Re: SCD

[Guest guest]

Last thing I want to do is get another diet group mad at me (lol!) but I have to

put in

my two cents here.

The premise of the SCD diet is that by only having simple sugars (glucose) in

the gut,

the bad bacteria and yeast will starve since they rely on carbohydrates as a

food

source. Also, simple sugars are transported out of the gut very quickly so they

don't

hang around the gut anyway.

Here again, enzymes may help. Carbohydrase enzymes (amylase, lactase,

galactosidase, glucoamylase, etc.) will convert complex carbohydrates to simple

sugars. They work on starches and fibers that bacteria feed on. Getting the

right

combination of carbohydrase enzymes may allow some flexibility in what your

child

can and cannot have.

BTW, " SCD-legal " versions of HNI products should be available by end of year or

so.

We were able to find an oil that has no carbs, is not from grains and is

actually

nutritionally beneficial. This will allow us to maintain consistent weights of

the

capsules, which can be a problem with those products using only cellulose as a

filler

(too fluffy, and does not pack well, some caps will have less product than

others,

which can lead to inconsistent dosing).

My manufacturer, National Enzyme, is to be commended for going the extra mile to

help me find a solution and actually enhance HNI's products.

Devin

> Hello all,

>

> I am curious, what do your children eat on the SCD diet? I think GFCF was

> ultimately not too bad for because I was able to substitute his carbs

> (pretzels, brownies, cakes, cookies...).

>

> I have to force protein down his throat although lately he will eat GFCF

> chicken nuggets and broiled fish readily--I think he has given up the fight. I

> also found a steak dish he will eat with rice sour cream but again--except for

> the fish, there are carbs involved.

>

> I see SCD as a lot more limiting for a kid than GFCF. Any suggestions would

> be greatly appreciated.

>

> Thanks,

> Robin

>

>

>

[Guest guest]

> Last thing I want to do is get another diet group mad at me (lol!)

but I have to put in

> my two cents here.

>

> The premise of the SCD diet is that by only having simple sugars

(glucose) in the gut,

> the bad bacteria and yeast will starve since they rely on

carbohydrates as a food

> source. Also, simple sugars are transported out of the gut very

quickly so they don't

> hang around the gut anyway.

>

> Here again, enzymes may help. Carbohydrase enzymes (amylase,

lactase,

> galactosidase, glucoamylase, etc.) will convert complex

carbohydrates to simple

> sugars. They work on starches and fibers that bacteria feed on.

Getting the right

> combination of carbohydrase enzymes may allow some flexibility in

what your child

> can and cannot have.

>

> BTW, " SCD-legal " versions of HNI products should be available by

end of year or so.

> We were able to find an oil that has no carbs, is not from grains

and is actually

> nutritionally beneficial. This will allow us to maintain

consistent weights of the

> capsules, which can be a problem with those products using only

cellulose as a filler

> (too fluffy, and does not pack well, some caps will have less

product than others,

> which can lead to inconsistent dosing).

>

> My manufacturer, National Enzyme, is to be commended for going the

extra mile to

> help me find a solution and actually enhance HNI's products.

>

> Devin

>

Devon,

> > > Thank you for the easily understood explanation, A boon to

those of us desperatly trying to catch up! )

>

> >

>

> >

> >

> >

[Guest guest]

>

> Here again, enzymes may help. Carbohydrase enzymes (amylase,

lactase,

> galactosidase, glucoamylase, etc.) will convert complex

carbohydrates to simple

> sugars. They work on starches and fibers that bacteria feed on.

Getting the right

> combination of carbohydrase enzymes may allow some flexibility in

what your child

> can and cannot have.

Devin,

Thank you so much! Do you think zyme prime is enough for this, or

would you recommend another, more specific carbohydrase type enzyme?

(anything in the works???? :-). Specifically, do you think zyme

prime is enough to cover the gums in the brainchild vit/min and the

inulin in culturelle?

Thanks again, Devin. You're the best! (can't wait for the scd legal

hni enzymes).

Peace and grace,

Sally, mom to

Tom, 8yo dx AS but on the road to recovery

Ben, 6yo NT by the grace of God

Gracie, 2yo NT and unvaccinated

>

[Guest guest]

Robin:

We started the SCD about 3 weeks ago and it is a lot easier than I expected as

long as you are willing to use honey. We do a lot of almond flour breads, pizza

crusts and cakes. My son is IgG to almonds, but he handles it okay.

We struggle with protein as well, but after we passed the week of " withdrawl " he

is eating more beef and turkey than he ever has. The book has a lot of good

ideas and there are many recipes on the web.

Give it a try it is just as easy(or difficult)as before, but it actually has a

lot more nutrition in the baked goods that we were making before with rice flour

and potato flour.

