Sinus Question

August 11, 2003

Hi ,

I've had similar sinus problems as has my son Sam. We are both IgA deficient.

Sam also has an IgG 2 subclass deficiency and I have a polysaccharide

antibody deficiency. I have not tried antibiotics in the nebulizer, although for

a

while, my dr. had me try gamma through the nebulizer. I didn't see any

improvement for that. What I have found that works for both me and Sam is a

change of

antibiotic. I've had many antibiotics that just suppress the infection (I feel

much better at those times and wouldn't know that I still am harboring

bacteria) and then it comes back as soon as I or Sam goes off them. What we've

done

is switch to another antibiotic that hits the same spectrum of bugs but is

maybe stronger.

I don't know if you're serious about moving to Florida, but that's where we

live. Spring is not rainy but it rains from June to October almost daily.

Good luck with your dilemma,

Anne R. (Sam's mom)

August 12, 2003

In a message dated 8/12/03 10:05:47 AM Pacific Daylight Time,

LLadden@... writes:

> Asthma doc placed him on .5 pulmicort, Atrovent, and Albuterol nebulized 2x

> daily..

,

Thanks for the info!!

Sandi--Mom to , age 10. Immune Deficiency, Tetrology of Fallot, Mitral

Valve stenosis, chronic sinusitis, chronic ear infections, asthma, severe

allergies, GERD, Pulmonary Valve Transplant--July 18.

August 12, 2003

> My daughter Sara 4 has/had been battling a sinus infection for 11

> months,she was on Augmentin,it was working just very slowly.

> My question is: has anyone tried antibiotics for the nebulizer? I

> have read a little bit about this and was wondering if anyone has

any

> ideas. She takes Zyrtec everyday to keep the allergies under

control

mom to Sara 4 and Casey 3 both CVID and 5 months bringing up

the rear.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Hi !

My son Blake had this problem it seemed like for ever(not that he

doesn't now). He would be on an antibiotic dfor 21 days only to have

it changed to another then another just to have it " NOT " work. I bet

we went through every antibiotic created by the time he was 6 yrs. of

age. His sinus infections started when he was just 10 mos. of age as

we were weaning him of the O2 he required because of his immature

lungs due to being born very prematurely. He was found to be

allergic to all cephlasporines, penicillins, sulfur clindamycin and

red dye. All of this before he was 3 yrs. of age. Soooooo, this

left the Dr. very limited as tt what Blake could take. Which for the

most part wound up being IV meds(Gent. and Vanc). He had 12 sinus

surgeries in a 2 yr. period because they stayed soooo infected and

blocked. He was miserable & and almost non functional!

When Blake was inpatient when he was 9 yrs. old for severe asthma

and Osteomylitis of the Temporal Bone and severe sinus and ear

problems(he was in for 12 weeks) the Pulmonologist decided that the

usual inhalers were not accomondating Blake and his asthma. She

decided to place Blake on Pulmicort respules. The is an inhaled

steroid that goes through the nebulizer. He started out on .2.5mg.

2Xdaily. Well he still was getting no relief. He wound up in the

hospital with pneumonia and a collasped lung. We stayed there 6 weeks

(after only 4 weeks at home from the 12 week stay!!) His pulmicort

was then changed to the higher dose of .5mg 2Xdaily. He was still

having asthma issues. But the one thing that was NOT noticed until I

got to thinking about it and brought it to the Pulmo. and ENT's

attention.....Blake had NOT had one bit of sinus problems since

starting on the Pulmicort. Since them Blake has had a great decrease

in his lung functioning and required O2 for a while at nite until it

was reconized that it was not helping,he was placed on Pulmocort .5mg

4Xdaily for the severe bout of asthma. In the past 2 yrs. while

being on the Pulmicort via nebulizer with Pediatric mask), Blake has

NOT(knock on wood and pray hard it does not change)he has not had one

single sinus infection. He gets a little stuffy or runny and does

not fiar well in the cold or rain.

It may be possible that you could chance it and ask your Doc. to

place Sara on the Pulmicort via neb. just to see what does take

place. We were told the reason fot the change in sinus activity is

because the Pulmicort is inhaled through the mask and most likele to

enter the sinus passages therefore helping to open them up. Another

option that was suggested and it really helped Blake is when we do

the Neb. treatments, is to use PEP mask. THe Dr or RT that works

with your Pulmo. can explain this. But what it does for Blake is

when he uses the PEP mask, and exhales , he actually has only a very

tiny hole to release the air. When this happens it teaches him to

use the lower airways to exhale. Then as he tries to exhale the meds.

will get in the lower airways and plus it seeps in the sinus cavity

and is able to " sit " in there and absorb the meds.

I hope this helps and you can get the Doc to agree to try Pulmicort

(at least once a day). Anything is worth a try to get get relief for

your little Pumpkin!

S.(mom to Blake S. CVID With Complete T-Cell Dysfunction,

Asperger's Syndrome, CAPD, ADHD Sever Asthma & Severe GERD pending

surgery in Sept)

Blake's website http://www.Caringbridge.org/ca/blake stop by for a

visit when you can.....we'd love to have ya!!!!

August 12, 2003

I'll join in--my son has sinus infection problems, as well as constant green

infectious nose mucus requiring nasal saline flushes and bulb syrine clean

out 2x daily..

Everyone thought my son had CF, but sweat test was neg.

Asthma doc placed him on .5 pulmicort, Atrovent, and Albuterol nebulized 2x

daily.. The atrovent decreases excess mucous production, and my son has not

had as severe, or frequent sinus infections as he once had and he does not

get the inflammation of the bronchi- that they always think is pneumonia,

but not, since being on these treatments.

Also, you can increase the dispensation of the atrovent and albuterol

neblized down to every 2 hours during particularly bad times.

It hs been a lifesaver

Mom to 20 month - GERD, CVID, Asthma, Allergies, ?celiac/Schawman

Diamond,Failure to Thrive, Ezcema, Chronic Thrush, Chronic Sinus and Ear

infections--Also being accessed for multiple Gastro problems

Re: Sinus question