a boy's experience with stem cell injection

[Guest guest]

Hi, members,

You can visit his blog about a 4-year-old boy who recently had stem cell

treatment in China here: http://stemcellschina.com/blog/brandonm/

regards,

[Guest guest]

I wish they allowed us to have it here, my husband met a man with ms at the

pharmacy who was bed ridden for 9 years, after a year of having his stem cell

injections he was walking and driving again. I looked into it and the told me I

could have it done in the Bahamas but I don't have the 30k to pay for it.

From: Huang <jenny_huang99@...>

Subject: a boy's experience with stem cell injection

Date: Wednesday, October 22, 2008, 11:33 PM

Hi, members,

You can visit his blog about a 4-year-old boy who recently had stem cell

treatment in China here: http://stemcellschi na.com/blog/ brandonm/

regards,

[Guest guest]

I am gathering more info about the treatment from my friends, relatives and SMA

friends in China. If the stem cell really help to regenerate some nerve cell so

that our kids can continue to develop their development more normally, I would

let my son have a try soon. I am not looking for a cure but 10% or 20%

improvement. I wish that it would be an organized and controled trial just like

the normal clinic trial.:-) I wish there are a group of people working together:

raise some money to fund more people to have a trial together and to document

their progress so that their experience can benefit more to other future SMAers.

I can help to communicate with china and to get the price down. Any suggestion?

You are more than welcomed to contact me in person. Thanks

From: Huang <jenny_huang99>

Subject: a boy's experience with stem cell injection

@gro ups.com

Date: Wednesday, October 22, 2008, 11:33 PM

Hi, members,

You can visit his blog about a 4-year-old boy who recently had stem cell

treatment in China here: http://stemcellschi na.com/blog/ brandonm/

regards,

[Guest guest]

I fully endorse your views but you said you are not looking for cure but 10%,

20% improvement. Dont you think that if its not fully cured it will again start

degenerating the muscles and the improvements will for couple of months?

Nisar

--- En date de : Jeu 23.10.08, Huang <jenny_huang99@...> a

écrit :

De: Huang <jenny_huang99@...>

Objet: Re: a boy's experience with stem cell injection

À:

Date: Jeudi 23 Octobre 2008, 19h42

I am gathering more info about the treatment from my friends,

relatives and SMA friends in China. If the stem cell really help to regenerate

some nerve cell so that our kids can continue to develop their development more

normally, I would let my son have a try soon. I am not looking for a cure but

10% or 20% improvement. I wish that it would be an organized and controled trial

just like the normal clinic trial.:-) I wish there are a group of people working

together: raise some money to fund more people to have a trial together and to

document their progress so that their experience can benefit more to other

future SMAers. I can help to communicate with china and to get the price down.

Any suggestion? You are more than welcomed to contact me in person. Thanks

From: Huang <jenny_huang99>

Subject: a boy's experience with stem cell injection

@gro ups.com

Date: Wednesday, October 22, 2008, 11:33 PM

Hi, members,

You can visit his blog about a 4-year-old boy who recently had stem cell

treatment in China here: http://stemcellschi na.com/blog/ brandonm/

regards,

[Guest guest]

Degenerate again? very possible. Everybody is aging, very slowly degenerating.

But what  if after the treatment, they might have more to lose? less

hospitalization? delayed surgeries, better quality of life? My son is weak type

II, if someone tell me that now he is strong type II or even better type III,

would I be excited? of course. Think about how much it cost to have just one

hospitalization and how much we invest for our current drug development. Will

there be one effective drug available in the very near future? very hard. But

our kids can't wait that long, they will soon pass their growth period.

From: Huang <jenny_huang99>

Subject: a boy's experience with stem cell injection

@gro ups.com

Date: Wednesday, October 22, 2008, 11:33 PM

Hi, members,

You can visit his blog about a 4-year-old boy who recently had stem cell

treatment in China here: http://stemcellschi na.com/blog/ brandonm/

regards,

[Guest guest]

Years ago a number of people I knew went over seas to get

experimental medical treatments that were at best a waste of money

and energy, or made their health worse for the efforts.

Sometimes it's safer to wait {when possible} for the treatment to get

perfected before volunteering yourself.

>

> Hi, members,

>

> You can visit his blog about a 4-year-old boy who recently had stem

cell treatment in China here: http://stemcellschina.com/blog/brandonm/

>

> regards,

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