RE: gtube vs. peg

[Guest guest]

Why does having kids mean you are going to wait? Have you tried ways of

blending or pureeing food so that it is either drinkable with a straw even,

or easily swallowed like mash or pudding? I would totally be unable to eat

if it weren¹t for my heavy duty blender. Vitamix.com or blendtec.com

before I found ways to process the food I was so thin I was pretty much

emaciated now I am so much healthier for getting proper nutrition, I just

think that because you have kids you should be really good about

eating/nutrition to keep you healthy and strong! :-)

Love,

N

On 12/25/08 11:46 PM, " Amy " <blueyedaze@...> wrote:

>

>

>

> can any tell me the difference between them, and pros/cons of each?

> i'm gonna need one within 5 years, i'd assume, i'm so stressed about

> how much i'm not eating, so sick of constantly being hungry, and

> downright hate that i've lost almost all ability to feed myself. if i

> didn't have kids, i'd get it done immediately.

>

> amy

>

>

[Guest guest]

Because I need Will at the hospital, and we're the only ones who can

stay with them. We have no help with the kids, which is fine because

they're our kids, but I'd sorta like to be alive to parent them? I

pretty much live off of mashed potatoes, soup, overcooked pasta, and

hot chocolate. Will said he'd try harder to make me more crockpot

meals, which I can eat with relative ease. I'm just really taking this

not being able to feed myself very hard.

On Dec 26, 2008, at 1:29 AM, wrote:

> Why does having kids mean you are going to wait? Have you tried ways

> of

> blending or pureeing food so that it is either drinkable with a

> straw even,

> or easily swallowed like mash or pudding? I would totally be unable

> to eat

> if it weren’t for my heavy duty blender. Vitamix.com or blendtec.com

> before I found ways to process the food I was so thin I was pretty

> much

> emaciated now I am so much healthier for getting proper nutrition, I

> just

> think that because you have kids you should be really good about

> eating/nutrition to keep you healthy and strong! :-)

[Guest guest]

I am experiencing the same thing.  My right wrist (my " good " hand) is suddenly

very weak even with all the positioning we do.  Maybe it's the lack of a good

sleep or my poor nutrition or both.  Or maybe it's the effect of all the

antihistamines I am taking to help with the aspiration situation.  Don't know,

don't know.  I think I will be drinking more Ensure.

At the hospital I work at, g-tube placement is an out-patient procedure (even

for ALS patients).  Maybe you can do that.

L

 

________________________________

From: Amy <blueyedaze@...>

Sent: Friday, December 26, 2008 6:22:18 PM

Subject: Re: gtube vs. peg

Because I need Will at the hospital, and we're the only ones who can 

stay with them. We have no help with the kids, which is fine because 

they're our kids, but I'd sorta like to be alive to parent them? I 

pretty much live off of mashed potatoes, soup, overcooked pasta, and 

hot chocolate. Will said he'd try harder to make me more crockpot 

meals, which I can eat with relative ease. I'm just really taking this 

not being able to feed myself very hard.

On Dec 26, 2008, at 1:29 AM, wrote:

> Why does having kids mean you are going to wait? Have you tried ways 

> of

> blending or pureeing food so that it is either drinkable with a 

> straw even,

> or easily swallowed like mash or pudding? I would totally be unable 

> to eat

> if it weren¢t for my heavy duty blender. Vitamix.com or blendtec.com

> before I found ways to process the food I was so thin I was pretty 

> much

> emaciated now I am so much healthier for getting proper nutrition, I 

> just

> think that because you have kids you should be really good about

> eating/nutrition to keep you healthy and strong! :-)

[Guest guest]

Sucks, doesn't it? Will has been overly sensitive, trying to help me

all he can... I just feel so damn useless. I can drive my chair and

use my ipod- I know it could be worse, but it's all a combination of

not being able to go out alone, this shitty weather with 4 " snowbanks,

turning 30 soon. Ugh. I'll work through it, I always do.

I will look into that. Calling Monday.

thanks, L. =)

On Dec 26, 2008, at 7:48 PM, Lori G wrote:

> I am experiencing the same thing. My right wrist (my " good " hand)

> is suddenly very weak even with all the positioning we do. Maybe

> it's the lack of a good sleep or my poor nutrition or both. Or

> maybe it's the effect of all the antihistamines I am taking to help

> with the aspiration situation. Don't know, don't know. I think I

> will be drinking more Ensure.

>

> At the hospital I work at, g-tube placement is an out-patient

> procedure (even for ALS patients). Maybe you can do that.

[Guest guest]

A G-tube can be placed in Intervention Radiology under a local anesthetic

with light ( " twilight " ) sedation and go home the same day. Don't let anyone

tell you it HAS to be placed using a general. That is NOT true. Shop around

till you find a doc who will do it that way.

Those of us coming up through the ranks now (moms & dads of older kids) can

tell you that the nutrition is a HUGE component to managing strength issues

with SMA. And following an amino acid diet has made a tremendous difference

in our childrens' health & strength. Maybe the attached articles will help

explain. One of the key components of the AA diet is that dairy & meat

products require a great deal of energy expenditure from a person with SMA

to breakdown and utilize. Proteins in the form of medium (or simple)

branch-chained amino acids are the easiest for an SMA person to breakdown.

Products like Ensure which are milk-based are much more difficult to break

down and are not " ideal " proteins for someone with SMA.

The AA diet has kinda become " my thing " so if you have any questions, please

don't hesitate to ask!!!

Suzanne

Mom to ne, type 2, age 11 1/2yrs (5'8 " & 125lbs)

Jesus said, ' " I tell you the truth, when you refused to help the least of

these, my brothers and sisters, you were refusing to help Me. " 25:45

<><

For the latest and greatest, visit: www.our-sma-angels.com/neRose

On Fri, Dec 26, 2008 at 7:55 PM, Amy <blueyedaze@...> wrote:

> Sucks, doesn't it? Will has been overly sensitive, trying to help me

> all he can... I just feel so damn useless. I can drive my chair and

> use my ipod- I know it could be worse, but it's all a combination of

> not being able to go out alone, this shitty weather with 4 " snowbanks,

> turning 30 soon. Ugh. I'll work through it, I always do.

>

> I will look into that. Calling Monday.

>

> thanks, L. =)

>

> On Dec 26, 2008, at 7:48 PM, Lori G wrote:

>

> > I am experiencing the same thing. My right wrist (my " good " hand)

> > is suddenly very weak even with all the positioning we do. Maybe

> > it's the lack of a good sleep or my poor nutrition or both. Or

> > maybe it's the effect of all the antihistamines I am taking to help

> > with the aspiration situation. Don't know, don't know. I think I

> > will be drinking more Ensure.

> >

> > At the hospital I work at, g-tube placement is an out-patient

> > procedure (even for ALS patients). Maybe you can do that.

>

>

>

[Guest guest]

Thanks!