Good luck

SCD

Hello all,

I am curious, what do your children eat on the SCD diet? I think GFCF was

ultimately not too bad for because I was able to substitute his carbs

(pretzels, brownies, cakes, cookies...).

I have to force protein down his throat although lately he will eat GFCF

chicken nuggets and broiled fish readily--I think he has given up the fight. I

also found a steak dish he will eat with rice sour cream but again--except for

the fish, there are carbs involved.

I see SCD as a lot more limiting for a kid than GFCF. Any suggestions would

be greatly appreciated.

Thanks,

Robin

[Guest guest]

The basic thing I see is that many restrictive diets focus on

eliminating whatever foods are seen to cause the perceived problem

because they are not digested. Enzymes digest food. So that is why

taking enzymes can replace many of the food eliminations.

I also think it important not to just toss out something that is

working well. So Ojibwa Tea or Brainchilds or something else is

workin, then thought should be put into it before eliminating it.

Many of the very good supplements came out AFTER these diets were

devised, so their effectiveness in the overall scheme of things

wasn't evaluated. So many one had to eliminate dairy before but now

you can just use Peptizyde (milk proteins) or Lactaid (milk sugars)

instead if that works better.

Fortunately we have more alternatives at hand.

.

[Guest guest]

,

I know that works well in theory, and even in lots of kids. But,

believe me, I don't have Tom on the SCD because I like being an

autism marter! The SCD does something that all three houston enzymes

did not do - and you know I love HNI enzymes!

I wish wish wish it were as simple as using enzymes and maybe

eliminating a few problem foods, but for Tom, that was just not the

case. I tried it for quite a while :-).

So I must use enzymes and a very restrictive diet. This is where Tom

functions best, and I will do whatever it takes to keep him at the

highest level of functioning possible.

I don't want people to think if just enzymes don't work for their

child, that they are alone. Lots of kids need more. I really do

think that in the future, we will be able to add in more and more

foods. I don't ever see giving up enzymes.

Again, it would have been fabulous if Tom were like your kiddos or

some others that were able to basically use a healthy diet and

enzymes and acheive such success. I know your boys don't even have

to take enzymes a lot of the time anymore. Tom has been on Houston's

almost as long as your guys, and he can't miss a dose.

FWIW, I seriously suspect measles in the gut, perhaps that is the

difference.

Peace and grace,

Sally, mom to

Tom, 8yo dx AS but on the road to recovery

Ben, 6yo NT by the grace of God

Gracie, 2yo NT and unvaccinated

> The basic thing I see is that many restrictive diets focus on

> eliminating whatever foods are seen to cause the perceived problem

> because they are not digested. Enzymes digest food. So that is why

> taking enzymes can replace many of the food eliminations.

>

> I also think it important not to just toss out something that is

> working well. So Ojibwa Tea or Brainchilds or something else is

> workin, then thought should be put into it before eliminating it.

> Many of the very good supplements came out AFTER these diets were

> devised, so their effectiveness in the overall scheme of things

> wasn't evaluated. So many one had to eliminate dairy before but now

> you can just use Peptizyde (milk proteins) or Lactaid (milk sugars)

> instead if that works better.

>

> Fortunately we have more alternatives at hand.

>

> .

[Guest guest]

>>>>> I had read that the SCD could be used for treating seizures.

Has anyone has any experience with that? This sounds like an awesome

> thing for my daughter if it would work!!!

,

A number of the people on the SCD group pecanbread are doing

SCD for seizures. Several found out about SCD from the keto group

because they were doing the keto diet for seizures. You might want to

ask in that group and see how it is working out.

pecanbread

.

[Guest guest]

> Also, a little off subject. I want to make some dietary and

> supplement changes in my daughter's life but am being faced with the

> opposition of my exhusband. Any suggestions?

The best thing to do for a divorce situation is to have your child tested, then

go back to court to modify the custody/visitation order to

include the new medical requirements.

Dana

[Guest guest]

Hi folks:

Here is a paper on risk factors for SCD. First, three quotations from the abstract:

"Age, preexisting IHD, arrhythmia, systolic blood pressure, blood cholesterol, elevated heart rate (90 beats per minute), physical activity (all, P<.05), and, to a lesser extent, smoking (P=.06), HDL cholesterol (P<.07), and elevated hematocrit (46%, P<.09) emerged as independent risk factors for SCD"

" ....... elevated heart rate, heavy drinking, and arrhythmia emerged as factors that appear to be specific or particular to SCD."

"Physical activity, systolic blood pressure, and current smoking were associated with SCD only in men without preexisting IHD."

