Amino Acid Diet (AAD)

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I found this article

http://bradfisher.com/images/client_pics/The%20Full%20Article%20on%20the%20Amino\

%20Acid%20Diet.pdf

and this one http://www.smasupport.com/diet.htm

Are any adults in our group on this diet?  If so, do/did you find it helped?

Lori

________________________________

From: Suzanne <erinnesmom@...>

Sent: Friday, December 26, 2008 8:07:02 PM

Subject: Re: gtube vs. peg

A G-tube can be placed in Intervention Radiology under a local anesthetic

with light ( " twilight " ) sedation and go home the same day. Don't let anyone

tell you it HAS to be placed using a general. That is NOT true. Shop around

till you find a doc who will do it that way.

Those of us coming up through the ranks now (moms & dads of older kids) can

tell you that the nutrition is a HUGE component to managing strength issues

with SMA. And following an amino acid diet has made a tremendous difference

in our childrens' health & strength. Maybe the attached articles will help

explain. One of the key components of the AA diet is that dairy & meat

products require a great deal of energy expenditure from a person with SMA

to breakdown and utilize. Proteins in the form of medium (or simple)

branch-chained amino acids are the easiest for an SMA person to breakdown.

Products like Ensure which are milk-based are much more difficult to break

down and are not " ideal " proteins for someone with SMA.

The AA diet has kinda become " my thing " so if you have any questions, please

don't hesitate to ask!!!

Suzanne

Mom to ne, type 2, age 11 1/2yrs (5'8 " & 125lbs)

Jesus said, ' " I tell you the truth, when you refused to help the least of

these, my brothers and sisters, you were refusing to help Me. " 25:45

<><

For the latest and greatest, visit: www.our-sma- angels.com/ neRose

On Fri, Dec 26, 2008 at 7:55 PM, Amy <blueyedazeaol (DOT) com> wrote:

> Sucks, doesn't it? Will has been overly sensitive, trying to help me

> all he can... I just feel so damn useless. I can drive my chair and

> use my ipod- I know it could be worse, but it's all a combination of

> not being able to go out alone, this shitty weather with 4 " snowbanks,

> turning 30 soon. Ugh. I'll work through it, I always do.

>

> I will look into that. Calling Monday.

>

> thanks, L. =)

>

> On Dec 26, 2008, at 7:48 PM, Lori G wrote:

>

> > I am experiencing the same thing. My right wrist (my " good " hand)

> > is suddenly very weak even with all the positioning we do. Maybe

> > it's the lack of a good sleep or my poor nutrition or both. Or

> > maybe it's the effect of all the antihistamines I am taking to help

> > with the aspiration situation. Don't know, don't know. I think I

> > will be drinking more Ensure.

> >

> > At the hospital I work at, g-tube placement is an out-patient

> > procedure (even for ALS patients). Maybe you can do that.

>

>

>