Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Dear All, My daughter, age 9 with SMA type II has just been advised to undergo the scoliosis surgery next year maybe in June or July. It is something which we don't expect to come so early (no doubt I know that she will need to go thru that eventually). Me and my husband are still unprepared for this surgery. I hope anyone can help to answer my questions below: 1) what type of implant should we consider ? the doctor said the implant will be one time only and her back will be fused/fixed so she will not grow any taller on her upper limb. is this the only choice she has ? she is only 9, we really hope we can defer this surgery... 2) is there any other type of implant that she will " grow " with her height ? maybe the type that she needs another surgery when she is older ? the doctor said, since she is wheelchair bound, so her height is not something we should consider, that's why he recommended this implant which need one time operation only. but we are really not sure 3) we have tried to tell the doctor to defer the surgery but the doctor advised us that as the curve is 45 degree, it is better to do it early, less risky, better recovery, what is your advice ? he said if we wait longer, the curve maybe even worst and even more risky to do the surgery. Btw, is there any other alternative we can do ? I am sorry to ask so many questions. I really need anyone who can share with me the experience. Thanks. Mee Ling Quote Link to comment Share on other sites More sharing options...
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