On Dec 26, 2008, at 9:07 PM, Suzanne wrote:

> A G-tube can be placed in Intervention Radiology under a local

> anesthetic

> with light ( " twilight " ) sedation and go home the same day. Don't let

> anyone

> tell you it HAS to be placed using a general. That is NOT true. Shop

> around

> till you find a doc who will do it that way.

>

> Those of us coming up through the ranks now (moms & dads of older

> kids) can

> tell you that the nutrition is a HUGE component to managing strength

> issues

> with SMA. And following an amino acid diet has made a tremendous

> difference

> in our childrens' health & strength. Maybe the attached articles

> will help

> explain. One of the key components of the AA diet is that dairy & meat

> products require a great deal of energy expenditure from a person

> with SMA

> to breakdown and utilize. Proteins in the form of medium (or simple)

> branch-chained amino acids are the easiest for an SMA person to

> breakdown.

> Products like Ensure which are milk-based are much more difficult to

> break

> down and are not " ideal " proteins for someone with SMA.

>

> The AA diet has kinda become " my thing " so if you have any

> questions, please

> don't hesitate to ask!!!

>

> Suzanne

> Mom to ne, type 2, age 11 1/2yrs (5'8 " & 125lbs)

>

> Jesus said, ' " I tell you the truth, when you refused to help the

> least of

> these, my brothers and sisters, you were refusing to help Me. "

> 25:45

> <><

>

> For the latest and greatest, visit: www.our-sma-angels.com/neRose

>

> On Fri, Dec 26, 2008 at 7:55 PM, Amy <blueyedaze@...> wrote:

>

> > Sucks, doesn't it? Will has been overly sensitive, trying to help me

> > all he can... I just feel so damn useless. I can drive my chair and

> > use my ipod- I know it could be worse, but it's all a combination of

> > not being able to go out alone, this shitty weather with 4 "

> snowbanks,

> > turning 30 soon. Ugh. I'll work through it, I always do.

> >

> > I will look into that. Calling Monday.

> >

> > thanks, L. =)

> >

> > On Dec 26, 2008, at 7:48 PM, Lori G wrote:

> >

> > > I am experiencing the same thing. My right wrist (my " good " hand)

> > > is suddenly very weak even with all the positioning we do. Maybe

> > > it's the lack of a good sleep or my poor nutrition or both. Or

> > > maybe it's the effect of all the antihistamines I am taking to

> help

> > > with the aspiration situation. Don't know, don't know. I think I

> > > will be drinking more Ensure.

> > >

> > > At the hospital I work at, g-tube placement is an out-patient

> > > procedure (even for ALS patients). Maybe you can do that.

> >

> >

> >

>

>

[Guest guest]

i would like to read the article but there was no attachment.  Can you please

place it in the file area of the SMAFriends website?

Lori

________________________________

From: Suzanne <erinnesmom@...>

Sent: Friday, December 26, 2008 8:07:02 PM

Subject: Re: gtube vs. peg

A G-tube can be placed in Intervention Radiology under a local anesthetic

with light ( " twilight " ) sedation and go home the same day. Don't let anyone

tell you it HAS to be placed using a general. That is NOT true. Shop around

till you find a doc who will do it that way.

Those of us coming up through the ranks now (moms & dads of older kids) can

tell you that the nutrition is a HUGE component to managing strength issues

with SMA. And following an amino acid diet has made a tremendous difference

in our childrens' health & strength. Maybe the attached articles will help

explain. One of the key components of the AA diet is that dairy & meat

products require a great deal of energy expenditure from a person with SMA

to breakdown and utilize. Proteins in the form of medium (or simple)

branch-chained amino acids are the easiest for an SMA person to breakdown.

Products like Ensure which are milk-based are much more difficult to break

down and are not " ideal " proteins for someone with SMA.

The AA diet has kinda become " my thing " so if you have any questions, please

don't hesitate to ask!!!

Suzanne

Mom to ne, type 2, age 11 1/2yrs (5'8 " & 125lbs)

Jesus said, ' " I tell you the truth, when you refused to help the least of

these, my brothers and sisters, you were refusing to help Me. " 25:45

<><

For the latest and greatest, visit: www.our-sma- angels.com/ neRose

On Fri, Dec 26, 2008 at 7:55 PM, Amy <blueyedazeaol (DOT) com> wrote:

> Sucks, doesn't it? Will has been overly sensitive, trying to help me

> all he can... I just feel so damn useless. I can drive my chair and

> use my ipod- I know it could be worse, but it's all a combination of

> not being able to go out alone, this shitty weather with 4 " snowbanks,

> turning 30 soon. Ugh. I'll work through it, I always do.

>

> I will look into that. Calling Monday.

>

> thanks, L. =)

>

> On Dec 26, 2008, at 7:48 PM, Lori G wrote:

>

> > I am experiencing the same thing. My right wrist (my " good " hand)

> > is suddenly very weak even with all the positioning we do. Maybe

> > it's the lack of a good sleep or my poor nutrition or both. Or

> > maybe it's the effect of all the antihistamines I am taking to help

> > with the aspiration situation. Don't know, don't know. I think I

> > will be drinking more Ensure.

> >

> > At the hospital I work at, g-tube placement is an out-patient

> > procedure (even for ALS patients). Maybe you can do that.

>

>

>

[Guest guest]

I've been getting a lot weaker lately too, I changed my diet to vegan,

raw/living food and it definitely helps but I am still weaker. It wouldn't

surprise me though if the antihistamines are a contributing factor they make

it really hard for me to hold up my head.

On 12/26/08 6:48 PM, " Lori G " <lorig713@...> wrote:

> I am experiencing the same thing.  My right wrist (my " good " hand) is suddenly

> very weak even with all the positioning we do.  Maybe it's the lack of a good

> sleep or my poor nutrition or both.  Or maybe it's the effect of all the

> antihistamines I am taking to help with the aspiration situation.  Don't know,

> don't know.  I think I will be drinking more Ensure.

>

> At the hospital I work at, g-tube placement is an out-patient procedure (even

> for ALS patients).  Maybe you can do that.

>

> L

>

>  

>

> ________________________________

>

> From: Amy <blueyedaze@...>

>

> Sent: Friday, December 26, 2008 6:22:18 PM

> Subject: Re: gtube vs. peg

>

> Because I need Will at the hospital, and we're the only ones who can 

> stay with them. We have no help with the kids, which is fine because 

> they're our kids, but I'd sorta like to be alive to parent them? I 

> pretty much live off of mashed potatoes, soup, overcooked pasta, and 

> hot chocolate. Will said he'd try harder to make me more crockpot 

> meals, which I can eat with relative ease. I'm just really taking this 

> not being able to feed myself very hard.

