weak throat problems

[Guest guest]

I have SMA type 2, use a bipap at night and my settings are 19/15

because at lower epaps I aspirate in my sleep. Last night I had trouble

sleeping because it felt like my throat was collapsing behind my soft

palte causing apnea. I titrate my own pressures slightly to adjust for

positional changes, etc. I'm freaking out today because I'm worried

about what is causing this. Some nights I sleep great and fell like I

can conquer the world; other nights once in a while this happens. I'm

so tired but I dread another night like this. My throat muscles have

definitely weakened over the years. I know alot of you are going to be

angry w/ me when I say this but I one of my biggest fears is having to

be trached. Does anybody out there have a high epap setting like me?

Can anyone give me some feedback?

Thanks

Patti

www.myspace.com/boopybop

[Guest guest]

Hey Patti*

I know you dont wanna hear it, becz I'm the same way! But my trach is the best

thing i've ever done- I *know* I'll be ok during sleep.

Trachs r not as dramatc if you can still breathe w/o it.

keep an open mind-were here to support you

J & J

weak throat problems

I have SMA type 2, use a bipap at night and my settings are 19/15

because at lower epaps I aspirate in my sleep. Last night I had trouble

sleeping because it felt like my throat was collapsing behind my soft

palte causing apnea. I titrate my own pressures slightly to adjust for

positional changes, etc. I'm freaking out today because I'm worried

about what is causing this. Some nights I sleep great and fell like I

can conquer the world; other nights once in a while this happens. I'm

so tired but I dread another night like this. My throat muscles have

definitely weakened over the years. I know alot of you are going to be

angry w/ me when I say this but I one of my biggest fears is having to

be trached. Does anybody out there have a high epap setting like me?

Can anyone give me some feedback?

Thanks

Patti

www.myspace. com/boopybop