Re: Re: Ok, another swallowing question...Update...Revised

[Guest guest]

Lori, do you know when you are aspirating? Does it feel like choking? I

used to only eat once a day and not much at that meal because it was too

tiring to chew, but then I discovered the vitamix blender & it totally

changed my eating life. it is so easy to throw any and all food in there

including fresh fruit and veges and make the perfect smoothie for every

meal. ;-) they are expensive but you can buy them refurbished cheaper and

just as good with a 7-10 yr warranty. Www.vitamix.com

Love,

N

On 12/13/08 2:53 PM, " Lori " <lorig713@...> wrote:

>

>

>

> I got the written report of the MBS and it shows aspiration with both

> thin and thick liquids. They must have reviewed the video again after

> I left.

>

> I'm still hopeful that it will resolve like it has in the past.

>

> L

>

>

>> >

>

>> > MBS Update: It didn't tell us anything we didn't already know. 

> Major difficulty with the swallow process.  It didn't show an

> aspiration but even if it did, there's no strategy that will improve

> the swallow.  She was concerned about my nutrition as I am only

> having one meal (dinner) on work days so I can avoid suctioning at

> work.  I've only lose one pound is two months so I am not worried

> about that.  Hungry but not worried.

>> >

>> > Am I making any improvements?  If we had to measure in some way,

> over these few weeks we were suctioning every hour at night and now

> it's about once or twice a night so I'll call that an improvement and

> am hopeful that I'll return to no suctioning (unless I'm sick).

>> >

>> >

>> > Lori

>> >

>> >

>> >

>

>

>

[Guest guest]

The silent aspirations are what I am most concerned about because it is

happening throughout the day and I end up having fluid at the bottom of my left

lung all day so I am at increased risk for an infection.  I only ask for help

suctioning at work if I am struggling to breathe.  At home helps me

whenever I need to clear the secretions.

________________________________

From: <nicoleroberts@...>

" " < >

Sent: Saturday, December 13, 2008 9:09:59 PM

Subject: Re: Re: Ok, another swallowing question...Update...Revised

Lori, do you know when you are aspirating? Does it feel like choking? I

used to only eat once a day and not much at that meal because it was too

tiring to chew, but then I discovered the vitamix blender & it totally

changed my eating life. it is so easy to throw any and all food in there

including fresh fruit and veges and make the perfect smoothie for every

meal. ;-) they are expensive but you can buy them refurbished cheaper and

just as good with a 7-10 yr warranty. Www.vitamix. com

Love,

N

On 12/13/08 2:53 PM, " Lori " <lorig713 (DOT) com> wrote:

>

>

>

> I got the written report of the MBS and it shows aspiration with both

> thin and thick liquids. They must have reviewed the video again after

> I left.

>

> I'm still hopeful that it will resolve like it has in the past.

>

> L

>

>

>> >

>

>> > MBS Update: It didn't tell us anything we didn't already know. 

> Major difficulty with the swallow process.  It didn't show an

> aspiration but even if it did, there's no strategy that will improve

> the swallow.  She was concerned about my nutrition as I am only

> having one meal (dinner) on work days so I can avoid suctioning at

> work.  I've only lose one pound is two months so I am not worried

> about that.  Hungry but not worried.

>> >

>> > Am I making any improvements?  If we had to measure in some way,

> over these few weeks we were suctioning every hour at night and now

> it's about once or twice a night so I'll call that an improvement and

> am hopeful that I'll return to no suctioning (unless I'm sick).

>> >

>> >

>> > Lori

>> >

>> >

>> >

>

>

>

[Guest guest]

That would be greatly appreciated.   Thank you.

From: Doug <doug696@...>

Subject: Re: Ok, another swallowing question...Update...Revised

Date: Sunday, December 14, 2008, 4:35 PM

Would you all be interested in the swallowing exercises the speech pathologist

gave me and my Mother to try (she has severe dysphagia from some unknown cause

as of yet)? Doug

[Guest guest]

I would be!

On Dec 14, 2008, at 4:35 PM, Doug wrote:

> Would you all be interested in the swallowing exercises the speech

> pathologist gave me and my Mother to try (she has severe dysphagia

> from some unknown cause as of yet)? Doug

>

>

[Guest guest]

Before I had the swallow study, I asked the speech therapist if there were any

exercise that would help.  She said that she could not recommend a particular

exersice without a swallow study because she wouldn't know the exact mechanism

that was malfunctioning.

________________________________

From: Amy <blueyedaze@...>

Sent: Sunday, December 14, 2008 6:40:44 PM

Subject: Re: Re: Ok, another swallowing question...Update...Revised

I would be!

On Dec 14, 2008, at 4:35 PM, Doug wrote:

> Would you all be interested in the swallowing exercises the speech

> pathologist gave me and my Mother to try (she has severe dysphagia

> from some unknown cause as of yet)? Doug

>

>