>

>

> On Dec 26, 2008, at 1:29 AM, wrote:

>

>> Why does having kids mean you are going to wait? Have you tried ways 

>> of

>> blending or pureeing food so that it is either drinkable with a 

>> straw even,

>> or easily swallowed like mash or pudding? I would totally be unable 

>> to eat

>> if it weren¢t for my heavy duty blender. Vitamix.com or blendtec.com

>> before I found ways to process the food I was so thin I was pretty 

>> much

>> emaciated now I am so much healthier for getting proper nutrition, I 

>> just

>> think that because you have kids you should be really good about

>> eating/nutrition to keep you healthy and strong! :-)

>

>

>

[Guest guest]

I learned something new today! I didn't know I could/should add it to the

file!

Thanks for the tip!

Suzanne

Jesus said, ' " I tell you the truth, when you refused to help the least of

these, my brothers and sisters, you were refusing to help Me. " 25:45

<><

For the latest and greatest, visit: www.our-sma-angels.com/neRose

On Fri, Dec 26, 2008 at 9:44 PM, Lori G <lorig713@...> wrote:

> i would like to read the article but there was no attachment. Can you

> please place it in the file area of the SMAFriends website?

>

> Lori

>

> ________________________________

> From: Suzanne <erinnesmom@... <erinnesmom%40gmail.com>>

> <%40>

> Sent: Friday, December 26, 2008 8:07:02 PM

> Subject: Re: gtube vs. peg

>

> A G-tube can be placed in Intervention Radiology under a local anesthetic

> with light ( " twilight " ) sedation and go home the same day. Don't let anyone

> tell you it HAS to be placed using a general. That is NOT true. Shop around

> till you find a doc who will do it that way.

>

> Those of us coming up through the ranks now (moms & dads of older kids) can

> tell you that the nutrition is a HUGE component to managing strength issues

> with SMA. And following an amino acid diet has made a tremendous difference

> in our childrens' health & strength. Maybe the attached articles will help

> explain. One of the key components of the AA diet is that dairy & meat

> products require a great deal of energy expenditure from a person with SMA

> to breakdown and utilize. Proteins in the form of medium (or simple)

> branch-chained amino acids are the easiest for an SMA person to breakdown.

> Products like Ensure which are milk-based are much more difficult to break

> down and are not " ideal " proteins for someone with SMA.

>

> The AA diet has kinda become " my thing " so if you have any questions,

> please

> don't hesitate to ask!!!

>

> Suzanne

> Mom to ne, type 2, age 11 1/2yrs (5'8 " & 125lbs)

>

> Jesus said, ' " I tell you the truth, when you refused to help the least of

> these, my brothers and sisters, you were refusing to help Me. "

> 25:45

> <><

>

> For the latest and greatest, visit: www.our-sma- angels.com/ neRose

>

> On Fri, Dec 26, 2008 at 7:55 PM, Amy <blueyedazeaol (DOT) com> wrote:

>

> > Sucks, doesn't it? Will has been overly sensitive, trying to help me

> > all he can... I just feel so damn useless. I can drive my chair and

> > use my ipod- I know it could be worse, but it's all a combination of

> > not being able to go out alone, this shitty weather with 4 " snowbanks,

> > turning 30 soon. Ugh. I'll work through it, I always do.

> >

> > I will look into that. Calling Monday.

> >

> > thanks, L. =)

> >

> > On Dec 26, 2008, at 7:48 PM, Lori G wrote:

> >

> > > I am experiencing the same thing. My right wrist (my " good " hand)

> > > is suddenly very weak even with all the positioning we do. Maybe

> > > it's the lack of a good sleep or my poor nutrition or both. Or

> > > maybe it's the effect of all the antihistamines I am taking to help

> > > with the aspiration situation. Don't know, don't know. I think I

> > > will be drinking more Ensure.

> > >

> > > At the hospital I work at, g-tube placement is an out-patient

> > > procedure (even for ALS patients). Maybe you can do that.

> >

> >

> >

>

>

[Guest guest]

Hey Amy,

I understand your frustration with suddenly losing your ability to

feed yourself - I lost a lot of my mobility after a lengthy hospital

stay few years ago. Have you tried drinking Boost or Ensure? I drink

one every night before bed to help with my weight. Sometimes I even

chug one or two in place of a meal if I'm crunched for time. This can

get pricey though, so I'd recommend getting a prescription if you go

with that route. I also drink a lot of Naked or Bolthouse Farms,

organic, highly concentrated fruit smoothies, which pack a lot of

calories and vitamins. They are also pretty filling and taste

awesome. Hang in there, you're not alone! It seems like all I can

handle these days are my mouse and joystick. I'm considering trying

out that amino acid diet in attempts to maintain what I do still have.

[Guest guest]

Danny uses a 40 oz mix of Juicy Juice Strawberry Kiwi and Sunny D

original flavor juice with 2 packets of tolerex which supplies 5

drinks over a 2-day period. The key for him is for it to be really

cold, and he quickly follows each large sip with a bite of food.

Danny's always been a pretty picky eater, so if the taste of the

tolerex mix isn't too much for him, then anyone should be able to get

it down with no problem.

If any of you do try the Amino Acid Diet/Tolerex, be sure that you

don't go by the packet directions for making it. It should be diluted

much more than the instructions say. Read the articles that were

posted by Suzanne or get more info from others who use it. The only

drawback is that the extra liquid intake means more frequent

urination, so he sometimes skips it if he'll be away from me for a

long stretch. If he skips drinking it for a day or two (if we are out

of town or on the road), he definitely feels a difference. I can't say

enough about how much it has helped Danny. You can really see the

difference between his pics in the photo section from 2003 and 2004 to

photos from this year...he is much healthier now.

>

> > Hey Amy,

> >

> > I understand your frustration with suddenly losing your ability to

> > feed yourself - I lost a lot of my mobility after a lengthy hospital

> > stay few years ago. Have you tried drinking Boost or Ensure? I drink

> > one every night before bed to help with my weight. Sometimes I even

> > chug one or two in place of a meal if I'm crunched for time. This can

> > get pricey though, so I'd recommend getting a prescription if you go

> > with that route. I also drink a lot of Naked or Bolthouse Farms,

> > organic, highly concentrated fruit smoothies, which pack a lot of

> > calories and vitamins. They are also pretty filling and taste

> > awesome. Hang in there, you're not alone! It seems like all I can

> > handle these days are my mouse and joystick. I'm considering trying

> > out that amino acid diet in attempts to maintain what I do still have.

> >

> >

> >

> >

> >

>

>

>

[Guest guest]

Amy,

I personally prefer the low profile Mic-key button. You can detach the long

extension tube which gives you the ability to clean it out, while with the

peg tube you can't. It also allows for less tugging when being moved etc. I

know many adult hospitals do not carry these b/c it's a ped thing (I dunno

why), but they can order them. Hopefully the IR doc is familiar with them. I

love my tube. Without it I'd waste away to nothing b/c I have such a

horrible appetite. I also do not have to swallow pills or drink nasty meds.

