dr. Bihari prescribed it for me for hypothyroidism and cervical dysplasia and for our daughter because she had Kathy Were you taking any meds for your hypothyroidism, like synthroid or armour, and have you stopped or dropped back on them since ldn? Thanks Arlene Quote Link to comment Share on other sites More sharing options...
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