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Living in Florida

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im 31 years old with sma 2...i live in central florida...unless you pay

privately, there are absolutely no pca or care programs provided by the

state...

>

> I would like to know how many of you live in Florida? I would like

to

> move there because the weather is healthier for me but I have heard

> that they have virtually no pca program to speak of.

>

> Regards,

> Patti

> www.youravon.com/patriciapanzarino

>

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Really? I heard Disneyworld and all that was more accessible than it is

here in California!

Kemp

Director, OurGV Rewards

<http://www.ourgvrewards.com/> http://www.ourgvrewards.com

Phone: 714-974-5799

Business Phone: 714-974-5693

Cell Phone: 714-244-5920

Phone: 949-579-9465

Email 1: d-kemp@...

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From: [mailto: ] On

Behalf Of Kerstetter

Sent: Sunday, December 07, 2008 5:29 PM

Subject: Re: Living in Florida

I live in Floirda.

It's horrible here except for the weather.

I hate to talk you out of your decision, so let others answer first. But

really, if you're disabled, there's virtually nothing here for you. It's

ridiculous.

-

From: pidgie508 <pidgie508@... <mailto:pidgie508%40> >

Subject: Living in Florida

<mailto:%40>

Date: Sunday, December 7, 2008, 7:57 PM

I would like to know how many of you live in Florida? I would like to

move there because the weather is healthier for me but I have heard

that they have virtually no pca program to speak of.

Regards,

Patti

www.youravon. com/patriciapanz arino

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>

> I would like to know how many of you live in Florida? I would like

to

> move there because the weather is healthier for me but I have heard

> that they have virtually no pca program to speak of.

>

> Regards,

> Patti

> www.youravon.com/patriciapanzarino

>

Florida is bad news if you're disabled. :( SSI benefits (if you're

lucky enough to be approved... I have a severely disabled friend whose

application was denied three times before finally being accepted) are

minimal, there are no PCA programs, and it's pretty hard to get

through to state departments (i.e. Dept. of Children and Families).

While the temperature is usually nice, Florida is really quite humid,

and hurricane season can be a great bother.

Additionally, while the state is wheelchair-friendly, good luck

finding a way to get around, especially if you live in the Orlando

area (where I live). Orlando is way behind all the other big cities in

the U.S. in that we have no mass transit system. Just the public bus,

which can take forever to get to from point A from point B. There is a

paratransit service, but I have heard terrible things about it, such

as it showing up an hour late or perhaps not showing up at all! Unless

you can drive, or have somebody to drive you, it's a chore to get

around. I visited San Diego in 2006 and was amazed by their affordable,

disabled-friendly light-rail. I was able to travel

throughout the city with no assistance - it was so easy. I've never

had that luxury in Orlando.

It may seem nice from the outside, but living in Florida can be a

nightmare for the disabled individual. If I had the opportunity, I

would move elsewhere (perhaps northern California or Portland) in a

heartbeat. I don't mean to be a Debbie Downer, but I don't want you to

move here and find yourself disappointed. :(

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