Kimi

" We come to love not by finding a perfect person but by learning to see an

imperfect person perfectly " - San Keen

In a message dated 12/26/2008 12:46:44 A.M. Eastern Standard Time,

blueyedaze@... writes:

can any tell me the difference between them, and pros/cons of each?

i'm gonna need one within 5 years, i'd assume, i'm so stressed about

how much i'm not eating, so sick of constantly being hungry, and

downright hate that i've lost almost all ability to feed myself. if i

didn't have kids, i'd get it done immediately.

amy

**************One site keeps you connected to all your email: AOL Mail,

Gmail, and Mail. Try it now.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

[Guest guest]

This really is a great tube! My wife and I have the same one.

Kemp

Director, OurGV Rewards

<http://www.ourgvrewards.com/> http://www.ourgvrewards.com

Phone: 714-974-5799

Business Phone: 714-974-5693

Cell Phone: 714-244-5920

Phone: 949-579-9465

Email 1: d-kemp@...

Email 2: dkemp@...

<http://www.ourgvmall.com/djk> banner021.jpg

<http://www.benefitbar.com/benefitbar/subscribe/toolbar.php?toolbarId=1500>

000-toolbar-banner-1

From: [mailto: ] On

Behalf Of Ksmile96@...

Sent: Sunday, December 28, 2008 11:23 AM

Subject: Re: gtube vs. peg

Amy,

I personally prefer the low profile Mic-key button. You can detach the long

extension tube which gives you the ability to clean it out, while with the

peg tube you can't. It also allows for less tugging when being moved etc. I

know many adult hospitals do not carry these b/c it's a ped thing (I dunno

why), but they can order them. Hopefully the IR doc is familiar with them. I

love my tube. Without it I'd waste away to nothing b/c I have such a

horrible appetite. I also do not have to swallow pills or drink nasty meds.

Kimi

" We come to love not by finding a perfect person but by learning to see an

imperfect person perfectly " - San Keen

In a message dated 12/26/2008 12:46:44 A.M. Eastern Standard Time,

blueyedaze@... <mailto:blueyedaze%40aol.com> writes:

can any tell me the difference between them, and pros/cons of each?

i'm gonna need one within 5 years, i'd assume, i'm so stressed about

how much i'm not eating, so sick of constantly being hungry, and

downright hate that i've lost almost all ability to feed myself. if i

didn't have kids, i'd get it done immediately.

amy

**************One site keeps you connected to all your email: AOL Mail,

Gmail, and Mail. Try it now.

(http://www.aol.com/?optin=new-dp

<http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000

025> & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

[Guest guest]

how long does it take to have one fitted and how is it different from the

peg one?confused

linda

2008/12/28 <d-kemp@...>

> This really is a great tube! My wife and I have the same one.

>

> Kemp

>

> Director, OurGV Rewards

>

> <http://www.ourgvrewards.com/> http://www.ourgvrewards.com

>

> Phone: 714-974-5799

>

> Business Phone: 714-974-5693

>

> Cell Phone: 714-244-5920

>

> Phone: 949-579-9465

>

> Email 1: d-kemp@... <d-kemp%40sbcglobal.net>

>

> Email 2: dkemp@... <dkemp%40ourgvrewards.com>

>

> <http://www.ourgvmall.com/djk> banner021.jpg

>

> <http://www.benefitbar.com/benefitbar/subscribe/toolbar.php?toolbarId=1500

> >

> 000-toolbar-banner-1

>

> From: <%40> [mailto:

> <%40>] On

> Behalf Of Ksmile96@... <Ksmile96%40aol.com>

> Sent: Sunday, December 28, 2008 11:23 AM

> <%40>

>

> Subject: Re: gtube vs. peg

>

> Amy,

> I personally prefer the low profile Mic-key button. You can detach the long

>

> extension tube which gives you the ability to clean it out, while with the

> peg tube you can't. It also allows for less tugging when being moved etc. I

>

> know many adult hospitals do not carry these b/c it's a ped thing (I dunno

> why), but they can order them. Hopefully the IR doc is familiar with them.

> I

>

> love my tube. Without it I'd waste away to nothing b/c I have such a

> horrible appetite. I also do not have to swallow pills or drink nasty meds.

>

>

> Kimi

>

> " We come to love not by finding a perfect person but by learning to see an

> imperfect person perfectly " - San Keen

>

> In a message dated 12/26/2008 12:46:44 A.M. Eastern Standard Time,

> blueyedaze@... <blueyedaze%40aol.com>

<mailto:blueyedaze%40aol.com<blueyedaze%2540aol.com>>

> writes:

>

> can any tell me the difference between them, and pros/cons of each?

> i'm gonna need one within 5 years, i'd assume, i'm so stressed about

> how much i'm not eating, so sick of constantly being hungry, and

> downright hate that i've lost almost all ability to feed myself. if i

> didn't have kids, i'd get it done immediately.

>

> amy

>

> **************One site keeps you connected to all your email: AOL Mail,

> Gmail, and Mail. Try it now.

> (http://www.aol.com/?optin=new-dp

> <

> http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000

> 025> & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

>

>

[Guest guest]

I can only tell you about what ne has, which is a " button " ---

Mic-Key<http://www.mic-key.com/>.

It is literally a button that sits flush with her skin, sticking up only

about <1/4 " . When she swims in her 1 piece suit, you cannot see the button.

It has a " tail " that is removable, an is used only when actually hooked to

the feeding pump. With the tail detached, there is nothing to get

accidentally pulled. I change ne's button at home, and from the time I

open the kit, wash my hands, remove the old button and replace the new, it

takes 15 minutes --- tops. We usually change it every 4-6 weeks.

ne is at an age where kids are very concerned about being or looking

different. Because she is fed on a continuous basis during the day (what

works best for her), her pump hangs in a backpack on the back of her

wheelchair and the tube snakes down her shirt, around her waist and through

the back of her wheelchair. It is not noticeable. ne will tell you that

she NEVER wants her g-tube/button removed. She knows how much better she

feels with it, and even if it does make her different, she wants to keep it.

Some folks use the feeding pump only at night. Others " bolus " -- feed at

specific times during the day. I like the fact that by feeding ne at a

steady rate throughout the day, I keep her blood sugar stable. ne

doesn't eat breakfast before school -- never has. So the feeds start shortly

after she gets up, and runs throughout the day. She usually eats a light

lunch at school, and dinner at home. We shut the pump off at times during

the day, especially around meals, or when she feels full. It is off at

bedtime.

Suzanne

Jesus said, ' " I tell you the truth, when you refused to help the least of

these, my brothers and sisters, you were refusing to help Me. " 25:45

<><

For the latest and greatest, visit: www.our-sma-angels.com/neRose

On Sun, Dec 28, 2008 at 6:58 PM, Moss <lindajmoss@...> wrote:

> how long does it take to have one fitted and how is it different from

> the

> peg one?confused

> linda

>

> 2008/12/28 <d-kemp@... <d-kemp%40sbcglobal.net>>

>

> > This really is a great tube! My wife and I have the same one.