The abstract:

"Risk Factors for Sudden Cardiac Death in Middle-Aged British Men" Goya Wannamethee, PhD; A. G. Shaper, FRCP; P. W. Macfarlane, PhD; , MA

University Department of Public Health, Royal Free Hospital School of Medicine (G.W., A.G.S., M.W.), London, England, and the Department of Medical Cardiology, Royal Infirmary (P.W.M.), Glasgow, Scotland.

Correspondence to Dr Goya Wannamethee, University Dept of Public Health, Royal Free Hospital School of Medicine, Rowland Hill St, London NW3 2PF, England.

Background: Risk factors specific to sudden cardiac death (SCD), ie, death within 1 hour after onset of symptoms, have been poorly identified, although recent findings from the present study incriminate heavy drinking and elevated heart rate. This paper examines the relations between a wide range of established and potential risk factors for ischemic heart disease (IHD) and SCD to identify independent risk factors for SCD and factors that might particularly or specifically relate to SCD.

"Methods and Results: We present a prospective study of a cohort that was drawn from general practices in 24 British towns of 7735 middle-aged men who were followed up for 8 years. During 8 years of follow-up, the men experienced 488 major IHD events (nonfatal and fatal), of which 117 (24%) were classified as SCD. Age, preexisting IHD, arrhythmia, systolic blood pressure, blood cholesterol, elevated heart rate (90 beats per minute), physical activity (all, P<.05), and, to a lesser extent, smoking (P=.06), HDL cholesterol (P<.07), and elevated hematocrit (46%, P<.09) emerged as independent risk factors for SCD after adjustment for a wide range of factors. Diabetes was not found to be associated with SCD, and forced expiratory volume in 1 second, body mass index, white blood cell count, and antihypertensive drugs were not associated with risk of SCD after adjustment. When examined in relation to non–sudden IHD deaths and nonfatal myocardial infarction, elevated heart rate, heavy drinking, and arrhythmia emerged as factors that appear to be specific or particular to SCD. These three factors and age and blood cholesterol were associated with an increased risk of SCD in men both with and without preexisting IHD. Physical activity, systolic blood pressure, and current smoking were associated with SCD only in men without preexisting IHD. HDL cholesterol and hematocrit were strong predictors of SCD only in men with preexisting IHD.

"Conclusions: Three risk factors appear to be specific or particular to the risk of SCD, and these and other risk factors operate differently in patients with versus those without preexisting IHD. These findings have implications for the causes and prevention of SCD."

Rodney.>> > Hi folks:> > This has some interesting data in it which, if correct, suggests having> clean arteries is only about half the battle:> Global public health problem of sudden cardiac death. Mehra R> <http://www.ncbi.nlm.nih.gov/sites/entrez?Db=pubmed & Cmd=Search & Term=%22M\> ehra%20R%22%5BAuthor%5D & itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_Result\> sPanel.Pubmed_DiscoveryPanel.Pubmed_RVAbstractPlus> .> Medtronic, Inc, Minneapolis, MN, USA. rahul.mehra@...> > Cardiovascular disease is a leading cause of global mortality,> accounting for almost 17 million deaths annually or 30% of all global> mortality. In developing countries, it causes twice as many deaths as> HIV, malaria and TB combined. It is estimated that about 40-50% of all> cardiovascular deaths are sudden cardiac deaths (SCDs) and about 80% of> these are caused by ventricular tachyarrhythmias. Therefore, about 6> million sudden cardiac deaths occur annually due to ventricular> tachyarrhythmias. The survival rate from sudden cardiac arrest is less> than 1% worldwide and close to 5% in the US. Prevention of> cardiovascular disease by increasing awareness of risk factors such as> lack of exercise, inappropriate diet and smoking has reduced> cardiovascular mortality in the US over the past few decades. However,> there is still a huge cardiovascular disease burden globally as well as> in the US. Therefore, there is a need to develop complementary> strategies for management of sudden cardiac death. The data from several> trials conclusively indicate that implantable defibrillators improve> mortality in patients who have experienced an episode or are at high> risk of developing ventricular tachyarrhythmias. These devices are> reimbursed and are being used frequently in the developed economies for> management of SCD. However, due to that low level of public and private> health spending in developing economies and the relatively high cost of> ICDs, their implant rates are very low there. The Automatic External> Defibrillators and Emergency Medical Response Services equipped with> AEDs provide complementary as well as alternative opportunities for> management of SCD. There are several challenges associated with the> adoption of these strategies. The efficacy and cost-effectiveness of> these strategies need to be compared with ICDs to determine the> appropriate strategy for various geographies. The global problem of SCD> as well as the various options for its management will be discussed in> the presentation.> > PMID: 17993308> > Rodney.>