Los Angeles Support Group?

[Guest guest]

Hey ,

I'm in Orange County, CA. You joined my group, but I hadn't heard

back from you in response to the Response Needed e-mail I send out

to all pending members. I e-mailed you again today. :-) I love

networking with other Southern California parents in regards to

services, etc. that are available in California. I started a file

for Southern California specific recommendations on my group, so

hope to fill that file up with information. :-)

has Hypotonia, Global Dyspraxia, Verbal Apraxia.

I'm still looking for a Neuro-MD that specializes in Apraxia (as

well as diagnosing it) in Southern CA. Hmmm, does one exist?

Jill - 's Mom

OurSpecialNeedsChildren/

> Hi all,

> I haven't yet found a verbal apraxia support group in Los

Angeles. I

> thought I had (voices), but I never got a call back from them.

Once I

> actually did get to speak to someone who said they'd send me an

> information packet and it never came. So I figure it must not be

doing

> much these days. But I'm sure there are lots of other families in

the

> area who are dealing with some of the same issues we are. I'd

love to

> be able to connect in person and set up play dates with our

children,

> etc. I think it could be beneficial to all of us.

>

> So if you're in the Los Angeles area, please let me know if you'd

be

> interested in this sort of thing. I can set up a group just

for

> us, a small website to keep abreast of different events, etc.

>

> All the best,

>

>

>

>

[Guest guest]

Hello and Fellow Groupmates:

My name is Lancy and I am the online outreach coordinator for

VOICES Association. The VOICES Association (VOICES stands for

Victory Over Impairments of Communication, Expression, and Speech)is

a non-profit organization committed towards improving the lives of

children with severe speech-language/communication disorders and

their families.

> I haven't yet found a verbal apraxia support group in Los

Angeles. I thought I had (voices), but I never got a call back from

them. Once I actually did get to speak to someone who said they'd

send me an information packet and it never came. So I figure it

must not be doing much these days.<

I'm not sure who you talked to at VOICES. We are an all volunteer

organization and we receive an overwhelming amount of requests for

resource packets. Since I am resposible for sending out materials,

please e-mail ourvoices4kids@... with your contact info and I

will personally make sure your packet is sent to you.

The VOICES Association is doing wonderful things to help families of

children with apraxia and other communication impairments.

Children with communication impairments, especially those from

minority and low-income communities, face particular barriers to

early diagnosis and effective treatment, prevention, and self-

management of their communication impairment. Recognizing the need

for timely and appropriate outreach to families of children with

severe speech disorders, the VOICES Association began piloting the

Speech Disorder Awareness Program in communities throughout southern

California.

The Speech Disorder Awareness (SDA) program is a collaborative

effort of the VOICES Association, school districts, speech and

language professionals and health professionals to provide speech

disorder awareness education, information and support to families of

children living with speech/language impairments and to raise public

awareness of communication disorders affecting children in America.

The program is currently in its second year and has reached

thousands of parents, professionals and concerned individuals. In

addition to our award winning 4voices.org web site, we produce

materials (print and multimedia) on various subjects related to

speech disorders which are delivered to parents, professionals and

youth in communities across the country. We pride ourselves on

developing technology based, unique and innovative tools to provide

families with our services.

We are also pround to network with organizations like the Cherab

Foundation to help raise awareness and help families nationwide.

In addition to the SDA program, we have other resources for families

outside of California:

We send out a monthly newsletter to 30,000 parents, professionals

and concerned individuals worldwide.

Non-Profit Profiles Show - 30 minute talkshow on LA36 and other

local cable stations in Southern California. The show talks about

apraxia (VOICES founder shares her personal story about her son),

and has members of our professional advisory board speaking on

issues related to apraxia and speech disorders. The show is also

sent on DVD or VCD.

To learn more about the VOICES Association, please visit

http://www.4voices.org

If you care for a child with a communication impairment, I would

like to invite you to join the VOICES Online group

voices_group/

You will find lots of information and many resources on issues

related to speech. You'll also meet and hear 4 year old, Jovan who

has verbal apraxia. Jovan is the son of VOICES co-founder Tamara

Hill. Samples of Jovan's speech are available on the site.

I am new to the VOICES team, but I can tell you that what Ms. Hill

and her husband have done with this organization is nothing short of

amazing! They have taken their personal experiences and turned it

into a wonderful outreach program. I am humbled and honored to be a

part of their efforts.

I appreciate the opportunity to share this information with you!

Together, we will help our children find victory over(all)

impairments of communication, expression, and speech!

Sincerely,

Lancey

Online Outreach Coordinator

VOICES Association

http://www.4voices.org

ourvoices4kids@...

[Guest guest]

Hi,

I am looking for a group in the Los Angeles area that meets for mutual in-person

support for CR.

Does anyone know of one, or would anyone like to participate in one?

Thanks!

Nina