> >

> > Kemp

> >

> > Director, OurGV Rewards

> >

> > <http://www.ourgvrewards.com/> http://www.ourgvrewards.com

> >

> > Phone: 714-974-5799

> >

> > Business Phone: 714-974-5693

> >

> > Cell Phone: 714-244-5920

> >

> > Phone: 949-579-9465

> >

> > Email 1: d-kemp@... <d-kemp%40sbcglobal.net> <d-kemp%

> 40sbcglobal.net>

> >

> > Email 2: dkemp@... <dkemp%40ourgvrewards.com> <dkemp%

> 40ourgvrewards.com>

> >

> > <http://www.ourgvmall.com/djk> banner021.jpg

> >

> > <

> http://www.benefitbar.com/benefitbar/subscribe/toolbar.php?toolbarId=1500

> > >

> > 000-toolbar-banner-1

> >

> > From: <%40><%

> 40> [mailto:

> > <%40> <%

> 40>] On

> > Behalf Of Ksmile96@... <Ksmile96%40aol.com> <Ksmile96%40aol.com>

> > Sent: Sunday, December 28, 2008 11:23 AM

> > <%40><%

> 40>

> >

> > Subject: Re: gtube vs. peg

> >

> > Amy,

> > I personally prefer the low profile Mic-key button. You can detach the

> long

> >

> > extension tube which gives you the ability to clean it out, while with

> the

> > peg tube you can't. It also allows for less tugging when being moved etc.

> I

> >

> > know many adult hospitals do not carry these b/c it's a ped thing (I

> dunno

> > why), but they can order them. Hopefully the IR doc is familiar with

> them.

> > I

> >

> > love my tube. Without it I'd waste away to nothing b/c I have such a

> > horrible appetite. I also do not have to swallow pills or drink nasty

> meds.

> >

> >

> > Kimi

> >

> > " We come to love not by finding a perfect person but by learning to see

> an

> > imperfect person perfectly " - San Keen

> >

> > In a message dated 12/26/2008 12:46:44 A.M. Eastern Standard Time,

> > blueyedaze@... <blueyedaze%40aol.com> <blueyedaze%40aol.com>

> <mailto:blueyedaze%40aol.com <blueyedaze%2540aol.com><blueyedaze%

> 2540aol.com>>

> > writes:

> >

> > can any tell me the difference between them, and pros/cons of each?

> > i'm gonna need one within 5 years, i'd assume, i'm so stressed about

> > how much i'm not eating, so sick of constantly being hungry, and

> > downright hate that i've lost almost all ability to feed myself. if i

> > didn't have kids, i'd get it done immediately.

> >

> > amy

> >

> > **************One site keeps you connected to all your email: AOL Mail,

> > Gmail, and Mail. Try it now.

> > (http://www.aol.com/?optin=new-dp

> > <

> >

> http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000

> > 025> & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

> >

> >

[Guest guest]

Can it be placed under a local?

On Dec 28, 2008, at 7:30 PM, Suzanne wrote:

> I can only tell you about what ne has, which is a " button " ---

> Mic-Key<http://www.mic-key.com/>.

> It is literally a button that sits flush with her skin, sticking up

> only

> about <1/4 " . When she swims in her 1 piece suit, you cannot see the

> button.

> It has a " tail " that is removable, an is used only when actually

> hooked to

> the feeding pump. With the tail detached, there is nothing to get

> accidentally pulled. I change ne's button at home, and from the

> time I

> open the kit, wash my hands, remove the old button and replace the

> new, it

> takes 15 minutes --- tops. We usually change it every 4-6 weeks.

>

> ne is at an age where kids are very concerned about being or

> looking

> different. Because she is fed on a continuous basis during the day

> (what

> works best for her), her pump hangs in a backpack on the back of her

> wheelchair and the tube snakes down her shirt, around her waist and

> through

> the back of her wheelchair. It is not noticeable. ne will tell

> you that

> she NEVER wants her g-tube/button removed. She knows how much better

> she

> feels with it, and even if it does make her different, she wants to

> keep it.

>

> Some folks use the feeding pump only at night. Others " bolus " --

> feed at

> specific times during the day. I like the fact that by feeding

> ne at a

> steady rate throughout the day, I keep her blood sugar stable. ne

> doesn't eat breakfast before school -- never has. So the feeds start

> shortly

> after she gets up, and runs throughout the day. She usually eats a

> light

> lunch at school, and dinner at home. We shut the pump off at times

> during

> the day, especially around meals, or when she feels full. It is off at

> bedtime.

>

> Suzanne

>

> Jesus said, ' " I tell you the truth, when you refused to help the

> least of

> these, my brothers and sisters, you were refusing to help Me. "

> 25:45

> <><

>

> For the latest and greatest, visit: www.our-sma-angels.com/neRose

>

> On Sun, Dec 28, 2008 at 6:58 PM, Moss <lindajmoss@...>

> wrote:

>

> > how long does it take to have one fitted and how is it different

> from

> > the

> > peg one?confused

> > linda

> >

> > 2008/12/28 <d-kemp@... <d-kemp%40sbcglobal.net>>

> >

> > > This really is a great tube! My wife and I have the same one.

> > >

> > > Kemp

> > >

> > > Director, OurGV Rewards

> > >

> > > <http://www.ourgvrewards.com/> http://www.ourgvrewards.com

> > >

> > > Phone: 714-974-5799

> > >

> > > Business Phone: 714-974-5693

> > >

> > > Cell Phone: 714-244-5920

> > >

> > > Phone: 949-579-9465

> > >

> > > Email 1: d-kemp@... <d-kemp%40sbcglobal.net> <d-kemp%

> > 40sbcglobal.net>

> > >

> > > Email 2: dkemp@... <dkemp%40ourgvrewards.com> <dkemp%

> > 40ourgvrewards.com>

> > >

> > > <http://www.ourgvmall.com/djk> banner021.jpg

> > >

> > > <

> > http://www.benefitbar.com/benefitbar/subscribe/toolbar.php?toolbarId=1500

> > > >

> > > 000-toolbar-banner-1

> > >

> > > From: <

> %40><%

> > 40> [mailto:

> > > <%40>

> <%

> > 40>] On

> > > Behalf Of Ksmile96@... <Ksmile96%40aol.com>

> <Ksmile96%40aol.com>

> > > Sent: Sunday, December 28, 2008 11:23 AM

> > > <

> %40><%

> > 40>

> > >

> > > Subject: Re: gtube vs. peg

> > >

> > > Amy,

> > > I personally prefer the low profile Mic-key button. You can

> detach the

> > long

> > >

> > > extension tube which gives you the ability to clean it out,

> while with

> > the

> > > peg tube you can't. It also allows for less tugging when being

> moved etc.

> > I

> > >

> > > know many adult hospitals do not carry these b/c it's a ped

> thing (I

> > dunno

> > > why), but they can order them. Hopefully the IR doc is familiar

> with

> > them.

> > > I

> > >

> > > love my tube. Without it I'd waste away to nothing b/c I have

> such a

> > > horrible appetite. I also do not have to swallow pills or drink

> nasty

> > meds.

