Pneumonia, trachs and feeding tubes

[Guest guest]

I travelled to Las Vegas a month ago to meet friends and to get over

Taya's death. A few days later I found myself in ER with breathing

problems. I had got pneumonia (first one in 20 years), and they had to

put a trach on me, since intubation didn't work. Now I'm back in

Finland and the pneumonia is gone, after a few weeks in the ICU in

Vegas. I have to keep the trach and the feeding tube until further

notice, which means more time in the hospital. With bad luck they are

permanent.

I don't have any previous experience on trachs or feeding tubes, so

I'm wondering what will happen if they are permanent. Can anyone here

tell me about " normal " life with them, especially the peg-tube? Do you

take the shots daily to prevent clotting? Where do you keep the

bottles when it's feeding time? How about when you are on the go

(since I need to go to classes and go shopping)? I've had enough of

hospitals, so I'd rather go home already.

- Venla R

SMA 2