Therapy for RA

[Guest guest]

Joanne I saw your posting on the group website. My question is have the

antibiotics worked? Do you have any symptoms of RA now? and how long was it

before you noticed any success?How cooperative was your insurance company in all

this? Did you have to pay for the the procedures yourself? Was it done under the

supervision of a rheumatologist? Isn't this considered experimental? Sorry for

all the questions but I am really interested in this. Thank you for your

patience.

Louise in Alabama

[Guest guest]

Hi

For me the antibiotic therapy did nothing but cause me tremendous medical

bills for IV clindamycin. I took the oral meds for almost 2 yrs and the IV's

for 6 months. The disease RA did not even slow down!

I would like to add that a certain rheumatologist in CA was becoming famous

a few years ago promising cures for RA, Lupus and Scleraderma by means of

antibiotic therapy, and it did not matter how long you had the disease as

per this doctor. Sadly many of us believed or should say wanted to believe

desperately it would work and we met at a seminar to meet this doctor and

many patients from all around the world. Many (too many) of us started

seeing this doctor but in time that declined. Since then many have stopped

the antibiotics due to their failure to work and the last I saw this

rheumatologist, he was selling vitamins on late night ads. Boy was I angry!

Anyway I do believe this treatment can work in new onset disease( I believe

I stated previously newly diagnosed) but I meant new onset...big difference

as in my case it took 6 yrs to make a sold diagnosis of RA. Possibly if I

took the antibiotics in the very beginning, they could have worked...I will

never know.

Good luck to all of you trying it.

Joanne