> > >

> > >

> > > Kimi

> > >

> > > " We come to love not by finding a perfect person but by learning

> to see

> > an

> > > imperfect person perfectly " - San Keen

> > >

> > > In a message dated 12/26/2008 12:46:44 A.M. Eastern Standard Time,

> > > blueyedaze@... <blueyedaze%40aol.com> <blueyedaze%40aol.com>

> > <mailto:blueyedaze%40aol.com <blueyedaze%2540aol.com><blueyedaze%

> > 2540aol.com>>

> > > writes:

> > >

> > > can any tell me the difference between them, and pros/cons of

> each?

> > > i'm gonna need one within 5 years, i'd assume, i'm so stressed

> about

> > > how much i'm not eating, so sick of constantly being hungry, and

> > > downright hate that i've lost almost all ability to feed myself.

> if i

> > > didn't have kids, i'd get it done immediately.

> > >

> > > amy

> > >

> > > **************One site keeps you connected to all your email:

> AOL Mail,

> > > Gmail, and Mail. Try it now.

> > > (http://www.aol.com/?optin=new-dp

> > > <

> > >

> > http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000

> > > 025> & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

> > >

> > >

[Guest guest]

Yes, it can, and it should be for an SMA patient. (Avoid a General if at all

possible.) Don't let a doc tell you differently!

Jesus said, ' " I tell you the truth, when you refused to help the least of

these, my brothers and sisters, you were refusing to help Me. " 25:45

<><

For the latest and greatest, visit: www.our-sma-angels.com/neRose

On Sun, Dec 28, 2008 at 8:01 PM, Amy <blueyedaze@...> wrote:

> Can it be placed under a local?

>

> On Dec 28, 2008, at 7:30 PM, Suzanne wrote:

>

> > I can only tell you about what ne has, which is a " button " ---

> > Mic-Key<http://www.mic-key.com/>.

>

> > It is literally a button that sits flush with her skin, sticking up

> > only

> > about <1/4 " . When she swims in her 1 piece suit, you cannot see the

> > button.

> > It has a " tail " that is removable, an is used only when actually

> > hooked to

> > the feeding pump. With the tail detached, there is nothing to get

> > accidentally pulled. I change ne's button at home, and from the

> > time I

> > open the kit, wash my hands, remove the old button and replace the

> > new, it

> > takes 15 minutes --- tops. We usually change it every 4-6 weeks.

> >

> > ne is at an age where kids are very concerned about being or

> > looking

> > different. Because she is fed on a continuous basis during the day

> > (what

> > works best for her), her pump hangs in a backpack on the back of her

> > wheelchair and the tube snakes down her shirt, around her waist and

> > through

> > the back of her wheelchair. It is not noticeable. ne will tell

> > you that

> > she NEVER wants her g-tube/button removed. She knows how much better

> > she

> > feels with it, and even if it does make her different, she wants to

> > keep it.

> >

> > Some folks use the feeding pump only at night. Others " bolus " --

> > feed at

> > specific times during the day. I like the fact that by feeding

> > ne at a

> > steady rate throughout the day, I keep her blood sugar stable. ne

> > doesn't eat breakfast before school -- never has. So the feeds start

> > shortly

> > after she gets up, and runs throughout the day. She usually eats a

> > light

> > lunch at school, and dinner at home. We shut the pump off at times

> > during

> > the day, especially around meals, or when she feels full. It is off at

> > bedtime.

> >

> > Suzanne

> >

> > Jesus said, ' " I tell you the truth, when you refused to help the

> > least of

> > these, my brothers and sisters, you were refusing to help Me. "

> > 25:45

> > <><

> >

> > For the latest and greatest, visit: www.our-sma-angels.com/neRose

> >

> > On Sun, Dec 28, 2008 at 6:58 PM, Moss

<lindajmoss@...<lindajmoss%40gmail.com>>

>

> > wrote:

> >

> > > how long does it take to have one fitted and how is it different

> > from

> > > the

> > > peg one?confused

> > > linda

> > >

> > > 2008/12/28 <d-kemp@... <d-kemp%40sbcglobal.net><d-kemp%

> 40sbcglobal.net>>

> > >

> > > > This really is a great tube! My wife and I have the same one.

> > > >

> > > > Kemp

> > > >

> > > > Director, OurGV Rewards

> > > >

> > > > <http://www.ourgvrewards.com/> http://www.ourgvrewards.com

> > > >

> > > > Phone: 714-974-5799

> > > >

> > > > Business Phone: 714-974-5693

> > > >

> > > > Cell Phone: 714-244-5920

> > > >

> > > > Phone: 949-579-9465

> > > >

> > > > Email 1: d-kemp@... <d-kemp%40sbcglobal.net> <d-kemp%

> 40sbcglobal.net> <d-kemp%

> > > 40sbcglobal.net>

> > > >

> > > > Email 2: dkemp@... <dkemp%40ourgvrewards.com> <dkemp%

> 40ourgvrewards.com> <dkemp%

> > > 40ourgvrewards.com>

> > > >

> > > > <http://www.ourgvmall.com/djk> banner021.jpg

> > > >

> > > > <

> > >

> http://www.benefitbar.com/benefitbar/subscribe/toolbar.php?toolbarId=1500

> > > > >

> > > > 000-toolbar-banner-1

> > > >

> > > > From:

<%40><

> > %40><%

> > > 40> [mailto:

> > > > <%40><%

> 40>

> > <%

> > > 40>] On

> > > > Behalf Of Ksmile96@... <Ksmile96%40aol.com> <Ksmile96%40aol.com>

>

> > <Ksmile96%40aol.com>

> > > > Sent: Sunday, December 28, 2008 11:23 AM

> > > > <%40><

> > %40><%

>

> > > 40>

> > > >

> > > > Subject: Re: gtube vs. peg

> > > >

> > > > Amy,

> > > > I personally prefer the low profile Mic-key button. You can

> > detach the

> > > long

> > > >

> > > > extension tube which gives you the ability to clean it out,

> > while with

> > > the

> > > > peg tube you can't. It also allows for less tugging when being

> > moved etc.

> > > I

> > > >

> > > > know many adult hospitals do not carry these b/c it's a ped

> > thing (I

> > > dunno

> > > > why), but they can order them. Hopefully the IR doc is familiar

> > with

> > > them.

> > > > I

> > > >

> > > > love my tube. Without it I'd waste away to nothing b/c I have

> > such a

> > > > horrible appetite. I also do not have to swallow pills or drink

> > nasty

> > > meds.

> > > >

> > > >

> > > > Kimi

> > > >

> > > > " We come to love not by finding a perfect person but by learning

> > to see

> > > an

> > > > imperfect person perfectly " - San Keen

> > > >

> > > > In a message dated 12/26/2008 12:46:44 A.M. Eastern Standard Time,

> > > > blueyedaze@... <blueyedaze%40aol.com> <blueyedaze%40aol.com>

> <blueyedaze%40aol.com>

> > > <mailto:blueyedaze%40aol.com <blueyedaze%2540aol.com> <blueyedaze%

> 2540aol.com><blueyedaze%

> > > 2540aol.com>>

> > > > writes:

> > > >

> > > > can any tell me the difference between them, and pros/cons of

> > each?

