RE: Re: Welcome, Bridgette!

[Guest guest]

Hi Bridgette. It really sounds like your rheumy isn't giving you the

attention you deserve. The DMARD's help prevent/lessen permanent damage,

and I was under the impression they are very important. No matter, if you

hare having enough problems that it affected your marriage, it sounds to me

like you are undertreated. Also, you deserve ample time and to have your

concerns addressed when you visit your rheumy. Are there any other

rheumatologists in your area?

I can relate to what you say about your grandbabies. I don't have

grandbabies, but I was with my niece last weekend and she just can't

understand that Aunt Carol can't pick her up and play on the playground

equipment (she weighs 40 lbs). I usually end up doing it then paying the

price later. My family doesn't really understand how sore I get, or how

tired. My Mom is really good about trying to understand, though.

I hope you are able to find a doctor who gives you the care you deserve.

Hugs,

Carol in FL

[ ] Re: Welcome, Bridgette!

> Welcome, Bridgette!

> Hi ...

Thanks for the reply...as to your questions, no I have not tried

those meds yet, not sure when I am going to be put on them, yes I am

seeing a rheymatologist, my visits with him or very short, and not so

sweet. When first going to him it was every couple of weeks, I am now

down to every three months, which to me is progress. But I still

don't feel as though I am getting much better. I am not sure what

others go through, but I can tell you that I have my days of

frustration. My marriage broke up because of this, and it is hard to

find someone that is willing to accept this condition. It is

especially hard with the grandbabies, they do not understand that

Mammie hurts and cannot pick you up. I am glad that I found this

group and just happend upon it today. I have read the messages that

others have left and it seems like there is a nice little family

here. My family has been very supportive, but nice to have someone

that understands what I am going through. I hope to hear from you

again, and anyone else that wishes to chat.

Hugs..

Bridgette

> Sorry about your RA diagnosis, but I'm glad you found our group.

>

> Have you already tried methotrexate, Enbrel or Remicade, or

Kineret? I'm

> sorry to hear that nothing has been working for you. Are you under

the

> care of a rheumatologist?

>

> I'm in Illinois which is a long way from Maine, but I'm as close as

your

> computer.

>

>

>

>

>

> [ ] New Member

>

>

> > Hello all...

> > New memeber to the RA Support, but not new the the condition. I

have

> > had this now for 2 years, and so glad to see that there is a

support

> > system where as I do not need to leave the house, as it is hard

for

> > me at times. I am curious as to what you all are going through,

> > wondering if it is the same as myself. I have been on the same

meds,

> > Celebrex, Prednesone, Mobic. You name it I have been on it.

Nothing

> > seems to be working for me. I am also wondering if there is

anyone in

> > or around my area. I am in the State of Maine..

[Guest guest]

Dear Bridgette...I was just talking to my oldest daughter today about

how I wish I could do more physical activities with my grandchildren. My

heart understands! Welcome, and please share whatever is on your mind.

With Hope...

Tess

[Guest guest]

<P> Good Morning Tess,

<P> & nbsp;Thank you so for you email. I am sorry that

we all have this condition but I am glad that there is

this group, as I have said, it seems like a really

nice little family. I can talk to my parents and

sisters, and children about how I feel, but they do

not really understand. I can say I am hurting, but

those are just words, you know exactly what I am

talking about. I find that I push myself to do the

things that I used to be able to do and of course I

pay for it in the end, but I refuse to let this take

over.

<P> & nbsp;I am one of the luckier ones, I was approved

for my disability within 6 weeks. Although I don't

much care for my doctor, he did well by me there. I

don't like going to him, he asks the most stupid

question, and I am in the exam room a total of about

10 minutes. He checks me out, throws me some different

pills to take and says come back in 3 months.

<P> & nbsp;I have just recently started having more

trouble with my right hand and elbow. It gets very

tired, very fast. There is a constant ache. Not sure

what this is all about but I don't like it. It starts

at my elbow and continues to my wrist and hand. And I

would think that if I were to get an ache or pain...it

would be in my left, since I am left handed.

<P> & nbsp;Anyway, I am here if you care to chat,

because trust me I do understand about the

grandchildren. I have 4 of them. Ages... will be

5 in November...Sara (who has cystic fibrosis) will be

4 in June...Kayla (we call her Crisis

Kayla...everything with her is a major crisis) will be

4 in January...and we cannot forget baby Timmy...he

will be 2 in June. I cannot believe that I am a

grandmother at 43, but they are here and I love them

dearly. I have a hard time saying no when it comes to

babysitting, but there are days that I just have to. I

think there are times when my girls forget that I have

this condition, they sometimes ask me to do too much.

But once again have a hard time saying no.

<P> & nbsp;Hoping to hear from you again...and please

feel free to let loose, that is what I am here

for...Here is hoping that you have a great day....

<P>Bridgette

<P> & nbsp; <B><I>Tess_St_Pierre@...</I></B>

wrote:

<BLOCKQUOTE style= " PADDING-LEFT: 5px; MARGIN-LEFT:

5px; BORDER-LEFT: #1010ff 2px solid " ><TT>Dear

Bridgette...I was just talking to my oldest daughter

today about<BR>how I wish I could do more physical

activities with my grandchildren. My<BR>heart

understands! & nbsp; Welcome, and please share whatever

is on your mind.<BR><BR>With

Hope...<BR><BR>Tess<BR><BR></TT><BR><!-- |**|begin egp

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