Re: A re-introduction

[Guest guest]

Hey there sweetie! As you're coming from such a long way, surely there's a

midpoint we could meet up at? Anyway, I will contact you off-list and not

bore everybody else!

Love you!

From: [mailto: ] On

Behalf Of Meadows

Sent: Monday, November 17, 2008 11:18 PM

Subject: RE: A re-introduction

, wow -- Hello Mrs!

Really great to hear from you – it is absolutely great (and right) to chat

on this group with you – let’s do it more?

Seriously thinking of holidaying in Longleat in January – not too far from

you is it J

Keep in touch

Lots of love

and

xxx xxxx xxx

From: <mailto:%40>

[mailto: <mailto:%40> ]

On

Behalf Of Geary

Sent: 17 November 2008 15:22

<mailto:%40>

Subject: RE: A re-introduction

Hi Nat!

As you have probably noticed, I don’t write here often, and lurk in the

shadows, rather guiltily, most of the time. But I just wanted to say

“hello”, although we have known each other for some time (!), and say that

as I am also in the UK, I would certainly appreciate fellow ‘Europeans’

input on more local issues and as fellowship; personally have felt so alone

(not lonely, I am lucky there) and always end up with a Dr or medical

variant (heh, like replicant perhaps!) who has never heard of SMA, and am

sometimes just too exhausted or ill to go through it all from scratch again.

Bloody numbnut OT’s... (Not) Getting equipment... And I am so sick of, “Is

it MS?” – yes, title, but not diagnosis – but title-wise they always end up

writing ‘Mrs’ anyway, argh!

My eyes have been opened recently as to just how many of us gorgeous

SMA-girls are bi! Wow, is it because we are greedy?!

You know you are always welcome to visit if you’re down this way, we’d love

to see you (and the gorgeous !).

Best love,

From: <mailto:%40>

<mailto:%40>

[mailto: <mailto:%40>

<mailto:%40> ]

On

Behalf Of Meadows

Sent: Saturday, November 15, 2008 2:04 PM

<mailto:%40>

<mailto:%40>

Subject: A re-introduction

Hello everyone,

I have been a lurker on this list for many years but now I would like to

become a bit more involved for . So here is a bit of an introduction to me

J

My name is , but please call me Nat, I live in the UK, I’m 43 (still

not sure how that happened!) I have a 3 year old son and a retired

assistance dog who both live with me and I also live with a lesbian couple

who work as my PAs (I also have 4 other PAs). I’m a single lesbian – maybe

bisexual (long story there) and have SMA 2. Hobbies/ interests mean I love

my computer, my friends, coffee, politics -- but primarily my gorgeous son

and the (amazing) honour of being his mother.

I work as a freelance disability equality trainer and am beginning to think

that I need to think about ‘retiring’ as my health is dictating that I

should work less, which means I keep having to cancel various contracts.

I’m sure that many of you understand that working on a self employed basis,

means that no work = no ££. I’m on my 4th chest infection this year, which

apart from the usual annoyance that goes with them, I can’t keep up to date

with my workload either. I am usually a busy and active person and the

thought of not working is one I can’t get my head around.

Anyway, it would be nice to get to chat with other SMAers, so I’m sure

you’ll hear more from me ...

Nat