> > > > i'm gonna need one within 5 years, i'd assume, i'm so stressed

> > about

> > > > how much i'm not eating, so sick of constantly being hungry, and

> > > > downright hate that i've lost almost all ability to feed myself.

> > if i

> > > > didn't have kids, i'd get it done immediately.

> > > >

> > > > amy

> > > >

> > > > **************One site keeps you connected to all your email:

> > AOL Mail,

> > > > Gmail, and Mail. Try it now.

> > > > (http://www.aol.com/?optin=new-dp

> > > > <

> > > >

> > >

> http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000

> > > > 025> & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

> > > >

> > > >

[Guest guest]

Thank you so much! Both my c-sections were done under general, and

while all went well, I'd like to another awake intubation at all costs.

On Dec 28, 2008, at 8:27 PM, Suzanne wrote:

> Yes, it can, and it should be for an SMA patient. (Avoid a General

> if at all

> possible.) Don't let a doc tell you differently!

[Guest guest]

It's a surgical procedure, but it can be done with a local. The surgeon will

measure the incision for the right size tube.

Kemp

Director, OurGV Rewards

<http://www.ourgvrewards.com/> http://www.ourgvrewards.com

Phone: 714-974-5799

Business Phone: 714-974-5693

Cell Phone: 714-244-5920

Phone: 949-579-9465

Email 1: d-kemp@...

Email 2: dkemp@...

<http://www.ourgvmall.com/djk> banner021.jpg

<http://www.benefitbar.com/benefitbar/subscribe/toolbar.php?toolbarId=1500>

000-toolbar-banner-1

From: [mailto: ] On

Behalf Of Moss

Sent: Sunday, December 28, 2008 3:59 PM

Subject: Re: gtube vs. peg

how long does it take to have one fitted and how is it different from the

peg one?confused

linda

2008/12/28 <d-kemp@... <mailto:d-kemp%40sbcglobal.net> >

> This really is a great tube! My wife and I have the same one.

>

> Kemp

>

> Director, OurGV Rewards

>

> <http://www.ourgvrewards.com/> http://www.ourgvrewards.com

>

> Phone: 714-974-5799

>

> Business Phone: 714-974-5693

>

> Cell Phone: 714-244-5920

>

> Phone: 949-579-9465

>

> Email 1: d-kemp@... <mailto:d-kemp%40sbcglobal.net>

<d-kemp%40sbcglobal.net>

>

> Email 2: dkemp@... <mailto:dkemp%40ourgvrewards.com>

<dkemp%40ourgvrewards.com>

>

> <http://www.ourgvmall.com/djk> banner021.jpg

>

> <http://www.benefitbar.com/benefitbar/subscribe/toolbar.php?toolbarId=1500

> >

> 000-toolbar-banner-1

>

> From: <mailto:%40>

<%40> [mailto:

> <mailto:%40>

<%40>] On

> Behalf Of Ksmile96@... <mailto:Ksmile96%40aol.com>

<Ksmile96%40aol.com>

> Sent: Sunday, December 28, 2008 11:23 AM

> <mailto:%40>

<%40>

>

> Subject: Re: gtube vs. peg

>

> Amy,

> I personally prefer the low profile Mic-key button. You can detach the

long

>

> extension tube which gives you the ability to clean it out, while with the

> peg tube you can't. It also allows for less tugging when being moved etc.

I

>

> know many adult hospitals do not carry these b/c it's a ped thing (I dunno

> why), but they can order them. Hopefully the IR doc is familiar with them.

> I

>

> love my tube. Without it I'd waste away to nothing b/c I have such a

> horrible appetite. I also do not have to swallow pills or drink nasty

meds.

>

>

> Kimi

>

> " We come to love not by finding a perfect person but by learning to see an

> imperfect person perfectly " - San Keen

>

> In a message dated 12/26/2008 12:46:44 A.M. Eastern Standard Time,

> blueyedaze@... <mailto:blueyedaze%40aol.com> <blueyedaze%40aol.com>

<mailto:blueyedaze%40aol.com<blueyedaze%2540aol.com>>

> writes:

>

> can any tell me the difference between them, and pros/cons of each?

> i'm gonna need one within 5 years, i'd assume, i'm so stressed about

> how much i'm not eating, so sick of constantly being hungry, and

> downright hate that i've lost almost all ability to feed myself. if i

> didn't have kids, i'd get it done immediately.

>

> amy

>

> **************One site keeps you connected to all your email: AOL Mail,

> Gmail, and Mail. Try it now.

> (http://www.aol.com/?optin=new-dp

> <

> http://www.aol.com/?optin=new-dp

<http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000

> & icid=aolcom40vanity & ncid=emlcntaolcom00000

> 025> & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

>

>

[Guest guest]

,

The peg tube is the type of tube that reminds me of a garden hose. There is

always a tube hanging from your stomach. The Mic-key button is more flush

with the skin, and you can disconnect the tube that hangs from your stomach

when not accessing the tube. It's more inconspicuous.

Kimi

}i{ Visit my myspace page and blogs: _www.myspace.com/ksmile96_

(http://www.myspace.com/ksmile96) }i{

" When you're gone, the pieces of my heart are missing you. When you're

gone, the face I used to know is missing too. When you're gone all the words I

need to hear to always get me thru the day and make it ok. I miss you. "

-Avril Lavigne

In a message dated 12/28/2008 6:58:50 P.M. Eastern Standard Time,

lindajmoss@... writes:

how long does it take to have one fitted and how is it different from the

peg one?confused

linda

2008/12/28 <_d-kemp@..._ (mailto:d-kemp@...) >

> This really is a great tube! My wife and I have the same one.

>

> Kemp

>

> Director, OurGV Rewards

>

> <_http://www.ourgvrewhttp://ww_ (http://www.ourgvrewards.com/) >

_http://www.ourgvrewhttp://w_ (http://www.ourgvrewards.com/)

>

> Phone: 714-974-5799

>

> Business Phone: 714-974-5693

>

> Cell Phone: 714-244-5920

>

> Phone: 949-579-9465

>

> Email 1: _d-kemp@..._ (mailto:d-kemp@...)

<d-kemp%40sbcglobald-ke>

>

> Email 2: _dkemp@..._ (mailto:dkemp@...)

<dkemp%40ourgvrewardkemp%>

>

> <_http://www.ourgvmalhttp://ww_ (http://www.ourgvmall.com/djk) >

banner021.jpg

>

>

<_http://www.benefitbhttp://www.benefhttp://www.bhttp://www.bhttp://wwwhttp_

(http://www.benefitbar.com/benefitbar/subscribe/toolbar.php?toolbarId=1500)

> >

> 000-toolbar- 000-too

>

> From: _@groSMAfrie_ (mailto: )

<%%<WBSMA> [mailto:

> _@groSMAfrie_ (mailto: )

<%%<WBSMA>] On

> Behalf Of _Ksmile96@..._ (mailto:Ksmile96@...)

