Re: What were the symptoms that you had before you started using...

[Guest guest]

I began having problems staying alert and awake. The doctor ran an Arterial

Blood Gas (ABG) test & found my CO2 level was very high......eventhough my

oxygen saturation level was good at 93%. That was when they put me on a vent. It

was 3 years ago, and I was 47 yrs. old. In May, I'll be 50....still work 40+

hours a week.....and have TONS of energy!

Vicki

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

[Guest guest]

Indeed. For me, arterial blood gas tests were the only reliable

measure. My O2 saturation is always 97-100%. Before I was ventilated,

my CO2 was high enough to be toxic but no one knew. I was dull,

depressed and exhausted.

>

> I began having problems staying alert and awake. The doctor ran an

Arterial

> Blood Gas (ABG) test & found my CO2 level was very

high......eventhough my

> oxygen saturation level was good at 93%. That was when they put me on

a vent. It

> was 3 years ago, and I was 47 yrs. old. In May, I'll be 50....still

work 40+

> hours a week.....and have TONS of energy!

>

> Vicki

>

[Guest guest]

I felt like I wanted to take a nap frequently. What was your CO2 level on

your last ABG test? That is the only TRUE indicator of whether you need

ventilation or not. Did they run pre & post test ABGs during your sleep study?

Vicki

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

[Guest guest]

Hi Vicky,

Can you tell me more about what you mean with problems staying alert and awake?

I am not nodding off during the day - thankfully. Just feel tired a lot of the

time. Even drowsy sometimes on Friday evenings or something.

smiles

Taya

Re: What were the symptoms that you had before you

started using...

I began having problems staying alert and awake. The doctor ran an Arterial

Blood Gas (ABG) test & found my CO2 level was very high......eventhough my

oxygen saturation level was good at 93%. That was when they put me on a vent.

It

was 3 years ago, and I was 47 yrs. old. In May, I'll be 50....still work 40+

hours a week.....and have TONS of energy!

Vicki

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

[Guest guest]

I feel tired most of the time. It has been worse for me in the past

year. I just figured one would experience more fatigue as they age

with SMA?

Suzanne

>

> Hi Vicky,

>

> Can you tell me more about what you mean with problems staying alert

and awake?

>

> I am not nodding off during the day - thankfully. Just feel tired a

lot of the time. Even drowsy sometimes on Friday evenings or something.

>

> smiles

>

> Taya

>

> Re: What were the symptoms that you had

before you started using...

>

>

> I began having problems staying alert and awake. The doctor ran an

Arterial

> Blood Gas (ABG) test & found my CO2 level was very

high......eventhough my

> oxygen saturation level was good at 93%. That was when they put me

on a vent. It

> was 3 years ago, and I was 47 yrs. old. In May, I'll be

50....still work 40+

> hours a week.....and have TONS of energy!

>

> Vicki

>

> **************Biggest Grammy Award surprises of all time on AOL

Music.

>

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

> 48)

>

>