<Ksmile96%40aol.Ksm>

> Sent: Sunday, December 28, 2008 11:23 AM

> _@groSMAfrie_ (mailto: )

<%%<WBSMA>

>

> Subject: Re: gtube vs. peg

>

> Amy,

> I personally prefer the low profile Mic-key button. You can detach the long

>

> extension tube which gives you the ability to clean it out, while with the

> peg tube you can't. It also allows for less tugging when being moved etc. I

>

> know many adult hospitals do not carry these b/c it's a ped thing (I dunno

> why), but they can order them. Hopefully the IR doc is familiar with them.

> I

>

> love my tube. Without it I'd waste away to nothing b/c I have such a

> horrible appetite. I also do not have to swallow pills or drink nasty meds.

>

>

> Kimi

>

> " We come to love not by finding a perfect person but by learning to see an

> imperfect person perfectly " - San Keen

>

> In a message dated 12/26/2008 12:46:44 A.M. Eastern Standard Time,

> _blueyedaze@..._ (mailto:blueyedaze@...) <blueyedaze%blueyedaz>

<mailto:blueyedaze%mailto:bl<<WBR>blueye<WBR>blueye>>

> writes:

>

> can any tell me the difference between them, and pros/cons of each?

> i'm gonna need one within 5 years, i'd assume, i'm so stressed about

> how much i'm not eating, so sick of constantly being hungry, and

> downright hate that i've lost almost all ability to feed myself. if i

> didn't have kids, i'd get it done immediately.

>

> amy

>

> ************ ************<WBR>**One site keeps you connected to all you

> Gmail, and Mail. Try it now.

> (_http://www.aol.http://www.http:/_ (http://www.aol.com/?optin=new-dp)

> <

>

_http://www.aol.http://www.http:/ & icid=icid=<WBR>aolc & <WBR>ncid=emlcnt<WBR>n_

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000)

> 025> & icid=aolcom40vaniti & ncid=emlcntaolncid=emlcnta

>

>

[Guest guest]

I know, sorry i make a mistake.  I ment I highly recomment the button tube.

Kemp

From: Ksmile96@... <Ksmile96@...>

Subject: Re: gtube vs. peg

Date: Monday, December 29, 2008, 3:29 PM

,

The peg tube is the type of tube that reminds me of a garden hose. There is

always a tube hanging from your stomach. The Mic-key button is more flush

with the skin, and you can disconnect the tube that hangs from your stomach

when not accessing the tube. It's more inconspicuous.

Kimi

}i{ Visit my myspace page and blogs: _www.myspace. com/ksmile96_

(http://www.myspace. com/ksmile96) }i{

" When you're gone, the pieces of my heart are missing you. When you're

gone, the face I used to know is missing too. When you're gone all the words I

need to hear to always get me thru the day and make it ok. I miss you. "

-Avril Lavigne

In a message dated 12/28/2008 6:58:50 P.M. Eastern Standard Time,

lindajmossgmail (DOT) com writes:

how long does it take to have one fitted and how is it different from the

peg one?confused

linda

2008/12/28 <_d-kempsbcglobal (DOT) d-k_ (mailto:d-kempsbcglobal (DOT) net) >

> This really is a great tube! My wife and I have the same one.

>

> Kemp

>

> Director, OurGV Rewards

>

> <_http://www.ourgvrew http://ww_ (http://www.ourgvrew ards.com/) >

_http://www.ourgvrew http://w_ (http://www.ourgvrew ards.com/)

>

> Phone: 714-974-5799

>

> Business Phone: 714-974-5693

>

> Cell Phone: 714-244-5920

>

> Phone: 949-579-9465

>

> Email 1: _d-kempsbcglobal (DOT) d-k_ (mailto:d-kempsbcglobal (DOT) net)

<d-kemp%40sbcglobal d-ke>

>

> Email 2: _dkemp@ourgvrewards .dke_ (mailto:dkempourgvrewards (DOT) com)

<dkemp%40ourgvrewar dkemp%>

>

> <_http://www.ourgvmal http://ww_ (http://www.ourgvmal l.com/djk) >

banner021.jpg

>

>

<_http://www.benefitb http://www. benefhttp: //www.bhttp: //www.bhttp:

//wwwhttp_ (http://www.benefitb ar.com/benefitba r/subscribe/ toolbar.php?

toolbarId= 1500)

> >

> 000-toolbar- 000-too

>

> From: _@ groSMAfrie_ (mailto:@gro ups.com)

<% % <WBSMA> [mailto:

> _@ groSMAfrie_ (mailto:@gro ups.com)

<% % <WBSMA>] On

> Behalf Of _Ksmile96aol (DOT) Ksm_ (mailto:Ksmile96aol (DOT) com)

<Ksmile96%40aol. Ksm>

> Sent: Sunday, December 28, 2008 11:23 AM

> _@ groSMAfrie_ (mailto:@gro ups.com)

<% % <WBSMA>

>

> Subject: Re: gtube vs. peg

>

> Amy,

> I personally prefer the low profile Mic-key button. You can detach the long

>

> extension tube which gives you the ability to clean it out, while with the

> peg tube you can't. It also allows for less tugging when being moved etc. I

>

> know many adult hospitals do not carry these b/c it's a ped thing (I dunno

> why), but they can order them. Hopefully the IR doc is familiar with them.

> I

>

> love my tube. Without it I'd waste away to nothing b/c I have such a

> horrible appetite. I also do not have to swallow pills or drink nasty meds.

>

>

> Kimi

>

> " We come to love not by finding a perfect person but by learning to see an

> imperfect person perfectly " - San Keen

>

> In a message dated 12/26/2008 12:46:44 A.M. Eastern Standard Time,

> _blueyedaze@ aol.blu_ (mailto:blueyedazeaol (DOT) com) <blueyedaze% blueyedaz>

<mailto:blueyedaze% mailto:bl< <WBR>blueye< WBR>blueye> >

> writes:

>

> can any tell me the difference between them, and pros/cons of each?

> i'm gonna need one within 5 years, i'd assume, i'm so stressed about

> how much i'm not eating, so sick of constantly being hungry, and

> downright hate that i've lost almost all ability to feed myself. if i

> didn't have kids, i'd get it done immediately.

>

> amy

>

> ************ ************ <WBR>**One site keeps you connected to all you

> Gmail, and Mail. Try it now.

> (_http://www.aol. http://www. http:/_ (http://www.aol. com/?optin= new-dp)

> <

>

_http://www.aol. http://www. http:/ & icid= icid=<WBR>aolc & <WBR> ncid=emlcnt<

WBR>n_

(http://www.aol. com/?optin= new-dp & icid= aolcom40vanity & ncid=emlcntaolco

m00000)

> 025> & icid=aolcom40vanit i & ncid=emlcntaol ncid=emlcnta

>

>